Do I need the Peyronie's Disease Handbook if the only treatment method left to try is the penis stretching?

Hi there, so i came across your site a while back and have been reading into it

I appreciate the work that has been put into the project as a whole but im sure there is a lot of skepticism out there still.
My question to you is regarding options.

If i may say so, i already take vitamin E, acetyl-L-carnitine, glucosamine, fish oils, and other supplements for my body building.
I saw that you sell a book “Peyronie’s Disease Handbook” and then have “Manual Penis Stretching Method” CD

My PD developed about 5 years ago but is only gradual but enough to cause discomfort !

do i need the handbook if the only treatment method left to try is the stretching?

some clarification would be greatly appreciated

Kind Regards

Colin

Greetings Colin,

Your basic question, as shown in the title, indicates you do not understand what the PDI protocol is about. You are not remotely correct that the only other method left to try is the PDI gentle manual penis stretching technique. It seems to me you are seeing only a part of the process, but assume you see the whole.

As a body builder I am sure you are keenly aware that technique is of utmost importance. Your question would be similar if I asked you, “I already do a lot of heavy lifting. I work delivering refrigerators all day long, so I think I am doing all that I should for a body like Arnold Schwarzenegger. Do you think I really need to lift weights the way that Arnold Schwarzenegger did to get the kind of body he had? Why I can't I just do it my way, and not do all the other stuff? By the way, I will judge your ideas and methods based on the results I get, but I will not follow your methods.”

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While you may have been reading the PDI site for some time, it seems that you may have missed a key point related to how this process works to assist the recovery from Peyronie's disease. It is not enough to “take” some of the various nutritional supplements, but they must be taken in the correct dosage and combination while assessing for changes in the size, shape, density and surface features of your PD plaque fibrous material. If the dosage you are following is not causing the desired changes, then you must increase the intake until you notice reduction of the plaque beginning to occur. Popping a few pills is not what this natural Peyronies treatment process is about.

Further, we do not advocate using only internal therapies, meaning supplements taken orally intended for internal systemic distribution as the sole method of treatment for Peyronie's disease. Diverse external therapies, of which manual penis stretching is only a small part, are also needed to support recovery from PD. There is far more to the PDI treatment protocol than the use of the stretching method that was developed by PDI.

I think the reason you need this clarification is that you have not looked around the site sufficiently or considered all the information it has to offer. TRH

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Would taking all these vitamins and mineral in a Peyronies treatment plan increase risk of kidney stone formation?

I developed a kidney stone a few years back and am wondering if taking all these vitamins and minerals would increase the risk of getting another?

Greetings,

There has never been a report made of an adverse kidney or bladder reaction while following a Peyronies treatment plan. Kidney stones do not form as a result of high intake of nutrients, but rather due to disease and malfunction of the urinary system. TRH

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Can you help me with my Peyronies treatment and my heavy nutritional intake?

Dr. Herazy:

We spoke a couple of years ago when I was changing careers from being a long-time financial adviser to becoming a physician (either a holistic MD, Emergency Room Doctor, or possibly now a nutritionist or orthomolecular medicine practitioner). I am now in pre-med classes at age 60, and other than the Peyronie’s Disease and a small left-side inguinal hernia, in stellar health. In the past two years, my physical workouts stopped due to a rigorous study and work schedule, then the hernia appeared. Due to the cautionary advice of my trainer, I now work out carefully 3 times a week, have excellent labs, and do Qi Gong (ancient Chinese healing martial art) and Myofascial Release and other stretches every morning. I look and feel much younger than my age. The small, left side inguinal hernia appeared in November 2011 from working as an EMT on a transport ambulance, and I took a leave of absence in December 2011 pending surgery, which is currently pending with my employer’s workers compensation insurer. I was advised that it should be resolved by October. I currently take 71 different natural supplements daily in pill, tincture, liquid and powder form to the tune of 150 doses each day and have since 2006. This was carefully designed by a medical practitioner under an anti-aging and naturally detoxification protocol from the work of Dr. Gary Null, PhD.

According to my former urologist, whom I first consulted since he performed a vasectomy on me in 1994(?), the popping sound I heard during intercourse several years ago (2008 or 2009) was the beginning of the Peyronies issue, though for about seven years prior I had noticed a slight weakening of my erection. Now, my penis curves downward almost 90 degrees during engorgement, and it appears as if there is an invisible ring at the base of my penis constricting it. During intercourse there is no pain (there was some initial burning sensation inside my penis as I recall after the incident), and I am still able to have somewhat satisfactory intercourse, reaching ejaculation, with my female partner. My penis does become flaccid at times during intercourse and it certainly is not as pleasurable as before the incident. According to my former urologist’s caution, I keep in mind that intercourse could cause further damage so my partner and I are careful.

I want to return to having a healthy erection and intercourse experience, which I did throughout my entire sex life since late teenage-hood. I take 800 mg of pharmaceutical grade natural Vitamin E daily as part of my supplements protocol above. For reasons other than Peyronie’s, to move away from allopathic medicine, I changed doctors to a highly recommended holistic MD, board certified in many specialties, who just happened to have experience with a severe Peyronie’s patient (this was a plus though not my primary reason for choosing him). He had me take a highly concentrated form of pharmaceutical grade PABA (Potaba) because he said it would help eliminate scar tissue anywhere in my body. Only with a prescription I ordered it from a top pharmacy in Canada and over several months, built up to a course of 8 Grams (I believe) a day with little resulting correction, though the change was not scientifically measured. Before reordering a third time in August 2011, I let my doctor know that it did not resolve the issue, though it may have helped, and gave him your information. He then told me to follow through with you.

Before calling you a couple of years ago I read the book of the nutritionist with whom you treated. I contacted him several times but he did not respond. I then called you and you said your body of work went greatly beyond his, but with all of my occupation change and education activities, I am just now getting back to you for a plan of action.

How do I start on a definitive course of action to reverse this structural condition? I would be glad to share with you my entire supplement protocol so you may see what I am taking and how it may be supplemented.

With appreciation,

Peter A. Lindsley

Greetings Peter,

Good to hear from you again.  I was wondering what you might be doing.  Thank you for the interesting and detailed Peyronie’s disease history.

You are not the first man who reports to me that he is in exemplary physical condition, yet Peyronies develops after injury.   The only way I can explain it is that someone who is in perfect health, following a perfect dietary and nutritional program, would still be subject to injury by falling down the stairs, hitting his thumb with a hammer, an automobile accident – or injury to the penis during intercourse.  Being healthy and well nourished does not make you bullet-proof to trauma.      

Many MDs approve of the PDI concept of treatment for this problem.  It makes sense and it is based on documented research results.   I find that when MDs develop Peyronie’s disease they eventually come to PDI for treatment since there is nothing for them in their own medical camp to use with confidence.  I work with MDs for their personal recovery.

A pharmaceutical grade of PABA is not POTABA; they are two different things.   PABA is considered a B vitamin.  POTABA is PABA with a potassium molecule attached to it and is considered a drug, no longer a B vitamin.  They are similar but not the same thing.   The early Peyronie’s research work that was done with PABA got good clinical results, so naturally the MDs  assumed that POTABA (the drug that they can control because it is a prescription item) would work better.   POTABA causes many side effects and few men can take it long enough to complete the intense dosage of three months.  You are far better off using PABA the way we recommend it.

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Because of your high supplement intake I suggest that you contact me for a telephone consultation about treatment.   For the most part I suggest you at least start by reading the information found at Start Peyronie’s Treatment.   TRH

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How to work for the best chance of recovery from Peyronie’s disease?

Dear Dr. Herazy,

Six months after undergoing a double nephrectomy in July 2009 I discovered that I had symptoms of Peyronie disease.   My kidney diagnosis was papillary renal cell carcinoma and I have been receiving hemodialysis since surgery. I purchased your PD manual in 2010 and have studied it. My self care emphasis has been mostly just tracking the scar closely. I have a 45 degree up curvature; rt side shaft base indent of 1/2 inch when hard from a plaque scarring that feels the size of a postage stamp; a left side shaft base lump the size of a large oval tablet located adjacent  to the urethra. Together these scars produce a severe hourglass just above the shaft base during erection. My Dr. also has identified plaque buildup on the top of the "T" along the whole shaft.  I tried one bottle of neprinol, taking 6 tabs twice a day and did not detect a change.

My request is that I would like to work with you on a structured therapy with the goal of healing these scars and symptoms and hope fully the PD cause. I would like to give myself the best chance for recovery.

Sincerely,

Tim Kay

 

Greetings Tim,

Sorry to hear of your recent health problems.  

Fairly often I am told stories similar to yours in which Peyronie's disease starts after having serious surgery that requires catheterization, as probably happened in your case.  Injury to the penis typically occurs while the patient is unconscious and unaware of the forceful entry of the catheter into the urethra.  

Taking Neprinol by itself is seldom able to reduce the Peyronie's plaque material; a large and diverse program of care must be used to support the body to heal the plaque formation.  I suggest you consider following the largest and most aggressive therapy plan you can to get started in the right direction.  

I would be happy to work with you to answer your questions and provide options along the way.  Please let me know how I can assist you.   TRH