November 1, 2017 PDI Newsletter
Greetings to all PDI and DCI Warriors,
Welcome to this November 2017 Peyronie’s Disease Institute newsletter. I trust all my friends are well. We are seeing some nice fall colors right now, and hope you are also enjoying a brilliant annual display where you are.
Please keep these three important product issues to keep in mind:
- Quercetin/Bromelain is on an extended back-order at least until December; we have been without it for several weeks now. for this reason we have been substituting a different therapy product, Quercetin, when Quercetin/Bromelain is ordered. This replacement product actually has a higher dosage level of both Quercetin and Bromelain. Querciplex costs about $8 more per bottle than Quercetin/Bromelain, although no one is being charged for the difference; we are just swapping the product out at no additional cost. The other difference between the two products is that Querciplex does not include vitamin C, but Quercetin/Bromelain does have vitamin C. Dawn has been writing notes to people explaining why they are getting a different product than what was ordered. Now that I have included this explanation here she will not write this long explanation each time this substitution is made.
- For all you users of Scars-Adhesions homeopathic formula, please think about ordering a few bottles of it soon before the weather starts to get cold. The reason for the concern is that Scars-Adhesions is made with a water base formula (this water will expand and break the glass bottle if it freezes during shipment). Scar Free is made with an alcohol base formula that will not freeze, and therefore bottle breakage due to expansion is not an issue.
- PDI/DCI office will be closed for Thanksgiving holiday week. Please keep that in mind as you consider getting your various therapy products ordered. Please place your orders a little earlier to avoid running out in the latter part of November.
Once again we are going to use the popular format of presenting a recent email exchange I have had with someone in which I have blended my email response directly into their original email − like two emails in one. If you have ever asked me a question you have received this kind of response. This month’s emails from JGXXXXX were chosen from the stack because they contain ideas and information that apply to both Dupuytren’s contracture and Peyronie’s disease treatment, so there is something for everyone.
The primary message of these emails with JGXXXXXX is that you must be keenly focused on how the fibrous tissue (internal scars if you have Peyronie’s disease/palm lumps or cords if you have Dupuytren’s contracture) feels and how it responds to the slow increases of your therapy. There is also a lot of emphasis on how to describe the size, shape, density and surface features of the fibrous material we are working to eliminate. This is of critical importance to therapy success, so pay close attention to what JGXXXXXXX writes about his scar tissue and how I respond.
JGXXXXX reports he is making some nice improvement with his Peyronie’s disease treatment. As you will read his email report and questions you will see that he displays – like most people who make progress with their Dupuytren’s contracture or Peyronie’s disease treatment – a vial interest in doing everything correctly. You can also sense the energy and enthusiasm JGXXXXXX has for making progress; he is working hard at his recovery and this energy often propels people to success.
For those of you who are new to our monthly newsletters, please simply apply the ideas expressed here about Alternative Medicine treatment and dosage to what you are doing for your DC or PD. Since Peyronie’s disease and Dupuytren’s contracture are so similar in many ways, treatment is also similar; what can be done for one problem can also be done for the other.
Read this series of combined emails like the back-and-forth of two people talking while one occasionally interrupts the other to make an important point or answer a question. To understand the flow of the conversation, keep in mind that the text in black is from JGXXXXX and the text in red is from me.
Sent: Thursday, August 17, 2017 4:55 PM
Subject: ultra sound question
I recently purchased a 3mhz HS 3040 Ultra sound unit as part of the Large Peyronie’s Disease Plan. When I turn it on and go to the low or high setting, there is no sensation on the sound head that I can detect. The indicator lights do come on. If I put the back of the unit close to my ear I can hear a slight clicking sound that will change from pulse to constant depending on what I select, but there is no detectable vibration or sensation at the head at al. Is this normal?, or is the vibration level so high that it is not detectable. The directions provided describe the high and low settings as a matter of comfort level, but I feel no sensation at all. Please advise if this is normal or if the unit may be defective. I really see merit in this method of Peyronie’s disease treatment and would like to make sure I am getting the full benefit from it.
I look forward to hearing from you.
From: Theodore Herazy <email@example.com>
Date: August 17, 2017 at 6:32:55 PM EDT
Subject: RE: ultra sound question
The comfort level that you refer to is not a sensation, but more so the absence of any overt or distressing sensation. So in this sense, if you are not feeling any unpleasant sensation that means you have an acceptable comfort level when you are using your US unit.
Keep in mind that you cannot hear the ultrasound machine when the waves are being emitted since the frequency is so high that it cannot be heard. The range of normal human hearing ability is commonly at 20 to 20,000 Hz, with considerable variation between individuals. Bats emit a sound for their sonar navigation that is approximately 40,000 to 100,000 Hz frequency; no human can hear this sound range. The ultrasound machine you bought produces a sound of 3 million Hz frequency, so it is no wonder it cannot be heard. For these same reasons a person cannot feel the sound vibration when the unit operates.
The sound head surface will not get hot, even warm, when it operates. The heat that you will detect when using US therapy will be felt only slightly on your skin surface where the sound enters the tissue, not on the surface of the soundhead itself. The greatest heat generated is below the surface of the skin where you do not have heat receptors. If you keep moving the sound head as you have instructed to do you will feel very little heat. If you foolishly slow down the movement of the sound heat within a few seconds you will feel not only a sudden buildup of heat but also intensely dull pain as the nerve endings are overstimulated by the ultrasound energy.
There is a very simple and obvious to actually view if your US machine is operating correctly. You will be able to see movement and vaporization of water that is created by the device when it is operating correctly.
Please follow this simple procedure to test the unit and let me know what happens:
- Have a small cup of water near you.
- Plug your US unit into a power source and turn it on high.
- Turn the sound head so that it faces upward, toward the ceiling.
- Quickly place a few drops of water on the face of the sound head, (you do not want to operate the US device for longer than necessary without it being in contact with something to receive the sound energy).
- If the unit is working you will see the water bouncing slightly and shaking slightly, and perhaps creating a mist in the air due to vaporization. If the water bounces and moves, the US unit is working; if the water does not move the unit is not working.
- Turn the power off.
If you do not see water movement, bouncing or vaporization of the drop when conducting this test, please email back your results.
Sent: Friday, August 18, 2017 11:33 AM
To: Theodore Herazy <firstname.lastname@example.org>
Subject: Fwd: ultra sound question
Dear Dr. Herazy,
Thank you! I performed the water test you recommended and the unit reacted as you described. I am very impressed with your quick and detailed responses to my questions. I am in the engineering field and appreciate the detailed, measured, and controlled approach to my Peyronie’s Disease treatment. I look forward to talking with you soon. Thank you again!
JGXXXXXXXXXXX Sent from my iPhone
On Aug 18, 2017, at 12:21 PM, Theodore Herazy <email@example.com> wrote:
Thank you for your kind comments. I feel compelled to do my best for all my Peyronie’s disease men since I had the problem myself many years ago before I figured out how to help my body heal the problem.
See below for comments…
Sent: Friday, September 15, 2017 12:22 PM
To: Theodore Herazy <firstname.lastname@example.org>
Subject: Up date and question
Dear Dr. Herazy,
I am a little less than four weeks into the large plan. I have been traveling for the last two weeks, so I have been staying with your beginning recommended dosages, including the DMSO package and the US. I did however add Acetyl L Carnitine at 1/0/2 and Nattokinase at 1/0/1 and Bromelain at 0/0/1. I have not had any stomach issues so far and will probably increase the program when I return. I am not surprised by your absent stomach issues. Your GI sensitivity would have to be rather extreme for any reaction or distress at your current treatment dosages; they are comparatively very low by standards. I would rather be home when I experiment with quantities.
I first noticed two Peyronie’s disease scars with the following description:
Coming from the base on the top of the shaft there was a cord like a piano wire about an eighth inch wide and very taut and hard. (like a piano wire taut) This wire connected to scar # 1
Scar #1. Proceeding up the (wire) there was a round, smooth, pea sized lump, like a dome. It was hard like a pencil eraser. This lump was causing me a dull ache when the peyronie’s disease first started or was noticed around 6/1/17. Vivid and specific imagery; good. This will make a very good reference image for comparison later in your treatment. Please be sure to write this down in your notes for later comparison. Also a good idea to draw a life-size picture of the pea sized lump and how the piano wire is connected to it; add as many details as you can about this structure.
Scar # 2 Moving up the shaft there is a .25 ” section of (wire) which then connects to a .5″ x 2″ scar . Are you sure this scar does not measure 3/8”X2-1/16”? I am serious. I really appreciate and like the fact that you are referring to precise and detailed measurements to work with, but I must question how accurately you are measuring these scars or if you are only making estimations of these different sizes. I must ask if your scars are actually an exact .5″ X 2″, or if you are just using general numbers based on guesses? Better that you slow down and get a highly detailed and accurate measurement that is not just an approximation. The more accurate your measurements now the more accurate your comparison will be later when you are trying to see if you are making progress with your Peyronie’s disease. This scar was shaped like a three section peanut Nice description. I can see it. that extends to under the glands. It was somewhat smooth with some surface irregularities like the top section of chocolate candy bar but with no remarkable features that could be remembered. The edges of the peanut shape were well defined and hard like one of those flat wooden spoons that come with ice cream in a cup. Vivid imagery again. This image will be useful because it is easily relatable. As your treatment progresses and hopefully there is more tissue change (reduction) you will be able to make a clear and accurate comparison of the wooden spoon image with whatever develops or occurs later. Great job. This whole interior of scar was also about as hard a pencil eraser. The scar extends to under the glands and I cannot identify a definitive end to it. Make notes to this effect, that the ends of the scar disappears. I had one stubborn scar when I was treating my own Peyronie’s disease that just tapered down and disappeared on one side; it didn’t seem to have an edge, it just disappeared. Over time this tapered and faded area became larger and larger as the scar disappeared. I only knew this because I made detailed notes about everything. Pay attention to edges and corners of the scar also, since these will also participate in the structural changes that should occur over time. Often, but not always, edges change before the mass of flat tissue changes. You have those small note pads to record your dosages that are given with your product orders, and these have been laid out so that you can make small drawings of the scars – make life size sketches with notes/arrows to indicate all the little odd findings you notice – like an area that just fades away.
After 4 weeks on the large plan I am staring to notice some definite changes:
The (piano wire at the base) is not as taut, It would be wonderful if you had a better way to delineate or quantify the word “taut” – going from “taut” to “not as taut” is not an effective or ideal way to note these changes. Can you answer the questions, Taut like what? Taut as a —–? and now seems to have separated into two separate, thinner and much more flexible strings. Now we are getting there. But still you have the problem of delineating “flexible strings.” When I read that phrase I really do not understand what you mean, and frankly neither do you. There must be a thousand different ways to interpret what a flexible string feels like, so for the purpose of treating Peyronie’s disease it is really a useless word image to use. It is like saying something is huge; what does that really mean? 100 different people have 100 different images of something that is huge. But when you say it is hard like a pencil eraser, or it is “slightly bumpy like the small loops of cloth on a towel,” or that it “feels like the round edge of the extension cord to my desk lamp,” those are real, they are reliable, and you can use that metric next month with confidence to make a comparison. So, where have you encountered strings as flexible as these you now have? What do these flexible strings remind you of? What else is stringy like these strings? Be more specific and more creative in your imagery. Don’t be lazy; give it some time and effort. They can be separated right down the center of what was the thicker Wire. Is this significant? Sure. Any change that is a reduction and separation, or a progression going from a smooth hard surface or edge to a rougher surface or edge is significant because it is progress. Is this more similar to normal anatomy? Normal penis anatomy to the layperson should basically feel like a non-descript homogenous mass of tissue in which everything is fundamentally soft and ill-defined; not much really stands out because it all feels so similar. Try this: Without contracting or tensing up your left arm (keep your arm relaxed), feel the mass of tissue of your upper arm near your arm pit (the soft and flabby triceps muscle) with the fingertips of your right hand. Or, keep the neck relaxed and feel deeply into the flabby and soft jowls above your Adam’s apple. You should feel a lot of different “stuff” in the neck but not much should stand out. Same with the penis. There are a lot of different structures and tissues in the penis, but the layperson should not be able to notice or identify much of it because of it all being so similar and homogenous in nature.
Scar # 1.
The dome shaped scar is still the same shape and density but now has a single small bump in the middle. This bump is like the bump on a pickle. If you are indeed making tissue changes, this small pickle bump could have appeared because other tissue around it has been reduced. Sometimes new features become noticeable only because other tissue surrounding them begin to retreat or reduce; like the nuts and fruit that appear on the surface as the ice cream melts. This scar can be wiggled back and forth from its position more readily than before. Yes, that is exactly the kind of tissue change that happens as a scar begins to fall apart; things get “looser.” Sounds like the area is becoming less dense (a good thing) because it is being held down by less fibrous tissue.
Scar #2 The cord or wire connecting the two scars seems softer, but has not separated like the cord at the base. I like that you are looking, aware and making comparisons. Be evaluating everything you can you are like Sherlock Holmes looking for clues and noticing whatever happens to be in front of him. Every case of Peyronie’s disease is different in small and large ways, so you might have something going on that is unique that I cannot anticipate or guide you. If you keep great notes you can guide yourself.
The “triple peanut shaped scar” has now developed 3 bumps, again similar to pickle bumps on the top third of the scar. The overall scar has seemed to narrow by an eighth inch but this seems to vary during the day depending on when I check. Great. My scars were wildly variable over the course of a day or two. Others have noticed this about their own scars as well; this is a hallmark of discovery and importance to Peyronie’s disease research made by PDI over the years that I think will prove to be a very significant and new area of study and research for the study of Peyronie’s disease. I say this because scar variability is a common, well-documented and irrefutable finding that is well-known amongst PDI men who look for it – but is unknown in the standard medical community. In their offices MDs just do not have time or interest to make note of these small tissue changes, so no one but us guys who follow the PDI notes know about these kinds of micro-changes. This is a finding and discovery of PDI that has not yet become public knowledge. If you read my book “Peyronie’s Disease Handbook” (written in 2006) you will find an extensive description and commentary about my own scar size, shape, density and surface feature variability and how I used it to hone down and improve my early treatment efforts. These small tissue changes are the basis of the urgency for men to know about the size, shape, density and surface features of the PD scar tissue. Successful treatment hinges on monitoring for these scar features to change – but you first have to know what they are from the beginning. The “wooden spoon” edges now does not have such a defined or hard edge and has become somewhat rubbery on the left side. By this I mean I can wiggle the edge with a fingernail. The density of the center of the scar is about the same. Monitor and note whatever you find, and compare over time as you increase your dosages.
Another question relates to dull pain that is related to my Peyronie’s disease. I experienced the dull pain early on especially while sitting or driving. Always while flaccid. It eventually went away .With these latest changes, I have started to notice the dull pain again, and for the first time had a slight pain while erect. Is this normal during the healing process? WOW. You are really on top of it, JGXXXX. Another PDI clinical research discovery was the importance of the deep dull ache (DDA) relative to changes in the PD scar tissue. This concept evolved out of my own early experiences with the DDA as my scar was changing – going from good to bad, or bad to good – it did not seem to matter. I initially thought that the pain had to be associated with a bad situation – like getting cut. But with Peyronie’s disease it seems that any change that the scar makes (PD getting better or worse) is often accompanied by the DDA. This awareness that shaft pain can be felt when the scar gets worse of better was a pivotal idea that was the starting point for the development of the PDI Gentle Manual Stretching Technique DVD that has proven to be so effective with so many men. You might want to look that up. I look forward to hearing from you as to these questions, and will contact you when I get home for recommendations on upping my dosages. I will answer your questions, but you already have in your hands the basic ideas and information for how to increase your dosages. I suggest you first review the notes that were sent to you with your initial order. Then, if you still need guidance send me your question.
If you are making these kind of early changes in your Peyronie’s disease at a relatively low dosage, frankly, it is my opinion there is not a huge urgency to rack up your dosages; you can do it, you can always increase you intake of something or another. It is your call since I am not your doctor and I cannot tell you what to do, but I suggest you don’t go crazy with the treatment increases because you assume it will make your improvement go faster and better. If a plan is not working (based on lack of changes to the size, shape, density or surface features of the PD scar), increase your dosages. But when a plan is beginning to work, be wary of making radical changes because you can upset the apple cart by doing too much. Go very slowly and carefully when modifying a plan that is already winning the race. Any changes or increases should be such that the basic plan format is not radically modified. I only suggest aggressive and consistent dosage changes every 7-10 days if no improvement is noted. TRH
So there you have it. This is a very instructive email exchange between JGXXXXXX and me. I really hope the message gets across that you simply have to keep your focus on how the fibrous tissue is responding to your therapy. If you are approaching your treatment plan in any other way, you are playing the foolish game of hoping and guessing that something good will eventually happen to you. With this PDI and DCI treatment concept you will not have to hope, you will know and you will be in control of your treatment. You will feel confident and less stressed about your Peyronie’s disease – or Dupuytren contracture – for the first time in a long while. Wouldn’t that be nice for a change, eh?
As a reminder from the first part of the newsletter:
- Quercetin/Bromelain is on back-order until December and is being replaced temporarily by Quercetin.
- Scars-Adhesions homeopathic drops can freeze and break during very cold weather, so order some extra bottles now before the cold weather sets in. Scar Free homeopathic drops will not freeze and can be shipped all year long.
- PDI/DCI office will be closed for Thanksgiving holiday week. Please place your orders a little earlier to avoid running out in the latter part of November.
See you next month. Stay in touch and send your treatment questions to me so I can give you some ideas to work with. Stay focused to your plan and be successful. Please send any questions you have for me to answer at email@example.com