July 1, 2017 PDI Newsletter
Greetings to all PDI and DCI Warriors,
Welcome to this July 2017 Peyronie’s Disease Institute newsletter. This month we have a nice variety of helpful information that should help everyone do a little bit better with their Dupuytren’s contracture and Peyronie’s disease treatment programs.
Again we will again use the popular format of presenting a few recent emails in which I have blended my email response directly into an original email − like two emails in one. This is how I often reply to people’s questions since it is a faster and more accurate way to communicate. These were selected out of the pile because of the variety of topics in these emails that apply to both Dupuytren’s contracture and Peyronie’s disease treatment.
For those of you who are new to our monthly newsletters, please simply apply the ideas expressed here about Alternative Medicine treatment and dosage to what you are doing for your DC or PD. Since Dupuytren’s contracture and Peyronie’s disease are so similar in many ways, treatment is also similar; what can be done for one problem can also be done for the other.
Read this series of combined emails like the back-and-forth of two people talking while one occasionally interrupts the other to make an important point or answer a question. To understand the flow of the conversation, keep in mind that the text in black is from the person asking the questions and the text in red is from me.
This first email is a happy one that is about a topic I hope everyone who reads this newsletter will eventually contemplate – recovery, and how to treat at the end of treatment.
See below for comments…
Sent: Thursday, June 1, 2017 9:41 PM
To: Theodore Herazy <firstname.lastname@example.org>
Subject: Question about care as progress made
This probably is the last question I will have to ask you since I believe I am at the end of my care. My hands are back to normal now that the last of the nodule on the left is almost gone, finally, with full movement of all fingers. Good for you. I know you have worked hard on your Dupuytren’s contracture. I wish everyone had your attitude about recovery and work ethic. To say I am relieved and happy is an understatement.
My husband says it doesn’t make sense to continue to spend money on a problem that is gone, and I guess he is right. But I am afraid that my DC might come back once I stop taking my vitamins and enzymes, so what do you think I should do with my plan? This is always a tough call for people when they stop treatment. In all the years I have done this work with Dupuytren’s contracture, and Peyronie’s disease, I have never had anyone contact me to tell me that there problem has returned after stopping Alt Med treatment; whatever level of improvement is made seems to continue. Since no surgical cutting is done with our natural Alt Med treatment there is no stimulus to the tissue for recurrence of DC that happens after surgery. It seems that Alt Med is a better way to reach recovery because recurrence has never been an issue in all these years. For this reason I suggest you do not worry about your hand problem recurring and that you stop your Alt Med treatment in a way that makes you feel comfortable and makes sense to you. Keep on it like it is, reduce it a little, or just stop cold turkey? This is unchartered territory; your opinion is as good as mine. Should I stay on at least a part of it for the rest of my life, I would hate for the DC to come back. I was thinking about continuing a few of the therapies for at least a few months to make sure that the nodules do not come back. What do you think? Probably more people continue for several months on a reduced treatment schedule that is based on a modified treatment plan that brought them to recovery, than those who stay on their full program. Do what feels right to you.
Thanks for all your help over these past 14 months. If you need me to write a testimonial please let me know. Sure, I would appreciate getting your full testimonial; this should include some history of how your DC started, what your medical doctor did for your problem, how your condition was treated before you found DCI, what kind of DCI plan you used, how your recovery proceeded, and what your hand is like at the end of your self-care. I do not get enough of these testimonials compared to the number of people who say they are going to write one and never do. Perhaps they are just so relieved to be rid of their problem that they do not want to look back on it any more. Regardless, I am happy for your recover and hope to get your testimonial. TRH
This next email is from BAXXXXXX who is a 19-year old college student with Peyronie’s disease. His email gives me the opportunity to express a few thoughts that anyone with PD or DC should appreciate:
See below for comments…
Sent: Monday, May 8, 2017 3:50 PM
To: Theodore Herazy <email@example.com>
Subject: Re: PDI phone time
Hi Dr. Herazy,
Thanks for the phone call a few days ago, it really gave me a clear path to take starting now.
It’s been three days that I’ve been taking these medications/going through these therapies and I can already tell there is starting to be some improvement on my scars. This is rather unlikely; as exciting as that sounds, I doubt it. It would be very unlikely to have true and lasting improvement of your Peyronie’s disease after only three days of treatment. At the extreme you would be doing fantastically well to see clear and objective improvement in 3-4 weeks. I have seen some people who hit their dosages very aggressively and saw changes in their PD scar tissue after the first 4-6 weeks, but that is uncommon; most people need 2-3 months of Alt Med self-treatment to see progress. Please do not be so desperate for recovery that you see things that are not there. You do not want to be setting yourself up for disappointment and frustration later.
My scars run identical on both sides of the bottom of my shaft and there are two bands on the left side. When I lay down on my stomach, I can feel with my fingers like a thin river-like feel, except with no water. I’m not sure if it’s the scars or a ligament or what. But it’s starting to become a little bit more full. I will fully evaluate after the 7 day mark though. Be sure to carefully evaluate size, shape, density (how firm to a gently two-finger pincher squeeze, and surface features (how slick, smooth, bumpy, polished, irregular) does the surface of each scar feel. Your answers (descriptions) should not be adjectives = hard, very hard, soft, not too soft, really smooth, a little bumpy. These are worthless. Saying something is “really hard” is meaningless because it is so subjective; it means different things to different people. That’s like saying “the strawberries are really sweet.” How sweet is sweet? How could you make an evaluation or comparison to something that is “seeet?” How would that tell anyone anything meaningful or objectively accurate? Scar descriptions are difficult to quantify because they defy measurement. For this reason you need to use similes that are uniquely meaningful to make them as objective as possible. When you compare the scar density and surface features to another known object that will not change over time, you will have something you can use as a constant comparison that will not change and you will be sure of it later when your scars change: Firm like a pencil eraser. Mushy like an overcooked lima bean. Soft like the tip of my nose. Soft like my ear lobe. Slick like a wet bar of soap. Rough like a bath towel, bumpy like a concrete sidewalk, rough like an orange rind, rough like an avocado skin, smooth like an avocado skin (it is both if you look and feel closely), slightly dull feeling like an egg shell, slightly bumpy like an orange rind, polished like a mirror, dense like the front edge of my car seat, hard like the rubber part of my steering wheel, smooth like my leather gloves, etc. All of these do not change, they are accurate and objective to the person who develops these personal comparisons, and they can be used with high confidence as a point of comparison for later evaluations. Get the point? Also, it is very helpful to draw those scars out on paper to scale, and make detailed notes on that paper that describes areas of softness, roundness of edges, anything unusual you notice about each scar, etc. These are important things to do since this detailed information is the basis of how you will determine when to stop increasing your therapies. If you do not do it this way you will be forced to guess later and try to convince yourself that you are accurately remembering a feeling of what the scars were like a month ago or a few days ago. Memory is not as good as the method I describe here. You want to be the world’s leading authority on YOUR Peyronie’s disease because you are in charge of making important decisions about treatment dosages.
I also just received the l-arginine with a bunch of neprinol. I added both to my current plan (enzymes, and internal therapies).
I’m just wondering. Out of 10 people who go through these plans, how many of them come out with improvement or a complete reversal or prevention of a worsened Peyronie’s? I get 8-10 reports of success (moderate to marked) for every one report of failure. Of those men who report failure, most do not have the sense to evaluate the scars the way I describe above or they are goofing around with their plans when it is convenient or if they happen to remember to take their supplements. Some try to cherry-pick only the best of the best supplements and take only those in an effort to save money – which winds up being a costly mistake because narrowly defined plans cannot generate synergy to support the healing process. After all these years of doing this work I find I am still surprised that there are people who are unfocused, careless and casual about their Peyronie’s disease treatment. This is serious business with a serious outcome, and failure has terrible consequences I want everyone to avoid. Stay focused. TRH
Hope all is well, thanks.
Sent from my iPhone
The next series of several emails is from NBXXXXXX who is just getting started with care for his Peyronie’s disease. He asks many good questions that are important for Dupuytren’s contracture and Peyronie’s disease treatment.
Sent: Monday, May 8, 2017 1:23 PM
Subject: NBXXXXXXXXX PDI – scar location instructions
Hello Dr. Herazy,
Thank you for your prompt attention to my request last Friday. I really appreciate your thoughtfulness.
I haven’t had a chance to look at the information regarding scar location you sent to me, but I will do so shortly.
Prior to finding your website I purchased some supplements on the Internet based on some information I found from people using natural supplements for PD treatment.
I am including some photos of the supplements I got before learning about PDI, as I would like to know if I may incorporate these other supplements into the treatment plan that I have purchased from you.
Thank you again for your kind attention.
From: Theodore Herazy <firstname.lastname@example.org>
Sent: Mon, May 8, 2017 3:37 pm
Subject: RE: NBXXXXXXXXX Re: PDI – scar location instructions
Whether to use these other supplements you got before you found the PDI site all comes down to their efficacy (Do they help you to get rid of your Peyronie’s disease?), which is a reflection of their quality and formulation. Since I have no experience with these products I can’t say anything about them; I only know and have confidence with what I have worked with for 16 years. You can certainly use these products you got earlier, although it does seem like a bit of a risk to be using products you cannot be sure about to treat a problem as important as Peyronie’s disease.
Ever read those news reports about vitamin companies putting out products that do not contain hardly any or none of what the label reports is inside? Totally worthless because they do not contain what they are supposed to contain? That is a lot more common than you would imagine. Nutritional and vitamin supplements are a wide open industry, with very little real control. This is why it is important to use only products from old, established and highly reputable companies (like those we use). Be careful.
From: Theodore Herazy <email@example.com>
Sent: Mon, May 29, 2017 8:43 am
Subject: RE: NBXXXXXXXXX (Costa Rica) supplement questions
Please see below for comments inserted into your email…
Sent: Sunday, May 28, 2017 11:19 PM
Subject: NBXXXXXXX (Costa Rica) supplement questions
Hello Dr. Herazy,
I finally started my large alternative Peyronie’s disease treatment plan a few days ago. I have a couple of questions regarding the supplements.
Does it make sense for me to be taking Neprinol AFD and Inflamazyme at the same time? Yes, that is how it is done. No need to separate them to a different time schedule. It is common to use several enzyme products simultaneously; 2-3-4 different enzyme products at the same time is a strategy that is often used. They appear to be similar products. Yes and no. A Volkswagen and a Cadillac are the same in that they are both cars, yet they are vastly different. Even though these two enzyme products contain several similar enzymes, the actual formulation, structure, origin and density of the enzymes in these two products is different. I would say the same for two companies that both produce a straight serrapeptase product. The basic idea that they are both serrapeptase is true, but even though they are serrapeptase products they will be different on many levels. My son-in-law says he likes a certain brand of milk because he can taste the difference compared to other brands of milk. Perhaps this is due to different grass and grain, different breed of cows, different environments, many different factors that make one taste different than the others – although they are all milk. It is this difference with the different formulations of enzyme products that we are trying to capitalize on from the standpoint of trying to find something that will work best for you. Go to the grocery store and buy two bags of plain old fashioned potato chips. Will they be the same or taste the same? Not remotely. The potatoes will come from different parts of the country, perhaps made from a different variety of potato, fried in a different kind and quality of oil, different salt, fried for a different length of time, processed differently, different preservatives or no preservatives, even different packaging, etc. All this makes them stimulate your taste buds in a wholly different way. Yet they are all potato chips; they are the same yet they are very different. I think the same is true for the way different brands of serrapeptase or nattokinase work in the body. I have been taking both of them at the same time between meals along with MSM + Vitamin C (Fundamental Sulfur). Is this the best way to take them, or is it better to take them separately at different times of the day? You are taking them correctly: between meals and at the same time.
How many Neprinol and how many Inflamazyme should I be taking my first week? Please read the instructions that were sent with your original order. Basically, take them at the label starting dosage, but for the first 2-3 rounds (meaning that 7-10 day interval cycles) you can increase the dosages slightly just to get you up more quickly into the therapeutic range. Because I had a healthy and good functioning gut that generally gave me no trouble, with no history of digestive disease, I started at 6/day (meaning 2/2/2) and went up from there. Much later I learned about emphasizing the dosages later in the day, so I would have better started with something like a 1/2/3 pattern.
Can the Acetyl L-Carnitine be taken with meals or is it better to be taken on an empty stomach with the enzymes and fundamental sulfur? ALC would be better taken with meals.
Generally speaking, I’m wondering if there’s a limit as to how many different products one can take simultaneously. When you go to a nice restaurant and have a big meal the variety of nutrients is tremendous – the body can handle a variety of nutrients taken at the same time. It seems I’m taking three or four different supplements with meals and three or four between meals. Does that sound right? Fine. Believe me your dosages are not anywhere near what many others are doing. They can and probably should go higher to get into what we call the therapeutic dosages.
I haven’t begun to use the Ultrasound device yet. I plan to try it this evening.
I have a bottle of Gotu Kola that I purchased a few months ago. Apparently some people had positive results using this herb. Is there any reason why I can’t incorporate it into my treatment? I have not included gotu kola in our program because I have not found any scientific basis for it or evidence it has merited any research activity from the medical community. When your dosages of other PDI-related nutrients increases over time you will be taking a larger and larger number of “pills” daily, and sometime along the way you will eventually have to decide the wisdom of simply taking any extraneous; many days I looked down at a handful of pills I was popping 6X per day (3 times with meals and 3 times between) and shook my head at the number going down my gut.
I also have some organic castor oil that I purchased before I found your website. Do you have any opinion about using it externally? Same as gotu kola. TRH Again, I have read many positive testimonials from people who have used it.
Thanks for your time,
From: Theodore Herazy <firstname.lastname@example.org>
Sent: Mon, May 29, 2017 4:55 pm
Subject: RE: NBXXXXXXX (Costa Rica) ultrasound questions
Please see below for comments to your email…
Sent: Monday, May 29, 2017 1:35 PM
Subject: NBXXXXXXXXXX (Costa Rica) ultrasound questions
Hello Dr. Herazy,
Thank you for your prompt reply. I appreciate the thoroughness with which you answered my questions.
My next question is regarding the ultrasound device. I used it last night for the first time with the DMSO gel. I expected the device to make some noise or to produce some sensation upon contact with the skin. I couldn’t hear or feel anything. At first I wasn’t even sure if it was working. But the lights were on and occasionally there was a beeping noise.
Is this normal? I expected it to vibrate slightly like a sonic toothbrush. I don’t think the unit is defective, but I’m surprised that I don’t feel any sensation at all when I use it. Keep in mind that you cannot hear the ultrasound machine when the waves are being emitted since the frequency is so high that it cannot be heard. The range of normal human hearing ability is commonly at 20 to 20,000 Hz, with considerable variation between individuals. Bats emit a sound for their sonar navigation that is approximately 40,000 to 100,000 Hz frequency; no human can hear this sound range. The ultrasound machine you bought produces a sound of 3 million Hz frequency, so it is no wonder it cannot be heard.
The sound head surface will not get hot, even warm, when it operates. The heat that you will detect when using US therapy will be felt only slightly on your skin surface where the sound enters the tissue, but the greatest heat generation is below the surface of the skin where you do not have heat receptors. If you keep moving the sound head as you have instructed to do you will feel very little heat. If you foolishly slow down the movement of the sound heat within a few seconds you will feel not only a sudden buildup of heat but also intensely dull pain as the nerve endings are stimulated by the ultrasound energy.
It is not likely the unit does not work, although anything is possible. There is really only one sure way to know if your unit is working or not. There is a very simple and obvious to actually view if your US machine is operating correctly. You will be able to see water movement and vaporization created by the device when it is operating correctly.
Please follow this simple procedure to test the unit and let me know what happens:
1. Have a small cup of water near you.
2. Plug your US unit into a power source and turn it on high.
3. Turn the sound head so that it faces upward, toward the ceiling.
4. Quickly place a few drops of water on the face of the sound head.
5. If the unit is working you will see the water bouncing slightly and shaking slightly, and perhaps creating a mist in the air due to vaporization. If the water bounces and moves, the US unit is working; if the water does not move the unit is not working.
6. Turn the power off.
If you do not see water movement when conducting this test, please email back your results.
I’m wondering if using the CP serum/ Vitamin E oil / DMSO gel combination three times a day is appropriate at the beginning of treatment or whether it’s excessive. That might be excessive for you, or perhaps not – time will tell. Using the DMSO trio 3/day is OK as long as your tissue does not get overly dry; if your tissue gets dry, red and itchy then simply reduce usage back to 2/day. As the DMSO instructions you were given tell you, the frequency of use depends on how your tissue reacts to the DMSO and how much time you have during the day to apply it.
And I’m also wondering if it’s wise to take some enzymes and fundamental sulfur upon arising in the morning before having breakfast. Or would you recommend waiting until after breakfast to start the enzymes? There is not much difference between early AM or later AM intake; between meals is between meals, that is the issue. You want your stomach empty when you take your systemic enzymes so there is no chance or opportunity for them to be used to digest your food. If they are put to use to digest food they will not be available to enter your blood stream and travel around the body to be used to break down and remove foreign fibrous tissue.
Thank you again for your support,
This is the conclusion of this discussion newsletter and my discussions with BAXXXXXX and with NBXXXXXX. I hope you all were able to benefit from this exchange of information. In particular I hope everyone noticed how both of these men are trying hard to understand what he is doing and how he is trying very hard to do things correctly to get great results. I have worked with many men like BAXXXXXX and NBXXXXXX and they usually do very well with their self-treatment because they are not casual about their recovery. This is serious business to them, and I appreciate that when I see it. I predict good things for both of them.
Let me know if you have any questions about what you are doing, please send an email at email@example.com
Stay focused to your treatment and see you next month. TRH