June 1, 2017 PDI Newsletter
Greetings to all PDI & DCI Warriors,
Welcome to the June 2017 PD Institute newsletter.
Once again this month we use the familiar format of presenting a series of emails between one of your PD brothers and me. Even though this discussion presents Peyronie’s disease information, most of the suggestions and ideas are also important for Dupuytren’s contracture treatment; for those of you interested only in DC, simply apply this information to your Dupuytren’s contracture treatment. What makes this series important is that it discusses dosages, diversity, dietary changes, and the importance of knowing everything you can about the size, shape, density and surface features of the fibrous material that is the basis of your health concern.
As you read these emails between ISXXXXX and me, notice several important personal characteristics he presents. These are the common qualities I notice in people who are successful in changing their PD and DC fibrous tissue:
- They are not afraid to ask questions; they ask good questions that are fundamental to their recovery. They tell me exactly what is going on, what they are doing and taking, so I know how to make my suggestions
- They work diligently at their treatment; they are not casual and laid back about their recover. This is serious business to them. They take active responsibility for their progress.
- They create and refer back to good records about their physical condition and what is in their plan at each step.
If this does not describe how you are conducting your own self-treatment, it is time to change.
Read these emails as though two people are talking and one interrupts the other to make an important point. To understand the flow of the conversation just keep in mind that the text in black is ISXXXXX and the text in red is from me.
From: Theodore Herazy <firstname.lastname@example.org>
Sent: Tuesday, April 25, 2017 4:20 PM
Subject: RE: How to get more improvement
Please see below for comments placed in your email…
Sent: Monday, April 24, 2017 10:36 AM
Subject: How to get more improvement
It’s been at least 6 months since we talked about my Peyronie’s disease. I’ve been pretty good about following that large plan with the tweaks and changes we discussed, and I can say they made my plan work better. Again I need a little help.
First things first. I have hit a brick wall on the stretching. After getting some really nice changes in the curve and better erections after starting the stretching work not much straightening is happening lately and I can’t find a way to get back the deep dull ache feeling that was easy to find before. What gives, is it time to stop stretching? I experimented by changing the angles I stretch specifically with the localized stretch since it was the most effective technique in the past, but now that is not even working. Any advice? Angles are critical, but also important are torque or rotation patterns that can be added to this kind of therapy work. Play with small changes in the angles, as well as including torque or rotation patterns as you lightly take up the slack on the deeper tissue levels of the shaft. By including the additional element of torque or rotation into the gentle stretching technique it is possible to find completely new ways to gently traction the tissue that will cause even stronger dull sensations. Any variation of your original simple technique that generates a dull ache indicates there is more tissue release response being allowed. Continue experimenting. Over time, you could eventually exhaust all possible ways to stretch and release that tunica albuginea of the shaft. Right now you are just starting; it is way too early to assume you have done it all and there is no more improvement you can create.
Here’s what I am taking now so you can tell me what you think needs changing that would be great.
Neprinol 2/5/7 between meals
Serretia 1/2/3 between meals
Bromelain 1/2/4 between meals
Vitamin E 1/1/0 with food
Ascorbplex vitamin C 2/1/1 with food
MSM + C 4/2/2 with meals
L-arginine 2/2/2 with food
PABA 3/3/3 with food
Acetyl-L-carnitine 2/2/2 between meals
CoQ10 1/1/0 with food
Quercetin/Bromelain 1/1/1 between meals
DMSO, Super CP and E once a day, sometimes twice
Kegels and groin massage once a day
Nei gong exercise twice daily
Hot pack application once daily
Ultrasound three times a week
Manual stretching one to two times daily, 20 minutes each
My stomach is so sensitive I finally realized I can’t make dosage changes every 7 to 10 days, but I do better by going slower with increases every 14 to 21 days. As long as your gut is happy, and you are not ignoring any bad signs (blood in the stool, abdominal pain, weight loss, change in bowel habits, itching anywhere, your skin is the usual color for you, or any weird thing that starts to happen that you cannot easily explain, etc.) then you are probably good doing good at these dosages. Ignoring warning signs and symptoms is dumb, and you want to be smart about following any dosage level. You want to be safe since you have been on these higher doses for a few months at least. In almost 16 years of doing this work with these high quality supplements I have never received a report about any kind of adverse reaction or problematic side effect from anyone following our treatment protocol the way it is explained. But, you must realize that it is unchartered water for people to be using these higher dosages. What keeps you safe is watching for strange or unusual reactions, taking a break from all internal therapies for 2-4 days every 45-60 days, and keeping in touch with your personal treating doctor. So please report anything unusual to your MD who is following you. This longer time between increases has slowed me down but not stopped me from making progress with the scars. The big scar went from 3.4 CM to 2.1 CM at its greatest length, and it’s half the width in the middle area, and instead of feeling firm like a dried raisin it’s now rubbery and soft like jello. Last month my major scar on the bottom/base went from feeling smooth and slippery to what I call slight bumpiness like a lemon rind. This surface change will likely continue as your scars break down or fragments. Look for the slight bumpiness to become coarser over time. Some people report they can feel a kind of stringiness or loose fiber feeling as the surface dissolves and is removed. Again: if you do not examine the fibrous masses you will never notice these changes. I must have finally reached my dosage critical mass for what I need to get those changes going, but now I have not had much new change lately for the past month so I wonder what I should do? All of your observations are typical for early scar changes, especially the surface changes. It is great you are paying attention to those small details and looking for all those little things that provide the information for comparison. Keep it up. If you did not take the time to measure the scar or become aware of the raisin firmness you would not know for a fact that those things were different later. Because you know your scar is diminishing in this way you have confidence that things are going in the right direction; this keeps you from having to guess if your treatment is working, or worse thing of all: that you would change a plan that was actually working but you did not know it was working because you were not keep a close eye on the scar structure. At about this time as the scar was making those changes the narrow bottleneck of my shaft got wider where it was thin before so it is a relief to have it definintely getting decent girth back there in the top half, Congratulations on getting some your lost size back. Nice work. That makes me feel good to know you are progressing against this rotten problem. but what can I do to get this going faster and make more this happen? You must be careful about trying to make slow progress go faster. Some people take a good plan that is working well – but perhaps too slow for their liking – and they change the plan so much that it stops working or causes a lot of digestive problems. So, first decide if it might not be smarter to just continue as you are and learn to be satisfied with making your current rate of progress. To make the safest kind of changes in your kind of plan would be to do better or more with the dietary and Nei Gong part of your treatment plan. Those two areas are much safer to change, as long as you are trying to be more disciplined and careful about what you are doing. But if you do want to make some supplement changes to push things along, I suggest you might consider increasing your PABA, L-arginine or MSM a bit; if your gut is doing well you might want to consider Fibrozym as an addition, or simply bumping up slightly any of the enzymes you are now using. Just go slow and do not make any major revisions or overhaul of a plan that is fundamentally working for you. What worries me is that as my scars are reducing and getting softer I think I can sometimes feel small raised areas on the scar that are changing the most. Actually that is a good sign. These small raised areas come up because of tissue reduction in other areas of the scar; they are not raised, but other areas have gone down. Certain parts and layers of scar material respond at different rates. As a result, as more and more tissue reduction occurs a few isolated layers or pockets of fibrous material that are slower to respond are left behind that appear as a small bump or structure that is new to you. It is like a melting glacier; new ridges and features appear as more and more ice disappears. Some days these new tiny points are easier to find than others and somedays I can’t seem to find them. It’s like they are changing every few days. Is that possible? Yes, I run into this observation often, and had it happened to me when I was treating my own PD a hundred years ago. Why would these changes come and go so much? The answer is probably a lot closer than you realize, you just have not seen the connection. Although there might be other reasons for these fast changes in the scar that come and go, back and forth every few days, there is one explanation that makes sense to me. My theory is that the pattern you describe is caused by dietary factors. What you eat has a tendency to shift the pH (the acid-base balance) of the blood and internal tissue slightly. One day you eat certain food that makes your pH go in one direction slightly, and the scar changes in response because the internal environment changed, and the next day you eat in a different way to make your pH change in the opposite direction, and your scar again changes because the internal environment again changed. This pH change causes the scar to fade in and out like we both know happens when you are closely studying the structure of each scar the way PDI wants you to do. This is why I think you should reread the “Peyronie’s Disease Handbook,” chapter 5, “Diet and PD.” Don’t make any other treatment changes while you strictly avoid all cold food and dairy for a week. Any favorable change in the scar tissue (softer, smaller, less well defined, more difficult to locate) at this time would indicate the importance of dietary modification in your case. Since you did not mention dietary restrictions or food changes I suspect you might not be paying much attention to this part of your treatment plan. Most people avoid changing the way they eat if they can avoid it, is this true with you?
How high can I go with my dosages now that things are starting to happen for me? As I mentioned before, these short-term elevated dosages are unchartered territory. I stress that you watch your body reactions closely as you increase dosage each time, although I have not received any report of adverse reactions over these many years. You do not want to be the first one with a bad reaction to this therapy, so be on the look out. However, now that you are seeing clear evidence of fibrous scar reduction it should not be necessary to increase your dosages a great amount past your current levels – small tweaks are usually all that is necessary from this point forward. Is it necessary to add more enzymes into my plan to shake things up a bit? No, it is not necessary since you report you are making objective changes in the scar. It is optional. It is your decision to add to your plan if you feel a sense of urgency to do more. I have been on this plan for 6+ months non-stop and finally my MD has stopped talking about surgery because he can tell the scars are smaller. But how long does this continue? When a person is using a higher dose such as you are, I suggest taking an internal therapy (especially the enzyme group) break or vacation from internal therapy for 2-4 days every 4-6 weeks; just stop it cold and give your liver and kidneys a rest. Of course if you have a history of liver, kidney or lung problems or other serious health issues that are taxing your body’s immune response, or if your doctor advises you to take more frequent breaks from therapy, then that is what you should do. You should stop all therapy completely when you get to the point that you think you cannot make more progress; this is a tough personal decision only you can make, with assistance from your doctor. Some people say they are 50% better – or 20 or 95% better – when they stop making progress; they make all their progress and then they just stop progressing for reasons undetermined. I have no way to know or anticipate who will improve and by how much. Everyone has to go as far as he can. But don’t assume you have stopped making progress after just a few days of non-progress; I am talking about weeks or months of no-progress – you do not want to cut yourself off short just because you decide too quickly that you can not make more progress. Most people are grateful for whatever non-surgical progress they can make. I can tell you that I have worked with only a small percent who have worked hard and seriously with a large size plan and made no progress; most make enough progress that they have straightened out enough and regained enough sexual function that they can return to their normal life. They find they are (much) better than what they were and accept their limitations without the need for any surgery which would have risked everything. Am I taking longer than most men to get over Peyronie’s disease? No, you are about average and on course. But why are you comparing yourself to anyone else? You are creating a burden that serves no useful purpose and might hold you back because you, sir, are causing stress in your life that does not have to be. There might be guys who have done better and gone faster or farther than you, but so what? Why should you cry about that? Be grateful for what you have accomplished. What about the guys who have not done as well as you or gone as far as you in the same time? Don’t compare. Just do your best so you can do as much as possible for yourself. When that voice in your head says to stop, you will know it. It could be worse. What if Google never showed you the PDI website in the first place, and you had PD surgery instead that resulted in you needing a second surgery to have a prosthetic rubber pump-up bulb inserted in your shaft that left you totally numb and half the size you are now? TRH
Thanks. I appreciate your help.
From: Theodore Herazy <email@example.com>
Sent: Friday, April 28, 2017 12:46 PM
Subject: RE: How to get more improvement
Please see below for comments…
Sent: Thursday, April 27, 2017 10:08 PM
To: firstname.lastname@example.org Subject:
Re: How to get more improvement
Dear Dr. Herazy,
Thanks for the information.
I changed my stretching technique like you said to add smaller angles and even some torqueing when I stretch and things are definintely better because I can get those dull aches going again. But I am still concerned about the stretches. Maybe everything is going right and I just don’t know it. Now I have more in-line stretches and compound stretches to use that give me the deep dull ache, but not all the stretches I bring up an achiness. Am I doing something wrong? No matter what I do with some angled stretches nothing seems to work, so after a while I stop trying and I stay with the stretches that give me an ache response. Is that OK? Yes, that is OK, and that is exactly how to do it. Not all stretch techniques will work every time; one day one works, the next day it does not work, and the following day you need some other kind of stretch to provoke a deep dull ache. The dull ache tells you when you are accomplishing something; when the tissue is actually undergoing a minute amount of change which is the reason it aches a little. However, if you stretch too hard the tissue will defend itself by tensing up and resisting, preventing the minute stretching to occur so there will be no deep dull ache; this is why stretching too hard does not result in a dull ache – you just feel a pulling or the tugging and nothing else. Stretching too hard will not achieve a dull ache with any technique in any direction. Go easy, please. If you are still unsure of this point, please watch your stretching DVD again.
You got me about not doing much with the diet end of treatment. After reading that chapter again I changed the way I eat most of the time especially with the cold foods. I think I can notice the scars getting bigger and harder after I eat cold or dairy food so it is a good motivator to stay away from them. Good. Once you get out of the habit of drinking everything with ice in it, and going off dairy, it is really a simple thing to do.
Do you think I am at the upper limit of my dosages? Do some people use higher dosages than what I mentioned in that last email? Like I already have said, what difference does it make what other doses other people use? You need to figure out what it takes to make your scars smaller and softer. It is all about determining the best combinations of therapies and dosage levels that help your body remove those fibrous layers of tissue. Yes, some men go a lot higher than you, and some a lot lower, so what? Everybody is doing the best they can with what they have to deal with. You only get yourself confused and frustrated when using comparisons to determine how to manage your dosages. That is a completely wrong way to manage your dosages. If I said Joe used Neprinol X/X/X and he cured his Peyronie’s disease, does that mean it would help you? No. It worked for Joe because he figured it out for himself how his body responds. You need to mind your own store. Last time: Pay attention to the size, shape, density and surface features of your scar, and edge your treatment plan up slowly to see how each change affects your scars, keep good notes about everything you do, and you stand your best chance for overcoming your problem. What do you think is the most important therapy product I should take for me to emphasize in my plan? I read on a forum that PABA, acetyl-L-carnitine and enzymes like in Neprinol and Serretia are the most important, do you agree? Please do not tell me you are thinking about changing your plan just as things are working for you. Cherry-picking or isolating treatment to just a few things that someone thinks are the best therapies in the PDI treatment lineup works against the primary idea that makes the PDI treatment protocol work as well as it does. The key idea of the protocol is to use many different therapies at the same time to support your immune response so your body can overwhelm the PD scar tissue synergistically. The more you do, the harder you hit it, the stronger the effect and the better the results. You need a lot of different nutrients to help your body rid itself of the fibrous tissue, not the one or two you think are best. Neither of us knows enough to figure out the best single treatment for Peyronie’s disease – neither are the multi-billion dollar companies because they fail at it all the time. Most people would agree that water is the most important thing you can put into your body to sustain life, right? Well, if water is the most valuable thing to sustain life, how about if you only put water into your body and nothing else? You would last only week or two. You need a balanced diet with many kinds of nutrients to be healthy, just like your mother told you. And you need PABA, MSM, acetyl-L-carnitine, many different enzymes, L-arginine, vitamin E and C, and many other factors to help your body rid itself of this lousy PD scar material. Sorry, that is just the way it works. Maybe next week I will come up with a better idea and a simpler way of doing it, but for now I am following the best system I know. TRH
Thanks for your interest,
OK, that is all for this newsletter. Hope this helps many of you to improve your self-treatment. Please communicate with me and I will do my best to help you in any way I can. See you next month. TRH