September 1, 2017 PDI Newsletter
Greetings to all PDI and DCI Warriors,
Welcome to this September 2017 Peyronie’s Disease Institute newsletter.
Recently I have been communicating with RLXXXXXX about his Peyronie’s disease treatment. This gentleman, as you will soon see, is not afraid to ask important questions and is focused on his recovery. The emails between us are so numerous and the information to our general Peyronie’s disease and Dupuytren’s contracture audience, I have used a few of them for this months’ newsletter and another batch will be used in the October newsletter.
You will want to read this series of emails primarily because RLXXXXXXXX documents in great detail with interesting word-pictures several changes in his PD scar. It is very instructive to read how he has documented progress with his Peyronie’s disease in less than a month of self-treatment. This is a good series for everyone, even those with Dupuytren’s contracture, to read, study and compare.
I think his use of the PDI protocol is superb not because he is taking any high dosages of any special combinations of therapies, but because he is actually paying such close attention to the size, shape, density and surface features of his three scars. Because he is such a serious student of the physical features of his scar he is in a great position to notice changes just 3-4 weeks into his treatment schedule. So many people who say that their PD scar (or their DC nodule/cord) is not changing have no idea if this is true because they have never put in the effort to really study their fibrous tissue the way that RLXXXXXX has done. You will see he noticed his changes because he knows what is going on; he is the world’s leading authority on the size, shape, density and surface features of RLXXXXXX’s Peyronie’s disease scars.
If anyone would work as hard as RLXXXXXX, they would improve their Peyronie’s disease or Dupuytren’s contracture results. Don’t believe me? Try it.
For those of you who are new to our monthly newsletters, please simply apply the ideas expressed here about Alternative Medicine treatment and dosage to what you are doing for your Peyronie’s disease or Dupuytren’s contracture. Since PD and DC are so similar in many ways, treatment is also similar; what can be done for one problem can also be done for the other.
This format of presenting blended emails can be read like the back-and-forth of two people who are talking while one occasionally interrupts the other to make an important point or answer a question. To understand the flow of the conversation, keep in mind that the text in black is from RLXXXXX and the text in red is from me.
Because of the spam filters that we all use for our emails I had to edit the content for some of these emails. A few men when writing very naturally and appropriately used the word p_ _ _ s to discuss that part of their anatomy. On most spam filters just one use of the word p_ _ _ s is enough to cause this newsletter to be rejected to your spam folders. To avoid this problem, I substituted the word SHAFT for the word p_ _ _ s so that no one will have a problem receiving this issue of the newsletter.
Our emails get a little confusing in the last section toward the bottom, because RLXXXXXX started to respond to my emails the same way I responded to his email by inserting his own new comments into a previous email. A part of our email string is four responses deep, so the colors really help to know what is going on. He also quotes me and answers then answers those points I have made. Any confusion will be eased if you simply keep in mind that my words are in red and RLXXXXX’s words are black:
Sent: Thursday, July 6, 2017 3:57 PM
To: Theodore Herazy <email@example.com>
Subject: Re: Question – my case
Is it a good idea to add another enzyme to the treatment later for example Neprinol after 1-2 months? I read that you suggested to have 2 enzymes, but I’m not sure about if I’m on the large plan with 1 enzyme? Or it’s too early to even think about it?
Herazy <firstname.lastname@example.org> wrote:
How many enzymes to use in combination is a matter of personal preference based on how much time and effort you wish to experiment with different enzyme combinations. Some men use only one enzyme at a time and others try 2-3-4 at a time; most common is two enzyme products used at the same time. Neprinol is the most favorite product used as a primary enzyme source, with a 2nd enzyme source being the one that is experimented with in and out of a plan. I did not state that clearly, sorry. Here is what I mean: I see the enzyme portion (there is also the non-enzyme portion which is an entirely different subject) of many successful being used in an interesting general way. Here are several examples: Neprinol at a 8-16/day range + Bromelain 5000 at various dosages ranging from 4-12/day; Neprinol at a 8-16/day range + Inflamazyme at various dosages ranging from 6-12/day; Neprinol at a 8-16/day range + Serretia at various dosages ranging from 4-10/day; Neprinol at a 8-16/day range + Fibrozym at various dosages ranging from 4-12/day, etc. Experimentation with various combinations of different dosages of different therapy products while you very closely monitor the size, shape, density and surface features of each scar to determine what it takes to abet a change of the PD scar tissue. This is the key idea point of the PDI protocol. Keep in mind that you asked about Neprinol, so I mentioned Neprinol as the primary enzyme in these examples, but this same approach could be used for any pair of different enzymes you might select (primary use of Serretia + Fibrozym, primary use of Inflamazyme + Nattokinase, etc.). A person can also elect to use something like Nattokinase or Serrapeptase or Serretia instead of Neprinol as the primary enzyme that is the cornerstone of their enzyme intake, and the others (including Neprinol) are used as secondary enzymes as above.
While trying these various combinations every 7-10 days a person can soon get confused about what was tried, what doses were used, what did not work, etc., so it is critical that you use and keep all those small pad notations so you have an accurate record of what you have done in the past and what you are doing now. You can even experiment with three different enzyme products, but of course the individual dosages would be proportionally lower so that the total intake would be acceptably safe.
Perhaps the best benchmark to use to determine how far and how fast to go with the enzyme portion of your plan is to evaluate the integrity and health of your gut (gastrointestinal system). If your GI tract has been a problem to you in the past and is sensitive to a lot of things, then go very slowly and conservatively; if your GI tract has been a healthy and you can handle most foods and spices that you wish, then it is probably going to do well with our enzymes and you can be perhaps a bit more aggressive in this area of your plan. A few years ago I worked with a 75 YO man who started his Neprinol intake with 20 capsules/day and went up from there and did very well with his PD scars and had no gut trouble at all. Everyone is different.
Hope this helps.
2017-07-24 17:27 GMT+02:00 Theodore Herazy <email@example.com>:
See below for comments inserted into your email…
Sent: Sunday, July 23, 2017 3:45 PM
To: Theodore Herazy <firstname.lastname@example.org>
Subject: Re: Question – my case
After 23 days (about 3 weeks) of PD treatment I have some improvements:
Start: 2,5 cm x 3,5 cm of size, and there were little lumps area 0,5 cm length and 2 mm of bulge in one place that were hard like cartilage and rest of the scar area was flat and a little hard like a glay, but from time to time during the day (when you can press your finger in it with the mark that was pressed)
Now: 1,5 cm x 2 cm of size, there are still lumps 0,5 length and now 1-2 mm of bulge, but there are less hard and just a little more soft, but still like cartilage but softer cartilage, You are avoiding finding a better way to describe this physical change. To say that something has gone from feeling like hard cartilage to soft cartilage is useless. It would be like saying something went from being like a hard rock to a soft rock; or a hard ball to a soft ball; or a hard cabbage to a soft cabbage. These are only words that will be useless to you later. Find better ways to describe what you are feeling. While I have no idea what a “glay” might be, that is not important. You obviously know what a glay is and it is something very specific to you with specific physical qualities. This is a much better way to approach this description requirement. When it changes from feeling like a glay, please do not tell me that it is now like a “soft glay.” I want you to have a very specific thing in mind that describes or reminds you of the current physical condition of your scar tissue. While my emphasis on this point might seem silly now, if you do it my way you will avoid a lot of frustration and confusion later when you are faced with the decision of whether to increase your plan or not based on the progress you make. If you are not sure of your progress, you cannot be sure about your dosages, and then the whole process becomes a wasteful and ineffective guessing game.
Start: 2 cm x 6 cm of size, and there were little lumps What do these lumps remind you of? When you felt them, what mental picture came to mind? It does not make a difference that the mental image sounds childish or crazy; what is important is that it makes perfect sense to you and it is accurate to you. If the lumps reminded you of the tiny bumps on a pickle, the rough skin on your elbow, or the surface of your car steering wheel, that would be specific, it would be accurate to your experience, and it would not change for future comparison. area 1 cm length and 2 mm of bulge in one place that were hard like cartilage and rest of the scar area was flat and hard like a glay for most of the time during the day (when you can press your finger in it, with the mark that was pressed)
Now: 1,5 cm x 6 cm of size, there are still lumps 1 cm length and now 1-2 mm of bulge, but there are less hard and just a little more soft, but still like cartilage but softer cartilage, Please do better here. rest of the scar area is still flat and hard like a glay, but a little less often during the day
Start: longitudinal lump 1,5-2 cm of the length and 3-4 mm of bulge, hard like a pencil eraser, Great. Good word description that is exact, specific, and does not change. smooth with 0,5 cm sharp edge, whole lump bouncing I think I know what you mean by bouncing, but I am not sure it is the way to approach this subject. I think you are referring to the density or firmness of the scar. Bouncing like what? Bouncing like Jell-O? Bouncing like the firm end of your nose? Bouncing like your ear lobe? Bouncing like the white part of a soft-boiled egg? (i’m not sure the word in English) between fingers when squeezing Not sure I know what you mean to say here. Perhaps you want to say “density” here? Density as I use it when describing the Peyronie’s disease scar tissue refers to the degree or amount of firmness you notice when gently and carefully squeeze the scar mass between two finger tips. As you do this you ask yourself, “When I do this, what does this remind me of? What else feels exactly like this? Does this feel dense (or soft) like a grape? a tube of toothpaste? a tennis ball? a green olive? a hot dog?
Now: at the beginning I thought that was a longitudinal lump because of rounding, but now is more like pasta spaghetti or worm. Two great word-images to use. 1,5-2 cm, the sharp edge 0,5 cm is a little less sharp and the whole scar is a little more flat and soft like from 3-4 mm to 2,5 mm (but here I’m not 100% sure, because the scar is changing during the day). Yes, scars can and do change that rapidly. You must have a very good sense of touch to be able to determine those changes, but it can be done. I suspect that you might be eating certain things during the day that are causing your blood pH to change a little, or eating very cold foods, that could be causing these physical changes in the scar you are detecting. Also when the scar is more flat, I noticed that half of the scar structure changed from smooth rounding lump to a little rough (something like now under the scar feel some small veins)
I hope that it’s not my imagination and it’s not only temporary, Yes, you must fight to keep from wishing too much. Make yourself stay honest and true to what is happening because that is the only way you will have accurate information to work with. because there are some little progress as I see my notes that I’m doing every 7-10 days. Now I see why is so important to note everything, because without it is a little hard to noticed by only touch the scars if they changed or not. As I see the Scar 1 has the best progress, but this scar is the smallest one and the softest. The Scar 3 that is in my opinion the worst, because from where is located the curvature starts and goes to the top where is the Scar 2. The Scar 3 stated to change a little, I hope that is good sign that the tissues slowly removing the scars. Not all scars change the same amount; some are slow, some fast, and some hardly change at all; it is like each one follows an independent path.
In the second plan change I went from:
Unique-E vitamin E 1/0/1 Good; stay at this 1/0/1 dosage
Natural C 1000 1/0/1 to 1/0/2
Nattokinase 1/2/2 to 2/3/4 Nice jump.
PABA 1/2/1 to 1/3/3
Scar Free Spray 1/0/1 to 1/1/1
From tomorrow will be the third plan change and I will go from:
Unique-E vitamin E 1/0/1
Natural C 1000 1/0/2
Nattokinase 2/3/4 to 3/3/4 Good change.
Scar Free Spray 1/1/1
Let me know what you think, I think you are one smart and dedicated guy. You are doing a great job. Spend a little more time imagining what these scar masses feel like, and what they remind you of. For the most part, keep doing what you are doing. It appears, if you are being accurate and honest with yourself, that you are making some unusually early and fast changes because you are doing things the right way, and you have studied your scars so you can notice tiny but important changes. Good for you. You are following my suggestions, and the progress you are making is the result. A lot of people do not do it this way. I suggest that as you gain more confidence that your scars are definitely changing, that you consider NOT making any more increases to your plan; that you keep at whatever dosage pattern that brought you to whatever level of success you are at and just continue taking those dosages and monitoring your scars as they continue to improve/reduce. If the scars just continue to fade away, just do what you are doing; if the scars stop changing, then go back to your pattern of slow increases every 7-10 days. If you just want to push harder at your scars by increasing you plan even though the scars are improving, you run the risk of changing your plan so much that it might not be as effective as it was at a lower dosage. For this reason it is always wise to make any changes slowly and gradually so that you can easily notice if something starts to go wrong.
Please keep me posted on what you are doing and how you are progressing. Always happy to help someone who is working hard and is motivated. TRH
2017-07-31 17:19 GMT+02:00 Theodore Herazy <email@example.com>:
Again, see below for comments..
Sent: Sunday, July 30, 2017 3:47 PM
To: Theodore Herazy <firstname.lastname@example.org>
Subject: Re: Question – my case
Those descriptions will be better I guess (current condition):
Size: 1,5 cm x 2 cm
Shape: mostly flat with area that has little lumps
Density: small area 0,5 cm – 1 cm with lumps are like a cartilage and are convex 1-2 mm
Surface: mostly smooth with lumps area that is rough like walnut shell Very memorable description, RLXXXXX, that creates in the mind a vivid image that will be easy to use for later comparison. When it is no longer like a walnut shell you will absolutely be sure of it. I am currently of the opinion (and this might change over time as more and more data is reviewed, but for now I believe) that the least desirable scar surface to have is smooth, and the most desirable (because it shows progress) is a rougher and stringer surface. Bumpiness might indicate roughness. What this means is that I think a smooth scar is denser and more “set” than a non-smooth scar; a smooth scar is untreated and strong, and a bumpier or textured scar is being treated effectively and is beginning to show signs of weakness or surface irregularity created by PDI treatment is a wonderful things indeed; an untreated scar is smoother than a scar that is being treated successfully; scars are smooth and slippery feeling at the start of PDI treatment, and as therapy dosages and stretching gets to be more therapeutic the scars lose that smoothness and become rougher and bumpier as they begin to fragment or “fall apart.” Get the point? When I was treating my own PD a 100 years ago I noticed one day that the previously smooth scar felt “stringier.” By this I mean that when I was a kid we would take the cover off an old beat up baseball and find the string that was wrapped around the ball. We would continue to play with the ball without the leather cover, of course, until the string started to get looser and looser, and finally unraveled completely as the old baseball fell apart. You see, as my scar shrunk in size and the surface felt stringier, it reminded me how those old baseballs felt as the strings got looser over time. I do not know how they make baseballs today; probably no string, but something plastic or synthetic underneath. But back then baseballs were made with tightly wrapped string covered with a leather shell. Anyway, my scars, as they got smaller, also felt like looser and looser strings on the surface; at the start when I noticed the stringiness the strings felt tight and with little space between them, but as my progress continued the stringy tissue got looser and it felt like there was more space between the stings of tissue. As my Peyronie’s disease improved the scar surfaces became bumpier and more textured. As you can see, I studied the devil out of my scars and my PD, and I knew the monster well. But I beat him because I knew what made him tick. You should do the same. OK?
Size: 1,5 cm x 6 cm
Shape: mostly flat with area that has little lumps
Density: small area 1 cm – 1,5 cm with lumps are hard like a cartilage and are convex 1-2 mm
Surface: half of the scar is smooth and another half is smooth and slippery like a head of the spoon, Good. there is also a lumps area that is rough like walnut shell (the same like Scar 1)
Size: 1,5 – 2 cm (with 2 pasta spaghetti threads that are going from it is a little longer about 3,5 cm)
Shape: longitudinal pasta spaghetti that is convex about 3-4 mm
Density: one part of the scar is more convex 3-4mm and about 1 cm long and it’s hard like a cartilage with edge 90 degree angle and it’s wobbly There are many things that are wobbly. There are many degrees of wobbliness, from hardly noticeable to falling apart. This scar is wobbly like what? What thing or situation doers this wobbly reaction remind you of? when I’m squeezing it with my two fingers, from this hard part 2 pasta spaghetti are showed that are convex about 2 mm and are a little hard like not full cooked pasta, those 2 pasta spaghetti are going in the top direction of the shaft
Surface: the most convex area is smooth and slippery like a head of the spoon, but 2 pasta spaghetti threads are slightly rough like an orange skin Good. Very. good. An orange skin is very specific and you will be able to detect any deviation from that particular texture when the surface changes.
About changes, the Scar 3 is the worst as I see more and more, because my bad condition mostly is because of that scar. Something for sure started to change, at the beginning the scar was more like a longitudinal lump, Get better descriptions here. but now is like I described earlier. Also Scar 1 is smaller in the flat area of the scar.
Also 3 days ago I added your stretching exercise to the treatment (2 x 20 min daily), If you are in a stretching session, and the deep dull ache (DDA) stops after a few minutes: 1. Check to see if the DDA stoppage is due to the fact you carelessly started to increase the force of you technique; if so lighten up and the DDA should reappear. 2. But, if your technique is the same gentle force you then should simply find a new area or a new technique that will cause another DDA to appear. You will find that different areas or angles of the same scar, or different scars, can be made to respond to several techniques; each technique is at least theoretically stretching the scar tissue in slightly different ways and at slightly different angles. And if the DDA does not go away, it just drags on and on, it is being stubborn and is not letting go. Continue holding it until you win and it lets go (meaning the DDA stops). But if you run out of time (you have to go to work) and the monster tissue still has not released, then you will just have to fight the gentle battle with it the next time. Eventually you will not be able to find any areas that create the DDA. When you get to this point, contact me and I will tell you how to get to the next level. Imagine that you are trying to GENTLY tear that scar apart in as many different ways and directions as possible. Attack it gently with a variety of techniques for best destruction. here I have a few questions:
- As I understand for the start I should focus on the worst one scar? That usually makes most sense, but the question is always what is it that makes a particular scar considered to be the worst? Its size, location, pain being generated from it, persistence, ability to cause shaft distortion? You be your own judge. Pick your target tissue and get busy.
- Should I use only one technique per session? No, use whatever technique causes the strongest and most persistent DDA. If 2-3 different technique causes the DDA, then you must decide which is most effective in causing the best and strongest DDA (which actually means which technique is most effective in making the scar actually change and stretch). For example the Scar 3 is the worst and I could use in one day one technique and next day another one from these: Head stretching/Local stretching/Bend stretching methods, or the best will be to practice only one technique until there will be some improvements with the scar? Experiment to see which gentle stretching method gives best and strongest DDA reaction, and use that one.
- I noticed that gentle ache starts really fast for the Scar 3, Great. Sounds like #3 is the one that is ready and willing to cooperate with you. Go for it. A familiar problem I see with all men is that over time their gentle stretching technique slowly changes and becomes overly aggressive and stronger than it should be. This results in reduction of the DDA response and frustration because of reduced improvement. So watch yourself to keep your technique light and gentle at all times. when I just bend my shaft gently a little to the top, also there is stiffed sensation – stiffed with shrinking half of the shaft where is the Scar 3 in the bottom of the shaft on the left side. I have it that shrinking shaft only when the shaft is bending to the reverse side (to the right, because on the left is the scar) when I’m laying on my right side, or sometimes when I’m walking that the half left of the shaft is shrinking and become stiffed. When the shaft is in erection state it’s really really hard to bend shaft to the right, but to bend shaft to the left is no problem. Is it normal with PD scar? Yes, that shows the weakness of the structure and how easy it is to re-injure yourself during sexual activity if the shaft should suddenly bend to the left if unsupported.
“I suspect that you might be eating certain things during the day that is causing your blood pH to change a little, or eating very cold foods, that could be causing these physical changes in the scar you are detecting.”
– About the food, I’m eating 5 meals per day now (3 warm meals, 2 cold meals) it’ like mediterranean cuisine food. That is generally good, but particular foods within a Mediterranean menu might be wrong for Peyronie’s disease; please check your book for details and particular good/bad foods. Warm and cold meals per se are not the issue; it is the presence of eating icy cold foods (ice cubes in your soda, frozen cold deserts, ice cream or any foods that are intensely cold) in the diet that can set off the scar to over-respond by becoming larger and denser.
– Also I started work out 3 times per week, it’s interval training for 30-45 min.
“Unique-E vitamin E 1/0/1 Good; stay at this 1/0/1 dosage”
– OK I will do it
‘I suggest that as you gain more confidence that your scars are definitely changing, that you consider not making any more increases to your plan;’
- Yes, I will do it as you said. Will keep those dosages for the next 1-2 weeks and will check if there will be any progress. I’m patient guy so if my body needs 1 year to remove the scars I will be patient and do everything to remove it and not rush too much with increases. I will be doing everything with instructions that you sent me with supplements.
OK. That is it until next month. In the next series of emails from RLXXXXXX we will see other interesting Q/A and the creative way he describes his scar as it is falling apart.
Stay focused to your plan and be successful. Please send any questions you have for me to answer at email@example.com