Peyronies Forum from Around the World

Peyronies Forum Directory of Important Links

Peyronies Forum help for men with Peyronie's disease to locate other discussion group sites Peyronies Forum Directory is a service of the Peyronie's Disease Institute (PDI). This informaiton is provided to the large and quiet community of men who suffer Peyronie's disease. The Peyronies Forum is a master list to locate and connect to all known internet Peyronie's disease forums and discussion groups.

None of these Peyronies forum groups offer expert or practical information about Peyronie's disease natural treatment.   Be careful in listening to the non-expert and inexperienced ideas that are sometimes offered in these sites about natural health care.  Some well-meaning person might tell you about his personal experience with some therapy – like Neprinol or vitamin E – and convince you he knows more than he actually does.  Be careful where you pick up your natural treatment information because a lot of it is not correct and could harm your.  

Peyronies forum to expand communication

Peyronies Forum Directory expresses the unique philosophy of natural care for Peyronie’s disease.  For this reason it is unlike any other you will find on the Internet, see  Peyronie's disease treatment.   This list of other sites is offered to improve communication among men with Peyronies desease, not just with drugs and surgery.

To read success stories, click on Peyronie's disease treatment testimonials.

Warning before linking to any Peyronies forum, be aware:

 

Heated discussions about Peyronie's disease

1. Many Peyronies forum sites eventually are abandoned. Why??  The medical profession has convinced the average man with Peyronie's disease that there is nothing that can be done for him.  As a result he soon quits looking for help and looking for information. The average Peyronie's forum is full of the same dull and pointless information about Peyronie's disease.  From one PD site to another the reader sees the same limited and negative information repeated from site to site that he soon tires of reading it.  People eventually stop using these forums, and each one dies out after a while.

2. Many Peyronies forum sites have very few entries or questions because there is so little genuine information that can be used to help someone by offering intelligent and tested Peyronie's treatment information and opinions.

3. Posts on the average Peyronies disease forum are often of a negative nature. Meaning, most dwell heavily on what doesn't work, or what is wrong with this or that kind of treatment. Very few men have found help with their Peyronie's disease that little positive informaiton is ever presented.  With this negative and tiring repetition of the same information, few people come back and sites just dry up after a while.  

4. On most Peyronies forums if a positive comment is made about an Alternative Medicine therapy that has helped someone, there is a strong and very vocal group of a few men who will shout them down or suppress this information. Men with something positive to report about improving their PD can be called liars, stupid, or "shills.' Very often the only thinking or ideas that are welcome is of a medical nature – and the medical thoughts and ideas allowed by this smaller group is that nothing helps Peyronie's disease.  For this reason it is important to understand that many of these Peyronies forums are very one-sided with a strong medical slant.

* http://peyronies-disease-help.com/category/blog/
* http://www.peyronies.org/forum
* http://www.biospecifics.com/forum/index2.html
* http://www.inspire.com/groups/association-of-peyronies-disease-advocates/
* http://groups.yahoo.com/group/peyroniesdiseasesupportgroup/
* http://health.groups.yahoo.com/group/men_peyronies/
* http://health.groups.yahoo.com/group/Peyronies_peckers/
* http://health.groups.yahoo.com/group/PeyroniesDisease2/
* http://health.groups.yahoo.com/group/PeyronniesDiseaseHelp/
* http://health.groups.yahoo.com/group/peyronies-chordee/
* http://health.groups.yahoo.com/group/international_peyronie/
* http://www.askphysicians.com/cgi-local/forums.cgi?display=thread&forum=34&id=4478
* http://forums.menshealth.com/thread.jspa?threadID=168290&messageID=2769105

The Peyronies Forum Directory does not blanketly endorse or necessarily agree with these discussion groups. PDI has no control over content or intention of any forum, and cannot be held responsible for the accuracy or validity of any contribution made by members of these groups.

Commentary:  Standard medical "wait-and-see treatment" of Peyronie's disease, click Peyronie's Disease and Man Whose House is on Fire.

Did the Peyronies Forum Directory miss any?

If you know of a forum or discussion group that is not listed here, please send the URL address of that group for inclusion, to us at info@peyronies-disease-help.com.  Peyronie’s disease is a complex and baffling condition.  Because of the variable progression of the disease and inconsistency of response to treatment, there is much misunderstanding about it by the men who must live with this problem.

There is much controversy about Peyronie's disease treatment and sometimes there is even argument.  It’s cause is unknown, and there is no accepted medical treatment for it at this time. Because there are many theories and few hard facts, there is much confusion about cause, progression, treatment and resolution of this terrible heath problem.  For your mental and physical well-being, please contact a Peyronie's forum to educate and help yourself – but be aware of their limitations.

7 thoughts on “Peyronies Forum from Around the World

  1. Mario Adorno says:

    In my opinion, all carriers of the Peyronie’s disease have antibodies to Chlamydiae, or current infection. Being caused by the enzyme “proteinase inhibitor” that is denatured by heat, either by the friction of the penis with her vagina, or hand, or even by a swelling or fever, this applies to other fibrosis, too. And I think closing this enzyme Ms disappears (Michaelis equation).

  2. Dr.Herazy says:

    Greetings Mario,

    Thank you for presenting your ideas offering an alternative cause of Peyronie’s disease. You take me back many years to college biochemistry studying Michaelis–Menten enzyme kinetics. I will have to go back and refresh my thinking in that regard to see how this relates.

    My first thought is, the heat that you speculate denatures the proteinase inhibitor generated during intercourse would be so minimal, if not essentially non-existent, in almost all instances of intercourse. Typically, with usual vaginal lubricating secretions the amount of friction is reduced so that intercourse can proceed without pain or heat as an irritant. If what you speculate took place during intercourse then all men would have Peyronie’s disease. Any minimal heat generated at the surface during intercourse, or masturbation, is dissipated via capillary blood flow, and not available for conduction to the deeper layer of the Tunica Albuginea. Lastly, any minimal heat generated during intercourse, or masturbation, cannot be compared to the 103-104 degree febrile heat of a local or systemic disease.

    The second thought, there is no statistical correlation of the occurrence of Peyronie’s disease and chlamydia, a sexually transmitted disease. Rarely during the hundreds of communications I conduct each month with men who have Peyronie’s disease that any one will off-handedly report experiencing even one of the common chlamydia symptoms (penis discharge, burning sensation while urinating, itching or redness at the urethral opening or pain/swelling of the scrotum or testicles). In my opinion, absence of these common chlamydia symptoms in my Peyronie’s disease population significantly weakens your theory and possibly disproves it.

    Thank you again for your interest in Peyronie’s disease and sharing your interesting thoughts. TRH

  3. Mario Adorno says:

    Doutor Herazy. Quando eu descobri que possuía infecção por clamídia, tomei um antibiótico e 50% da fibrose sumiu no dia seguinte, foi por isso que comecei a pesquisar. Depois que o computador facilitou a comunicação eu busquei pessoas que tinham o Peyronie e apenas três, sen do duas delas já tinham o exame de anti corpos por terem a infecção no pulmão e já tratadas, um outro fez a pesquisa e deu também positivo, só que não consegui outras pessoas dispostas a realizar a pesquisa. Com estes três eu firmei a minha teoria. Eu tenho aqui um capitulo de um livro de microbiologia que indica como resultado final da infecção a fibrose. Sómente acontece a fibrose nas pessoas que são portadoras da enzima “proteinase” , nas pessoas que não possuem não acontece nada. Inclusive dois elementos que fecham esta enzima são “periodato de potássio” e outra a “lecitinase” , sendo que o periodato é altamente toxico, e a lecitinase produto de bactérias mas poderia atuar como remédio, e nos casos de desaparecimento espontâneo da fibrose, pode ter sido causado por uma simples infecção com S. Aureus. (hipótese)
    Dr. Herazy. When I found out I had chlamydia, took an antibiotic and 50% of the Peyronie’s disease fibrosis disappeared the next day, that’s why I started researching. After the computer has facilitated the communication I sought people who had the Peyronie’s disease and only three of the two of them had the anti bodies test for having lung infection and already dealt with, another did the research and also gave positive, I just couldn’t other people willing to perform the search. With these three I have executed my theory. I have here a chapter of a book of Microbiology that indicates how outcome of infection to fibrosis. Only happens in people with fibrosis of the enzyme “proteinase inhibitor”, in people who do not have nothing happens. Including two closing elements this enzyme are “potassium periodate” and another the “lecithinase”, is highly toxic, periodate and product but could bacteria lecithinase act as medicine, and in cases of spontaneous disappearance of fibrosis, may have been caused by a simple infection with s. Aureus. (chance)

  4. ryan says:

    I am new to this site so bare with me. I was wondering something. I have Peyronie’s disease and have had two seperate penile fractures. It seemed to me that the force that caused the fractures just was not that strong. Does Peyronie’s disease make it easier to get penile fractures?

  5. Dr.Herazy says:

    Greetings Ryan,

    Interesting Peyronie’s disease question, thanks.

    A diamond is the strongest natural material on earth. Yet, someone with a small hammer and sharp chisel can gently tap on it just the right way and split it. Sometimes a small force delivered at just the correct angle and in just the right way, can surprise you. Something similar can happen in Peyronie’s disease. The tunica albuginea is a strong layer of tissue just under the skin of the penis that can usually sustain a lot of force and trauma. However, sometimes even small trauma can damage it. Injury of the penis causes inflammation to occur and sometimes, but not always, Peyronie’s disease occurs. In about 50% of cases when the tunica albuginea is injured and it looks like there is scar formation developing (the plaque stage of PD), the body will naturally heal the area of injury and Peyronie’s disease is avoided completely. This natural recovery from Peyronie’s disease is the reason that you should be encouraged that the natural Alt Med treatment of Peyronie’s disease is possible, hence this is the reason that PDI has this website. This website is all about helping your body do several things to recover from Peyronie’s disease like half of the men whose PD goes away on its own.

    You say you have had two penile fractures. This suggests to me that the trauma or injury involved could not have been too small. It takes a lot to tear or rupture internal penile tissues to the point that it is called a penile fracture. Many cases of Peyronie’s disease start after penile fracture because of the degree and extent of injury involved. You asked, “Does Peyronie’s disease make it easier to get penile fracture?” Actually, the reality is reversed. A penile fracture makes it easier to get Peyronie’s disease. The injury you had that fractured the penis tissue led to your PD.

    But, interestingly enough, now that you have Peyronie’s disease it is actually easier for you to re-injure your penis and perhaps sustain another facture, worsening your PD. Peyronie’s disease almost always causes two changes that can lead to further injury of the penis: 1. Some degree of penile distortion (curvature, sharp bending, hourglass or bottle neck deformity, or a combination of these) that results in a mechanical weakness of the normally straight erection. The distortion is a point of weakness that will allow more bending and sudden stretching to occur if a man is not careful. 2. Erectile dysfunction or reduced rigidity of erection; a softer erection can bend easier than a normally rigid erection. Put these two situations (distortion and softness) together and you are asking for trouble during sex. Many men fail to understand their vulnerability and make their Peyronie’s disease worse with careless and aggressive sex. Be careful.

    Spend some time learning how to use natural Alt Med therapy to improve your ability to heal Peyronie’s disease like the lucky 50% who cure their own PD. TRH

  6. J Michael says:

    I had 3 surgical attempts at a Kidney Stone 2 years ago. The 3rd being successful by a Highly Regarded Surgeon who specializes in difficult Stones. I know that the Catheterization and Stents etc. caused Peyronie’s Disease. The curvature went away in a few weeks but my Penis is less than half the size that I had!!!! I am really upset and feel like the healthcare providers who inserted the various catheters, stents etc. were careless!!!

    Is there anything (exercises or procedures) that would at least give me some length back to my Penis????

  7. Dr.Herazy says:

    Greetings sir,

    Although your curved penis might have improved, you probably still have Peyronie’s disease as evidenced by your history of multiple catheterizations and your marked loss of size. I cannot state this with absolute certitude since I have not examined you and I know only the little information you have shared. However, even though your penis curvature improved there is a good possibility your Peyronie’s disease did not completely resolve itself as happens in up to 50% of the cases of PD when all traces of the problem are gone.

    One of the first aspects of Peyronie’s disease to improve when a man uses PDI natural Alt Med treatment is for some or all of the lost penis length and girth to return. Lost penis size happens in Peyronie’s disease because large tissue layer areas of the shaft are infiltrated by the infamous PD scar tissue that contracts (reducing the flaccid state) and prevents expansion (reducing the erect state). When this scar tissue is reduced the shaft can return closer to normal size; the more scar reduction the more size is regained.

    The key to your question about anything that might help you return to normal, is that about half of the cases of Peyronie’s disease resolve themselves by natural healing without any help – the PD just goes away – everyone knows this. Keep spontaneous healing in mind because it answers your concern: The natural healing ability of the body is often capable of successfully eliminating Peyronie’s disease fibrous material. Effective treatment can be anything that helps your body do a better job of helping itself cure its own Peyronie’s disease.

    Since 2002 the Peyronie’s Disease Institute has studied how that process of self-healing works and how we can assist that process when a man does not spontaneously heal his Peyronie’s disease. PDI is simply trying to help that process in any way that makes sense. Over time we are slowly putting ideas together that seem to be pushing the success rate up a little bit. Sometimes it works and sometimes it does not help. We do not have all the answers to helping men do a better job of correcting their PD, but what we do is often significant.

    Our success rate with Peyronie’s disease is that we get 8-10 reports of improvement (from moderate to marked) for every one report of failure. As we learn how to use the natural vitamins, minerals, enzymes and other therapies better perhaps the reports of improvement will increase. Please look over the information on the PDI website so you can learn how this can be done.

    Good luck with your Peyronie’s disease. TRH

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