Peyronies Forum from Around the World

Peyronies Forum Directory of Important Links

Peyronies Forum help for men with Peyronie's disease to locate other discussion group sites Peyronies Forum Directory is a service of the Peyronie's Disease Institute (PDI). This informaiton is provided to the large and quiet community of men who suffer Peyronie's disease. The Peyronies Forum is a master list to locate and connect to all known internet Peyronie's disease forums and discussion groups.

None of these Peyronies forum groups offer expert or practical information about Peyronie's disease natural treatment.   Be careful in listening to the non-expert and inexperienced ideas that are sometimes offered in these sites about natural health care.  Some well-meaning person might tell you about his personal experience with some therapy – like Neprinol or vitamin E – and convince you he knows more than he actually does.  Be careful where you pick up your natural treatment information because a lot of it is not correct and could harm your.  

Peyronies forum to expand communication

Peyronies Forum Directory expresses the unique philosophy of natural care for Peyronie’s disease.  For this reason it is unlike any other you will find on the Internet, see  Peyronie's disease treatment.   This list of other sites is offered to improve communication among men with Peyronies desease, not just with drugs and surgery.

To read success stories, click on Peyronie's disease treatment testimonials.

Warning before linking to any Peyronies forum, be aware:

 

Heated discussions about Peyronie's disease

1. Many Peyronies forum sites eventually are abandoned. Why??  The medical profession has convinced the average man with Peyronie's disease that there is nothing that can be done for him.  As a result he soon quits looking for help and looking for information. The average Peyronie's forum is full of the same dull and pointless information about Peyronie's disease.  From one PD site to another the reader sees the same limited and negative information repeated from site to site that he soon tires of reading it.  People eventually stop using these forums, and each one dies out after a while.

2. Many Peyronies forum sites have very few entries or questions because there is so little genuine information that can be used to help someone by offering intelligent and tested Peyronie's treatment information and opinions.

3. Posts on the average Peyronies disease forum are often of a negative nature. Meaning, most dwell heavily on what doesn't work, or what is wrong with this or that kind of treatment. Very few men have found help with their Peyronie's disease that little positive informaiton is ever presented.  With this negative and tiring repetition of the same information, few people come back and sites just dry up after a while.  

4. On most Peyronies forums if a positive comment is made about an Alternative Medicine therapy that has helped someone, there is a strong and very vocal group of a few men who will shout them down or suppress this information. Men with something positive to report about improving their PD can be called liars, stupid, or "shills.' Very often the only thinking or ideas that are welcome is of a medical nature – and the medical thoughts and ideas allowed by this smaller group is that nothing helps Peyronie's disease.  For this reason it is important to understand that many of these Peyronies forums are very one-sided with a strong medical slant.

* http://peyronies-disease-help.com/category/blog/
* http://www.peyronies.org/forum
* http://www.biospecifics.com/forum/index2.html
* http://www.inspire.com/groups/association-of-peyronies-disease-advocates/
* http://groups.yahoo.com/group/peyroniesdiseasesupportgroup/
* http://health.groups.yahoo.com/group/men_peyronies/
* http://health.groups.yahoo.com/group/Peyronies_peckers/
* http://health.groups.yahoo.com/group/PeyroniesDisease2/
* http://health.groups.yahoo.com/group/PeyronniesDiseaseHelp/
* http://health.groups.yahoo.com/group/peyronies-chordee/
* http://health.groups.yahoo.com/group/international_peyronie/
* http://www.askphysicians.com/cgi-local/forums.cgi?display=thread&forum=34&id=4478
* http://forums.menshealth.com/thread.jspa?threadID=168290&messageID=2769105

The Peyronies Forum Directory does not blanketly endorse or necessarily agree with these discussion groups. PDI has no control over content or intention of any forum, and cannot be held responsible for the accuracy or validity of any contribution made by members of these groups.

Commentary:  Standard medical "wait-and-see treatment" of Peyronie's disease, click Peyronie's Disease and Man Whose House is on Fire.

Did the Peyronies Forum Directory miss any?

If you know of a forum or discussion group that is not listed here, please send the URL address of that group for inclusion, to us at info@peyronies-disease-help.com.  Peyronie’s disease is a complex and baffling condition.  Because of the variable progression of the disease and inconsistency of response to treatment, there is much misunderstanding about it by the men who must live with this problem.

There is much controversy about Peyronie's disease treatment and sometimes there is even argument.  It’s cause is unknown, and there is no accepted medical treatment for it at this time. Because there are many theories and few hard facts, there is much confusion about cause, progression, treatment and resolution of this terrible heath problem.  For your mental and physical well-being, please contact a Peyronie's forum to educate and help yourself – but be aware of their limitations.

3 thoughts on “Peyronies Forum from Around the World

  1. Mario Adorno says:

    In my opinion, all carriers of the Peyronie’s disease have antibodies to Chlamydiae, or current infection. Being caused by the enzyme “proteinase inhibitor” that is denatured by heat, either by the friction of the penis with her vagina, or hand, or even by a swelling or fever, this applies to other fibrosis, too. And I think closing this enzyme Ms disappears (Michaelis equation).

  2. Dr.Herazy says:

    Greetings Mario,

    Thank you for presenting your ideas offering an alternative cause of Peyronie’s disease. You take me back many years to college biochemistry studying Michaelis–Menten enzyme kinetics. I will have to go back and refresh my thinking in that regard to see how this relates.

    My first thought is, the heat that you speculate denatures the proteinase inhibitor generated during intercourse would be so minimal, if not essentially non-existent, in almost all instances of intercourse. Typically, with usual vaginal lubricating secretions the amount of friction is reduced so that intercourse can proceed without pain or heat as an irritant. If what you speculate took place during intercourse then all men would have Peyronie’s disease. Any minimal heat generated at the surface during intercourse, or masturbation, is dissipated via capillary blood flow, and not available for conduction to the deeper layer of the Tunica Albuginea. Lastly, any minimal heat generated during intercourse, or masturbation, cannot be compared to the 103-104 degree febrile heat of a local or systemic disease.

    The second thought, there is no statistical correlation of the occurrence of Peyronie’s disease and chlamydia, a sexually transmitted disease. Rarely during the hundreds of communications I conduct each month with men who have Peyronie’s disease that any one will off-handedly report experiencing even one of the common chlamydia symptoms (penis discharge, burning sensation while urinating, itching or redness at the urethral opening or pain/swelling of the scrotum or testicles). In my opinion, absence of these common chlamydia symptoms in my Peyronie’s disease population significantly weakens your theory and possibly disproves it.

    Thank you again for your interest in Peyronie’s disease and sharing your interesting thoughts. TRH

  3. Mario Adorno says:

    Doutor Herazy. Quando eu descobri que possuía infecção por clamídia, tomei um antibiótico e 50% da fibrose sumiu no dia seguinte, foi por isso que comecei a pesquisar. Depois que o computador facilitou a comunicação eu busquei pessoas que tinham o Peyronie e apenas três, sen do duas delas já tinham o exame de anti corpos por terem a infecção no pulmão e já tratadas, um outro fez a pesquisa e deu também positivo, só que não consegui outras pessoas dispostas a realizar a pesquisa. Com estes três eu firmei a minha teoria. Eu tenho aqui um capitulo de um livro de microbiologia que indica como resultado final da infecção a fibrose. Sómente acontece a fibrose nas pessoas que são portadoras da enzima “proteinase” , nas pessoas que não possuem não acontece nada. Inclusive dois elementos que fecham esta enzima são “periodato de potássio” e outra a “lecitinase” , sendo que o periodato é altamente toxico, e a lecitinase produto de bactérias mas poderia atuar como remédio, e nos casos de desaparecimento espontâneo da fibrose, pode ter sido causado por uma simples infecção com S. Aureus. (hipótese)
    Dr. Herazy. When I found out I had chlamydia, took an antibiotic and 50% of the Peyronie’s disease fibrosis disappeared the next day, that’s why I started researching. After the computer has facilitated the communication I sought people who had the Peyronie’s disease and only three of the two of them had the anti bodies test for having lung infection and already dealt with, another did the research and also gave positive, I just couldn’t other people willing to perform the search. With these three I have executed my theory. I have here a chapter of a book of Microbiology that indicates how outcome of infection to fibrosis. Only happens in people with fibrosis of the enzyme “proteinase inhibitor”, in people who do not have nothing happens. Including two closing elements this enzyme are “potassium periodate” and another the “lecithinase”, is highly toxic, periodate and product but could bacteria lecithinase act as medicine, and in cases of spontaneous disappearance of fibrosis, may have been caused by a simple infection with s. Aureus. (chance)

Leave a Reply

Your email address will not be published. Required fields are marked *