Should I use Neprinol as part of my Peyronie’s disease treatment?

Dear Dr. Herazy:

I hope this message finds you and yours in good health.

It has been only three months that I “found” the PDI website after being suffering Peyronie’s disease for more than four years. I was diagnosed back in 2008 approximately when I went for pain on erections (reflected mostly on the front of the penis) to the current curvature of approximately 25 degrees upwards bending a bit to the right as well.

Due to the initial treatment in my country (Cuba) I got initially Vitamin E and then even direct injections on the plaque of Interferon and sessions of laser.  None stopped the bending process after pain with erection disappeared.  Then I stopped using Vitamin E, suspended laser and the injections and changed to an urologist that has been working on using natural pills made from bee’s propoleo.  I have been taking these pills for more than two years before going to bed (and at least three hours after my last meal).  This Dr. also used as a method the measurement of the curvature and sporadic ultra-sounds to keep track of the degrees of the curvature.  I must say that in more than two years the curvature seems to keep being of the same degree (not healing but not bending either).  Unfortunately for me and others this Dr. emigrated.  He was substituted by another urologist who seems to have more faith in continuous ultra-sounds to compare the process of growth of the plaque.  I skipped going to consultation like a year ago.  It must be pessimism or lack of faith that I will solve this disease.

I have gone through serious stress in my own marriage and I feel somehow ashamed that I would not be able to find a woman that will cope with this disease in my country if I decide to divorce my wife. I have had all the reasons to divorce my wife but I feel stuck with her. You know, being from a Latino country and culture machismo is a big thing.  I am 52 BTW.

Since I found about PDI I designed my own plan which is currently as follows:
1- I am taking daily at breakfasts:
a- PABA (500 Mg)
b- Acetyl L-Carnitine (500 mg)
c- Glucosamine with MSM (500 mg)

2- I also take daily around 3 PM: MSM (500 mg)

3- I take as well a pill daily 3 hours after dinner of Propoleo

I do not have enough resources but I am ready to pay for whatever even if I have to sell my belongings.  So my question to you is what you would suggest someone in my stage of Peyronie’s disease to buy?  I know I should buy your books (re: “Peyronie’s Disease and Sex and Peyronie’s Disease Handbook) but what else, please?

Should I use Neprinol?  Should I go back to Vitamin E being added to everything I am using already?

Being in the Caribbean (and subject to a US Embargo) the only way I would have to get all I need will be through friends living in the States visiting my country twice a year.  I will have to reveal my disease to one of them so to seek his help.  I am ready to do whatever it takes.

Best regards,

M. C.
Havana, Cuba

 

Greetings M.C.,

So sorry to learn of the difficulty you are having in finding and using a good Peyronie’s disease treatment.  You are to be commended for working so diligently to help yourself.

While I understand why you have been forced to try to duplicate a PDI-type treatment for Peyronie’s disease using substitute products since you cannot get them from PDI in the U.S., this is a great problem.   It is very likely that the quality and subsequent quantity of actual useable nutrients that are available to your body are not sufficient to help your tissue heal and eliminate the Peyronie’s plaque.    Just because the label might say there is 500 mg. of PABA or acetyl-L-carnitine in a product does not mean it is of sufficient quality to help your tissue heal, or that it is even present in the pill.   This is why I insist that men who are serious about eliminating their PD will only use those products that I have had good success with against Peyronies.   Correction of this problem is too important to take a chance that you could be using questionable or poor quality therapy. 

As a general comment concerning what you are currently doing,  a basic problem is that you are only using internal-type therapy items and no external therapies such as DMSO,topical copper and vitamin E, manual stretching or non-penetrating acupuncture treatments.

Another general comment is that you are apparently taking those therapies you currently have available but you have not tested or compared during use against the size, shape, density or surface features of the PD scars to determine the correct dosage.   In other words, you are swallowing a lot of pills hoping something good will happen to you.  But that is not how the PDI process works.   I want you to know the exactly correct dosage to make the best progress possible.

Yes, both books are a wealth of practical information; they will help you toward your recovery.  

Neprinol is a great Peyronie’s therapy, but by itself I have not seen it be very effective; it must be combined with other therapies for maximum benefits to occur.  Please refer to the PDI website for more information about this aspect of treatment.In addition, when you order Neprinol from PDI you will be given specific information about how to use it for maximum recovery benefit.  See Peyronie’s disease treatment with Neprinol.

Using vitamin E requires that it is the right kind of vitamin E and it is of excellent quality.   I cannot advise about using what you currently have been taking because I have no idea if it will be good enough to help you; it could be a waste of your time, effort and money.

Lastly, you are not the only person who we help receive PDI therapy products from visiting relatives.  Please send me an email to alert me when you are ready to place your order and I will see to it that we get this done as economically and effectively as possible for you.  Please keep me informed and I will do all I can to help you.  TRH     

 

What can I do get back on track from the ED of Peyronie’s disease?

I was prescribed Cialis from my urologist at was he believed was ED or at least my brain made me think. This came about after having sex with my girlfriend in the shower and something hurt real bad so we had to stop. Then symptoms started which I guess mirror ED where I could not get an erection and of course she thinks I'm not attracted to her then this makes the problem worse. I have been on Cialis one a day for the past month and a half.  Sure, I now get erections but lately I have noticed I have an hourglass shape to my penis that even seems to happen when flaccid.  Just recently I feel a slight burning near the head of the penis, definitely inside the penis. After going through your site I for sure believe that I was misdiagnosed and believe I have Peyronie's and the Cialis has made matters worse.

What can I get from your store that will hopefully get me back on track?

Thanks, Daryl

 

Greetings Daryl,

First o fall, yes, you are correct that many men with Peyronie's disease develop several symptoms similar to erectile dysfunction (ED), and sometimes exactly like ED.  Many of the physical problems and symptoms of Peyronies can create stress and misunderstanding between a sexual couple so that eventually their are also emotional reasons to cause ED in addition to those from PD.   Sexual ability and sexual activity can go downhill very fast.

Since you report your pain as a burning sensation in the head of the penis (glans) I suggest you have a different doctor check you out to assure you do not have a problem with your prostate or your urethra (urinary passage tube) since burning pain is not associated with Peyronie's disease.    Additionally, since you did not mention any penile curvature, you should not assume that you have PD.  This would be a smart move since you could be having two different problems at the same time, or you might not have Peyronie's at all.   You will not know for sure until you go to someone to be sure.

I have written many times about PDE5 drugs causing Peyronie's disease and aggravating an existing condition.   Please refer to "Viagra, Cialis, Levitra use with Peyronie's disease" and "Peyronie's treatment and Cialis.'

Once you are confident you have PD I suggest you do some good things for yourself to increase your ability to reduce the internal scar tissue.  I suggest you look at an aggressive PD treatment plan to get you back on track.  A good place is "Start Peyronie's treatment."   TRH

Is it true nothing can be done for penis shrinkage caused by Peyronie’s disease?

I hurt my penis during sex. At first it had a curve but that went away and instead the penis has shortened drastically.  Sex is no longer achievable and a simple act like urinating into a toilet bowl is a problem because the penis has shrunk so much that I cannot point it at the bowl.  I either have to drop my pants or sit on the toilet and push the penis down to prevent it from urinating at 90 degrees.

I live in South Africa and the urologist has said there is nothing that can be done.  Is this true?

Regards,

Wally

 

Greetings Wally,

The statistics found in medical journals and the internet about penis shrinkage related to Peyronie's disease are variable and of questionable accuracy due to the natural of the problem.  As I remember, the published rate of reduction of Peyronies men who experience penile length and/or girth is said to be 25-50%.  However, based on my conversations and email from men with PD I would put that number easily in excess of 75%.   What you report is not at all uncommon.  It is  a consequence of the excess fibrous tissue build up that causes contraction of the deep soft tissue of the penile shaft, and also can cause distortion, such as a curved penis or an hourglass, bottle neck or dent deformity.

When your urologist told you noting can be done for this problem, he/she should have more accurately said there is nothing that medical practice can do to help you.   There is a lot you can do to help yourself.  If about half of the men who develop Peyronie's disease experience a spontaneous remission or self-cure of this problem, then it is obvious that these men are capable of curing their own problem.   PD is cured half of the time without any outside help by the natural healing process of the body.   The PDI concept for treatment of Peyronie's disease is simply to assist or support that same natural healing process by using a combination of vitamins, minerals, herbs and enzymes and other techniques that allow the body to heal better – to increase the odds that you too can care your PD like you should have in the first place.   Your urologist only says there is nothing that can be done to help you, only because he/she does not have a drug to use for that purpose.  "We do it my way, or no way."  What arrogance. 

Probably the best place for you to start looking for information about Peyronie's treatment using Alternative Medicine is from this link from the Peyronie's Disease Institute, "Start Peyronie's treatment."  

Believe me, you would be shocked to learn the number of MDs who contact me from around the world about using Alternative Medicine and the PDI approach to Peyronies treatment when one of them develops PD.    Drugs and surgery are for patients, and when one of them has a bent penis they they suddenly want to be very conservative with what they do.  TRH