What if I have had Peyronie’s disease for a couple of years without any treatment?

What if I have had Peyronie's disease for a couple of years without any treatment?

Would hydro heat therapy benefit me in any way?

I do not currently have health benefits but will before the end of the year.

I would prefer to avoid surgeries and would be interested in learning more about viable lower cost treatments.

My urologist in MA said that as long as I can get and maintain en erection there is little else he can do.

I am in the Tampa area now. Perhaps a new doctor? I can still have sex with my wife, but the curve is making it more challenging to perform.

Thank you,

Chris

 

Greetings Chris,

Since 2002, while working with men who have Peyronie's disease, some have had PD for 10 years and more; most are in the 18 month to three year range, but many have come to PDI for help without any treatment even though their problem has continued for many years.  When most men who have had PD for many years follow an aggressive treatment plan and apply it faithfully and well, they seem to respond about as well as those who have had PD for a relatively short time.  Age of the Peyronie's disease does not seem to influence treatment outcome.  What seems to influence outcome of natural Peyronie's disease treatment the most is the diversity of the treatment plan and how well it is conducted.

Moist heat packs are always a good addition to any Peyronies treatment plan, but should not be considered a serious solo treatment for a problem as difficult and stubborn to treat as PD.  For many years I have recommended men who follow a medium or large PDI treatment plan also use moist heat especially before using DMSO, manual stretching or Genesen Acutouch pointers in their treatment plans. 

Yes, by all means do all that you can to avoid any surgery.  Especially try to avoid Peyronie's disease surgery that has a poor record of post-surgical outcome, side effects and complications, and recurrence and worsening of the original problem.  There are many men who rue the day they were cut on for their Peyronie's plaque because of significant worsening after surgery. The PDI website is estimated to have 2,000 pages of information about natural Alternative Medicine treatment of Peyronie's disease for you to read and learn how to get healthy without drugs or surgery. 

If you have any specific questions about using Alternative Medicine to increase your ability to eliminate your PD plaque just ask and I will do the best I can to help you.   TRH 

Does Unique-E oil have the tocotrienol portion of the vitamin E family in it?

Hello Dr Herazy. My peyronies is very mild it was done in a sex accident around 7 months ago. My penis is still straight when erect and hasn't really changed. I just noticed a little more bend in my penis when I went to urinate in the morning. My condition is stable and isn't really changing. My urologist said it was a traumatic form of peyronies. There is no real scaring but noticed when I did it a small line on the side of my penis more noticeable when erect. I was thinking of using your Unique vitamin E oil. Does it have the tocotrienol parts of vitamin E in it? Thanks for reading my question.

Greetings, 

Yes, Unique-E oil has both all four members of the tocotrienol part of the vitamin E family, as well as all four members of the tocopherol part of the vitamin E family.   I trust you need to know that in addition to using the topical vitamin E you should use PMD DMSO after the vitamin E is applied to the area so that the vitamin E can be taken deeply into the involved tissue. 

Further, you should not assume that your Peyronie's disease will stay the way it is now. Peyronie's disease is not a static problem; it changes over time, sometimes slowly and sometimes rapidly, but it seldom stays the same for very long. Most people take the position that it is far better to use Alternative Medicine to treat the Peyronie's problem while it is still small and manageable to keep it that way.   TRH 

Can I cause more damage to my Peyronie’s disease due to difficult penetration during sex because of a partial erection?

Hi Dr. Herazy,

I started having some pain with erections about March 2012, seen family doctor, asked if penis was bent and when I self examined, and yes it was. He then told me I had Peyronie's Disease. I had about 30 degree bend to left and could still enjoy sex. Most pain has subsided, but about 2 weeks ago, found I could not make penetration with my wife. Upon self exam, I see I am not getting full erection, top of penis is soft while base is erect. I gather there must now be full blockage to the end of penis? I am thinking of trying your medium treatment plan. Also, can I do more damage if I try again with my wife? I was also thinking of trying CyberSkin Transformer, would that help? Like every other guy, this is a huge blow to me.

Thanks!

 

Greetings,

Your assumption that your poor erection quality is due to a "full blockage to the end of the penis" is not correct.  Actually, the opposite is probably true.

In Peyronie's disease the reduction of erection strength is typically due to the Peyronie plaque preventing the closure of valves in the penis veins.  When these valves cannot close the blood that is normally circulating within the penis simply is not trapped and collected to create the hydraulic effect known as a erection.  Imagine what would happen if you attempted to blow up a balloon that had the other end cut off.  Any amount of air you would blow into the balloon would not be trapped inside and the balloon would not swell and become firm with increased internal pressure caused by air being collected in an enclosed space.  To say it another way, if you try to warm up your bathroom in the winter you must close the door so the heated air can collect inside the enclosed space.  Opening the door allows the heated air to escape.  In the soft area of your penis the blood is not being trapped because the scar prevents closure of the valves that trap blood.  Your blood circulation in the penis is probably as good and uninterrupted as it has ever been, it is just not being collected to create the hydraulic pressure a good erection requires. 

What is probably happening in your situation is that the fibrous material related to your Peyronie's disease has advanced now to the point that the internal Peyronie's scar or plaque material is getting larger and reducing the ability of the valves to close to trap blood and create a complete and normal erection.  The solution involves reducing the size of scar, or even eliminating it.  That is where the PDI treatment plans come in to help you heal them as they normally are healed in about half of the cases.  The medium plan is a popular way to get started with Peyronies treatment.     

Sexual penetration with a partial erection can be difficult and dangerous.  It is dangerous in the sense that a partial erection can suddenly bend and buckle during intercourse and this can result in further damage to the tunica albuginea and make your PD worse than it is now.  I suggest that you get the 2nd book I wrote, "Peyronie's Disease and Sex" that will explain in great detail how you can maintain your sexual activity in spite of having PD.  It is a great book that has helped many couples in this vital area of life.  

The Cyberskin Transformer series of products are effective in providing additional support to the penis to reduce – but not totally eliminate – the possibility of sudden bending during sexual activity that can further injure the penis.  There are other products as well that PDI has available for this purpose like the Girth Prosthetic Rings, Invisi-rider Enhancer and the Reversible Sleeve.  All of these can be found at the sex supports/aids section of the PDI store front.

Peyronie's disease can be a tremendous personal stress to everyone who is in a relationship who has to deal with the outlandish physical changes that can happen to a penis.   The important thing is that you work to do all you can to reduce those changes by increasing and supporting the natural ability of your body to eliminate the internal fibrous scar tissue that causes the curved penis and weak erections of Peyronie's disease. Please let me know if I can help you in any way to correct your problem to the greatest extent possible.   TRH   

Please Doctor Herazy you are the only person who I think can help my Peyropnie’s disease

Dr Herazy,

I am a young adult male from CA. I have been cursed with Peyronie's disease at a young age and it is destroying my youth. I am practically bed-ridden with depression and I can't even sleep right anymore. All I want is to fix my Peyronie's disease. My plaque doesn't even cause bending, it is in the base of the penis and is causing a severe narrowing of the tunica. My erection hangs low now and the deformation can be seen easily. You could call it "baseball bat" shaped. I lost my job due to my severe depression this has sunk me into an even deeper state of gloom. I can't afford to pay for anything on the site. Please Doctor Herazy you are the only person who I think can help me. Everything else is just suggesting thatcher's formula or surgery, but they think my penis is curved.

I eagerly await your reply.

-Thom

 

Greetings Thom,

I could write a 10,000 word response to your email, but I simply do not have the time or opportunity to reply to all the  levels of the different problems that you express in your email. 

The fact that you do not ask a question in your email suggests that you have not attempted to learn about how you might be able to help yourself out of this problem. You wish for me to fix your problem, and I cannot; only you can.  The fact that you suggest I am the only one who can help you tells me that you are not taking any responsibility for your recovery but would rather put that burden on me. This is not the way that Peyronie's disease treatment works, and for that matter it is not the way that anything in life works. You need to re-evaluate this aspect of your personality and mindset to see how this has affected your response not only to Peyronie's disease but to other aspects of your life.  

You are making your situation worse by wallowing in self pity and you amplifying how your condition is affecting you.  You are the one allowing yourself to be bed-ridden with depression. You are telling yourself that your life is being destroyed and you are believing that voice as though it was the truth. You are making your problem worse than it is, you need to take control of yourself, and you need to correct these deeper and larger issues that bother you.    

You say you are bothered by your observation that the baseball bat deformation can be easily seen. You are investing far too much worry and energy in the idea that someone else will look at your deformity and think less of you. This bothers you as much as it does because you already do not think much of yourself and have been bothered by low self-esteem for most of your life.  I suggest that your poor self image is what is really at the base of why you feel that your youth is being destroyed.       

I also suggest to you that you have always had many problems in life that have overwhelmed you, and Peyronie's disease is just the latest to flatten you out emotionally. 

Please allow me to help you by telling your to seek professional help for your other problems.  In the meant time, you should investigate a bit about Peyronies treatment and attitude.   TRH

Have you heard of Peyronie’s disease returning after reinjury during sex?

Hi Dr. Herazy –

My name is Chad, and I’ve had Peyronies about 4 years. I purchased some of your products to treat Peyronies about 3 years ago. I used them and saw great improvement (I only had a slight curve). Each year I seemed to be getting better until suddenly, about 2 weeks ago, I’ve started having much more difficulty getting and maintaining erections. Also, I’ve had some odd sensations throughout the day, and I seem to have a bit more of a curve. I’m feeling nervous that I may have agitated or reinjured it. Have you heard of this happening before?

Thanks,

Chad

 

Greetings Chad,

Yes, it is possible to re-injure  yourself again; if you did it once, you can do it twice. 

I suggest that you begin treatment again because the odd sensations you mention and return of penile curvature could be due to aggravation due to a intercourse-related injury.  It might also be wise for you to consider using some type of penile prosthesis or support that can work to provide an added level of protection during the rigors of intercourse.  bear in mind that none of these devices is foolproof and re-injury while using one of the penis supports we offer at the PDI store  is still possible.   It is always necessary to use common sense and good judgement in regard to how you conduct yourself during intercourse.

It might also be a good idea to get “Peyronie’s Disease and Sex” that will provide considerable information about how to avoid doing this again.  

Please let me know if you need some assistance in getting started this second time around.  TRH

Should I continue with pentoxifylline as a Peyronies treatment?

Hi Dr. Herazy,

I have been told by two urologists that I have Peyronie and told to come back in 4 or 6 months. I originally felt a tighter than usual erection and latter felt a lump inside my penis. I can feel this with my thumb and another finger, like a small ball inside the shaft close to the base. I am not sure how long I have has this for. I am not sure for how long a have had the curve upwards. It’s not big and I have asked my wife and she is not sure either. Looking closer I can feel where the bent is. I have had no major trauma etc.

I don’t have pain on erections but have been feeling some itchiness type pain when flaccid. And if I have been sitting for long time, I have felt really uncomfortable tightness beginning from under my scrotum to the top of the base of my penis. I get the sense that it’s where I felt the lump.

I have read that TRENTAL/PENTOX/OXPENTIFYLLINE has helped some people in combination with CoQ10 and have got a script from my GP.  I took a test run today of TRENTAL 400 to check for side effects — none so far.

Should I continue with this?

 

Greetings,

I cannot comment whether you should take pentoxifylline (pentox) or not.  That is a decision you must make for yourself in consideration with the advice offered by your treating doctor.   Ultimately you have to feel confident with your treatment and know that it is right for you, and not just simply do what you are told to do.

To give you some perspective, you might want to consider reading Pentoxifylline, niacin and Peyronie’s disease and Pentoxifylline and Peyronie’s disease treatment.

It is good that you have not experienced any side effects to pentoxifylline, but the real question is if it will help your Peyronie’s disease or not. 

I suggest that you consider using Alternative Medicine in the way that is described on the PDI website.  Let me know if you have any questions in this regard.  TRH

My husband will not see a doctor about his curved penis (we think it is Peyronie’s disease), what should I do?

Avoiding medical care for Peyronie’s disease is common  

Refusal to see a doctor about a bent penis is an unwise but common reaction among men who find themselves dealing with the long-term negative prospects of Peyronie’s disease. The male tendency to be slow about seeking medical attention in general is compounded by the shock and utter disbelief of learning that there is actually a urological medical condition called Peyronie’s disease that undermines the ability to function as a sexual human being.

In Peyronie’s disease the development of fibrous plaque tissue below the surface of the shaft results in a curved penis or some other deformity that reduces or eliminates the ability to engage in sexual intercourse.  Making matters worse it frequently reduces the length and girth of the shaft, as well as weakens the quality of erection.

Take advantage of the fact the body cures Peyronies disease half the time

When a woman looks for helpful information about Peyronie’s disease she can turn to the Peyronie’s Disease Institute woman-to-woman program for a telephone discussion during which our nurse will answer any questions about PD treatment, sexual dysfunction problems or anything that is of interest to a woman when her husband will not help himself.

The proposal that a man can move his status from someone who was not able to eliminate his own Peyronie’s disease to become a member of the 50% group who rid themselves of this affliction is a simple and easy one to understand.  It is based on the observation that about half of the men naturally and spontaneously heal or correct their Peyronie’s disease within the first 12-18 months after onset.

When a man finds that he has not self-corrected or eliminated his Peyronies plaque he still has the option to promote his own recovery.  This can be attempted by an aggressive plan to actively support or increase his natural healing ability using several different natural therapies identified by medical research to assist the removal of the offending fibrous plaque material. To find out more about this process go to “Start Peyronie’s treatment.”

Alternative Medicine offers natural treatment options to Peyronie’s surgery and drugs

Since 2002 the Peyronie’s Disease Institute has developed the concepts, as well as nutritional and external techniques, that proposes any man can follow a program of self-administered Alternative Medicine care in an effort to increase his ability to heal and repair the Peyronie’s plaque.  By focusing multiple therapies to enhance healing potential many men find they can increase their immune response against the soft tissue changes that cause all the outward signs and symptoms that are so deeply disturbing and disruptive to normal male function.

This is good news for any man who realizes that there is indeed a cure for Peyronies disease; half of the time the body will naturally rid – or cure – itself of the internal scar or plaque material that causes all the problems of altered sexual structure and reduced sexual ability without any outside help or intervention. In other words many men just get rid of their own PD without any help.  Using well placed and logical assistance that is guided by research done in this area for the last 40 years, the Peyronie’s Disease Institute finds that it is often worthwhile for a man to simply support his immune system to reduce the foreign fibrous material of Peyronie’s disease in order to support his tendency to eliminate his PD fibrous plaque as happens half of the time.

A woman can help her man in many ways   

Probably as the two of you were going through information on the Internet your husband got stuck on the idea that there is nothing that can be done for PD except Peyronie’s surgery, which the Internet information also reports will be followed by recurrence of the same problem in a few years and the possibility of side effects that are sometimes worse than before the surgery (loss of all sensation, constant pain, impotence).  With the negative atmosphere and bleak prospects for medical care associated with Peyronie’s disease many men feel a natural hesitancy to get started moving in that direction.

A great paradox commonly develops for a couple when they struggle to understand what is happening to them when they are first learn about Peyronie’s disease.  The contradiction is that after getting the diagnosis and learning about the disease that neither of them knew existed, the man is typically motivated by embarrassment and fear of the future to be quiet and introspective while the woman instinctively wants to discuss the problem and explore her feelings with others.   As time goes on and Peyronies exerts its negative influence on their lives, each will be driven deeper into their opposite direction, and each will not understand why their partner is behaving that way.  This makes for increasing tension between the couple while they should be coming closer together to deal with their mutual problem.

The special relationship between a woman and a man is always tested greatly when Peyronies enters the scene.  While not absolutely true, it has been my observation that most couples will find that the many trials and tribulations of Peyronie’s disease and women will cause whatever is good and strong in their relationship to increase and become better, and whatever is troubled and weak in their relationship to deteriorate further.  Peyronie’s disease does not actually create new conflict within a relationship, but only increases and intensifies whatever strength or weakness was present before it arrived on the scene; it acts as a great reference point that amplifies whatever was going on between the couple before its arrival.  It does not have to be that way, but it happens because people are not prepared for what lies ahead.  They are caught so unprepared for the drama that becomes their lives together that the truth of their relationship is not only exposed but it is exaggerated by the emotions that emerge.

During countless talks with PD couples since 2002 it has been observed many times that either a couple is a naturally good problem-solving team, or it is not.   When it is not, and the man and woman do not work together well, it is very difficult for them to develop and practice whatever new personal skills of good communication, tolerance, compassion, forgiveness or whatever assistance might be needed to help their situation.  It takes extra effort and great patience to acquire the skills and ability needed to come together as a team, while at the same time dealing with the harsh realities of Peyronie’s disease.  Just as it might be difficult to learn to swim while being swept away in a flood, it is just as difficult to develop those skills that lead to becoming a solid team if at the same time they are being tossed about while dealing with PD.  Having presented that observation, it should bring comfort to know it is still possible to minimize and perhaps even overcome the negative and destructive forces that develop as a result of Peyronies disease if exceptional effort and honesty are applied.

You can begin to help your husband with his Peyronie’s disease by encouraging him with information that it might be possible to help himself correct his own PD problem as those 50% of men whose internal plaque are naturally eliminated.  Offer this information to him, showing him that there are more options available to him than Peyronie’s surgery.

Is it a good idea to use pentoxifylline along with a PDI Peyronies treatment plan?

Thoughts on using pentoxifylline in conjunction with your program?

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Greetings,

Thanks for the interesting question.

In several places on the PDI website I have laid out my thoughts about using pentoxifylline to treat Peyronie's disease, such as Pentoxifylline, Niacin and Peyronie’s Disease and Pentoxifylline and Peyronie's disease.

I have never taken a position to say that any person should not take a medication that has been prescribed by a treating physician.  If that pentoxifylline has been prescribed to you, then by all means listen to your doctor and take what he or she has ordered.

However, it just happens to be my personal opinion that what pentoxifylline is supposed to do to help Peyronie's disease recovery is not indicated or especially helpful for the correction of the Peyronies scar.  The purported benefit of pentoxy is that it increases blood flow in the lower half of the body.  With this in mind, please know that no one has ever reported or suggested that the cause of Peyronie's disease is reduced blood flow.  What pentoxifylline does is not related to what is wrong with the penis that has PD.  On top of that also know that there are fewer MDs using pentoxifylline than several years ago; it seems to be losing its popularity for lack of clinical success.    

Some men do take prescribed drugs in addition to following some type of Peyronie's disease therapy that comes from PDI.  I cannot report how that usually works out for them because the results have never been shared with me.

Good luck to your. 

If you want to work to increase and support the natural healing of your body, that has about a 50% success rate, please let me know how I can help you.  TRH  

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I think I have Peyronie’s disease from jelqing. What should I do?

Dr. Herazy,

My name is DJ and I am positive I have Peyronie’s disease. I have always had a slight curve downward and to the left but very slight. I did some jelqing to try to fix this on and off over the last two years. This was a terrible mistake as I was not careful and did it too hard. It ended up giving myself Peyronies and now my curve is much worse. I noticed big changes about 4 months ago where I started to get pain and the curve was getting worse. Now my curve is probably about 50 degrees to the left and downward. It is very painful and I every day I can feel the scar tissue on the bottom of my penis get harder.

This is destroying my life and as many people with this disease, I feel hopeless. I have been taking vitamin E for about a month as well as rubbing vitamin E oil on the scars but this has not done anything. I have decided that I need to take action immediately to stop this from getting worse. What do you suggest? Should I get your large plan and start doing that? I would greatly appreciate some suggestions as I am overwhelmed and do not know what I should do.

Thanks

 

Greetings DJ,

The first thing I suggest is that you have a urologist examine your problem to verify what you suspect about this being Peyronie’s disease.  However, it is possible that by excessive jelqing you only traumatized the blood vessels of your penis shaft and it is not PD. Based on the information your provided it does make sense that your problem is Peyronie’s disease, but you should really get this examination done anyway so there is no doubt about it.

By no means are you alone. About once or twice a month I hear from someone who caused his Peyronie’s disease by jelqing.  By its very nature when a man does jelqing he will create an excessive and often brutal amount of internal pressure within the penile shaft that it is not built to take. For this reason when you jelq you take the risk that you can easily injure the delicate deep tissue layers of the penis, especially when repeated over a two year span of time as you did.

Using a large PDI treatment plan is a good idea in a situation like this.  The more aggressive and faithful your effort to support positive tissue changes the more likely you will be able to naturally reduce the Peyronie’s plaque that may be present.  I always suggest that anyone thinking about using a PDI treatment plan should first read my book “Peyronie’s Disease Handbook” because there is a lot of good self-help treatment information that is not found anywhere else.

Wants advice about extreme pain in penis

Dear Doctor Herazy
Almost 5 months ago i felt a slight pain at the base of my penis (on the underside), i was shocked and i ran to emergency and family doctor and they did all sorts of tests to rule out infection and prostate problems.  everything came back negative.  during all this time my anxiety has driven me crazy. i started rotating my penis once to the left and once to the right every day and night and taking pictures for whatever i see (which was actually nothing).  for five months i have been abusing my penis by twisting and rotating to check it, besides the spot of pain which is much like a bulge at the base i developed more spots, one just close to the glans and the other on the shaft, it is like thickened areas underneath the skin. i have a history of dorsal vein thrombosis which has been there for years without causing any pain, and now those spots are so painful that i cannot even walk.  walking is just terrible.   i am not sure if those areas are plaque or they are swollen branches of the vein due to thrombosis, i have the hourglass shape at but only after masturbation, and i cannot see any curvature during erection.  the pain is really bad and i wake up everyday with it, it is worse with walking.  the pain is in flaccid as well as erected penis however erection worsens it.  my penis is hard and very stiff at the flaccid state and the pain is changing its patterns from sensation of wound in the erectile tissue to a sensation of burning in the spots which i developed. but the best to describe it is a disabling pain as i cannot walk. i will have to wait for 3 more months to see a Urologist, knowing that i had an ultrasound on my penis which was non-specific (pretty much looking for cysts or anything unusual as the nurse said) and the nurse couldn’t see anything……anxiety is about to ruin my life…i appreciate your advice and support.

 

Greetings,

Based on the information you provided, it is my educated guess that your problem does not sound like Peyronie’s disease.   Typically, the pain of Peyronies disease is not as intense nor of a burning nature.  Also, the only penile distortion you report only occurs after masturbation, and this is not at all like what Peyronie’s disease would do to a man.

My advice for you is to attempt to get in soon for another evaluation since I suspect that you could be having an aggravation of your deep vein thrombosis.  TRH