Hello. I recently was diagnosed with Peyronies. I'm a 33 year old and if i had to guess i acquired my Peyronies from taking Propecia since i was 17. I am pretty sure my only ED issue is that the scar tissue is on both sides and as such i do not have any curvature yet, however it does appear to make a bottle shaped erection with very little blood to the glands. Freakish to look at.
I have three questions.
1.My urologist said don't do anything. Just wait and see. In the meantime take aspirin and Cialis. Is this really a treatment plan? I have a second opinion in October with someone who is supposed to be more of an expert at the Cleveland Clinic, but i am worried following the first protocol could make things worse. Should i stop this treatment until then?
2. The Propecia also caused lower testosterone, per my primary care doctor. They have put me on testosterone and a substance called sermorelin, a growth hormone booster. Will either of these impact Peyronies negatively or positively?
3. Should i avoid intercourse and masturbation to help things heal? Does massage make sense?
Thank you.Turns out Propecia's side effects are nastier and more permanent than expected.
You are right: Propecia is nasty stuff. It seems that every week I discover a few more men whose Peyronie's disease seems to have started with use of Propecia. If you would take the time to research this topic you would see that Propecia is the focus of many lawsuits, several of which involve Peyronie's disease.
For many years it was maintained that Peyronie's disease is a condition that starts in the mid-50s for most men. Sadly, I am seeing a trend that PD affects men much earlier in life because of things like Propecia and Viagra, Cialis and Levitra, as well as many of the statin cholesterol lowering drugs, as well as the insane use of mechanical penis stretching devices that abuse the delicate penis tissues.
You do not ask any questions about Peyronie's treatment, perhaps because you mention that you do not have a curved penis. Many men take the short-sighted view that if their PD does not cause a bent penis and intercourse is still possible, no treatment is necessary since they assume their problem will stay that way. They do not realize that Peyronies is not a static problem; that it can and often does change, sometimes dramatically. I caution you to take your problem seriously even though you are not currently curved.
Your urologist is giving you the standard wait and see line about Peyronies treatment. Basically he wants to see if your problem will clear up on its own, or if he can convince you to have surgery. In my opinion it is a waste of valuable time and opportunity to not treat Peyronie's disease as early as possible. All we are doing with the treatment approach you see on this website is to promote and support the natural healing process that your urologist acknowledges takes place in half of the cases of PD. I predict that the second opinion you will receive from the Cleveland Clinic will not differ greatly, present a better treatment option or offer deeper insight than what you learned locally.
There is nothing wrong with engaging in sexual activity even though you have Peyronie's disease if you are careful to not re-injure yourself. I have written extensively on this subject elsewhere on this website. Massage is not a viable treatment option in the way I think you have in mind; I have not seen standard massage to assist this problem except where applied to increase lymphatic drainage of the pelvic area. The technique for this is described in the PDI CD, “Peyronie's Disease Massage and Exercise.” TRH