Dear Dr. Herazy,
Six months after undergoing a double nephrectomy in July 2009 I discovered that I had symptoms of Peyronie disease. My kidney diagnosis was papillary renal cell carcinoma and I have been receiving hemodialysis since surgery. I purchased your PD manual in 2010 and have studied it. My self care emphasis has been mostly just tracking the scar closely. I have a 45 degree up curvature; rt side shaft base indent of 1/2 inch when hard from a plaque scarring that feels the size of a postage stamp; a left side shaft base lump the size of a large oval tablet located adjacent to the urethra. Together these scars produce a severe hourglass just above the shaft base during erection. My Dr. also has identified plaque buildup on the top of the "T" along the whole shaft. I tried one bottle of neprinol, taking 6 tabs twice a day and did not detect a change.
My request is that I would like to work with you on a structured therapy with the goal of healing these scars and symptoms and hope fully the PD cause. I would like to give myself the best chance for recovery.
Sorry to hear of your recent health problems.
Fairly often I am told stories similar to yours in which Peyronie's disease starts after having serious surgery that requires catheterization, as probably happened in your case. Injury to the penis typically occurs while the patient is unconscious and unaware of the forceful entry of the catheter into the urethra.
Taking Neprinol by itself is seldom able to reduce the Peyronie's plaque material; a large and diverse program of care must be used to support the body to heal the plaque formation. I suggest you consider following the largest and most aggressive therapy plan you can to get started in the right direction.
I would be happy to work with you to answer your questions and provide options along the way. Please let me know how I can assist you. TRH