We spoke a couple of years ago when I was changing careers from being a long-time financial adviser to becoming a physician (either a holistic MD, Emergency Room Doctor, or possibly now a nutritionist or orthomolecular medicine practitioner). I am now in pre-med classes at age 60, and other than the Peyronie’s Disease and a small left-side inguinal hernia, in stellar health. In the past two years, my physical workouts stopped due to a rigorous study and work schedule, then the hernia appeared. Due to the cautionary advice of my trainer, I now work out carefully 3 times a week, have excellent labs, and do Qi Gong (ancient Chinese healing martial art) and Myofascial Release and other stretches every morning. I look and feel much younger than my age. The small, left side inguinal hernia appeared in November 2011 from working as an EMT on a transport ambulance, and I took a leave of absence in December 2011 pending surgery, which is currently pending with my employer’s workers compensation insurer. I was advised that it should be resolved by October. I currently take 71 different natural supplements daily in pill, tincture, liquid and powder form to the tune of 150 doses each day and have since 2006. This was carefully designed by a medical practitioner under an anti-aging and naturally detoxification protocol from the work of Dr. Gary Null, PhD.
According to my former urologist, whom I first consulted since he performed a vasectomy on me in 1994(?), the popping sound I heard during intercourse several years ago (2008 or 2009) was the beginning of the Peyronies issue, though for about seven years prior I had noticed a slight weakening of my erection. Now, my penis curves downward almost 90 degrees during engorgement, and it appears as if there is an invisible ring at the base of my penis constricting it. During intercourse there is no pain (there was some initial burning sensation inside my penis as I recall after the incident), and I am still able to have somewhat satisfactory intercourse, reaching ejaculation, with my female partner. My penis does become flaccid at times during intercourse and it certainly is not as pleasurable as before the incident. According to my former urologist’s caution, I keep in mind that intercourse could cause further damage so my partner and I are careful.
I want to return to having a healthy erection and intercourse experience, which I did throughout my entire sex life since late teenage-hood. I take 800 mg of pharmaceutical grade natural Vitamin E daily as part of my supplements protocol above. For reasons other than Peyronie’s, to move away from allopathic medicine, I changed doctors to a highly recommended holistic MD, board certified in many specialties, who just happened to have experience with a severe Peyronie’s patient (this was a plus though not my primary reason for choosing him). He had me take a highly concentrated form of pharmaceutical grade PABA (Potaba) because he said it would help eliminate scar tissue anywhere in my body. Only with a prescription I ordered it from a top pharmacy in Canada and over several months, built up to a course of 8 Grams (I believe) a day with little resulting correction, though the change was not scientifically measured. Before reordering a third time in August 2011, I let my doctor know that it did not resolve the issue, though it may have helped, and gave him your information. He then told me to follow through with you.
Before calling you a couple of years ago I read the book of the nutritionist with whom you treated. I contacted him several times but he did not respond. I then called you and you said your body of work went greatly beyond his, but with all of my occupation change and education activities, I am just now getting back to you for a plan of action.
How do I start on a definitive course of action to reverse this structural condition? I would be glad to share with you my entire supplement protocol so you may see what I am taking and how it may be supplemented.
Peter A. Lindsley
Good to hear from you again. I was wondering what you might be doing. Thank you for the interesting and detailed Peyronie’s disease history.
You are not the first man who reports to me that he is in exemplary physical condition, yet Peyronies develops after injury. The only way I can explain it is that someone who is in perfect health, following a perfect dietary and nutritional program, would still be subject to injury by falling down the stairs, hitting his thumb with a hammer, an automobile accident – or injury to the penis during intercourse. Being healthy and well nourished does not make you bullet-proof to trauma.
Many MDs approve of the PDI concept of treatment for this problem. It makes sense and it is based on documented research results. I find that when MDs develop Peyronie’s disease they eventually come to PDI for treatment since there is nothing for them in their own medical camp to use with confidence. I work with MDs for their personal recovery.
A pharmaceutical grade of PABA is not POTABA; they are two different things. PABA is considered a B vitamin. POTABA is PABA with a potassium molecule attached to it and is considered a drug, no longer a B vitamin. They are similar but not the same thing. The early Peyronie’s research work that was done with PABA got good clinical results, so naturally the MDs assumed that POTABA (the drug that they can control because it is a prescription item) would work better. POTABA causes many side effects and few men can take it long enough to complete the intense dosage of three months. You are far better off using PABA the way we recommend it.
Because of your high supplement intake I suggest that you contact me for a telephone consultation about treatment. For the most part I suggest you at least start by reading the information found at Start Peyronie’s Treatment. TRH