Hi Dr. Herazy,
I’m glad to have found your site. I recently was diagnosed with Peyronie’s disease after having gone through numerous urologists who were stumped as to what the issue was. My initial symptoms were pain and swelling of the glans specifically the coronal ridge. This ridge now appears more pronounced than before and although I no longer feel soreness I have the sensation of the glans feeling separate from the shaft. Soon after I noticed a dent on the underside of the shaft right below my glans which is only noticeable when erect. This area also feels somewhat numb to touch. My glans also do not get as hard as before I had this dent. My urologist mentioned a “distal neurovascular bundle” which is obstructing and preventing blood staying in the head.
Have you come across such a dent accompanied by soft glans and what is the likelihood of this being permanent damage?
Suffice to say this has caused tremendous stress however I am optimistic that the body given the right conditions and support can heal almost anything.
I appreciate any comments or advice you may have regarding this matter,
From the limited information I would say you have at best a Peyronie's-like condition. Peyronie's disease is not associated with a neurovascular bundle, but a formation of collagen and other cellular components within the tunica albuginea tissue layer of the shaft. Numbness, glans swelling, glans softness and ridge formation are not part of the Peyronie's picture. While an indentation does sometimes occur with Peyronies I think this is perhaps more of a coincidence of a similar phenomenon and does not offer sufficient support for the diagnosis you say you were given. Perhaps you misunderstood?
Keep in mind I did not examine you, and the others did see your problem, so my opinion is of limited value. But still this diagnosis does not add up to me. Further, you say that several urologists were at a loss to determine the nature of your problem. Perhaps this is just what you were told so that they were off the hook to give you a diagnosis.
From my experience it is common that when several specialists get involved in a problem like yours, it is common for them all to be more concerned about not offending each other or being guilty of contradicting anyone that the patient is often forgotten. I say see another specialist and do not tell him anything about the other doctors so that this next opinion is more honest. TRH