June 1, 2013 PDI Newsletter
Greetings to all PDI and DCI Warriors,
Welcome to this July 2013 PD Institute newsletter. Hope all are doing well and enjoying what looks like the start of a nice summer.
This month we will present emails from three different men. All of the discussions and topics apply to Dupuytren’s contracture and Peyronie’s disease management.
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Everyone should have these two books to really treat the problems of Peyronie’s disease. If you want to learn how to determine the size, shape, density and surface features of the PD scar, you really need the “Peyronie’s Disease Handbook.” And if you are having any problems or questions in your personal relationship, you really need to read “Peyronie’s Disease & Sex.” This is the first time in almost ten years we have discounted these books in this way, so grab this chance for a nice savings.
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RESULTS OF USING ULTRASOUND FOR PD AND DC TREATMENT.
First of all, a comment and request to all who have asked me recently about the ultrasound treatment results since so many people have added it to their treatment plans.
Frankly, I have not received much information back from anyone. At this time all I am getting are questions about ultrasound. Many people have gotten an US machine, and everyone wants to know if the additional therapy is helping, but none of these people have taken the time to send me their personal experience after adding US to their treatment mix. Please take the time to report if your results are the same or better since you have added ultrasound therapy to you plan. Please send an email to me to let me know your experience so I can pass the information along to everyone in the next newsletter in August.
EMAIL EXCHANGES
For each of the following three email exchanges presented below, read the combined emails like the back-and-forth of two people talking while one occasionally interrupts the other to make an important point or answer a question. To understand the flow of the conversation, keep in mind that the text in black is from the person with PD and the text in red is from me.
Here we go, first we will read a few emails between JBXXXX and me. Actually, for those of you who read the last few newsletters, you have read several of JBXXX’s emails recently that have been featured in past PDI Newsletters. He asks good questions; he asks a lot of questions, so he is hard to ignore; I get satisfaction from answering his questions because I admire how hard he is working to recover from his PD and I want to help him out. For these reasons my answers to him tend to be a bit longer and more detailed.
In the second email from JBXXX you will find that he uses the term “IBS,” which stands for Irritable Bowel Syndrome. IBS is also called spastic colon, and is another condition that has no known cause or treatment. A diagnosis of IBS is usually made based on the symptoms of chronic abdominal pain, discomfort, bloating, and presence of frequent and abrupt changes of bowel habits (usually uncontrollable diarrhea, but can also be constipation).
Even though he has Peyronie’s disease this is a good email exchange for the Dupuytren’s contracture audience to read and study. All the things I am writing about evaluation and applying information about the PD scar can be applied to the DC nodules and cords. So, all you DC warriors: pay attention.
On May 7, 2013, at 12:22 PM, “Theodore Herazy, DC LAc” <herazy@comcast.net> wrote:
Greetings JBXXXX, Please see below for comments… Regards, Theodore Herazy, DC, LAc Peyronie's Disease Institute Dupuytren's Contracture Institute
From: JBXXXXX
Sent: Tuesday, May 07, 2013 10:43 AM
To: Theodore Herazy, DC LAc
Subject: Re: Questions from JBXXXXXXXXX
Hi Dr. Herazy,
I appreciate all of the feedback you posted in the last PDI newsletter in response to both emails from myself and the other gentleman. Very informative.
I like the idea of drawing the scar. What a good way to fully be aware of, and document its size, shape, surface, etc . The more detailed the drawing the better. By adding notes and messages to the drawing with arrows pointing to special areas of the scar for later reference, you will create a very vivid and helpful map for comparison as changes start to develop. You see, not all aspects of the scar changes at the same time. This means that the size, shape, density and surface features do not all respond or change at the same time. Sometimes density of a scar is the only thing that will change; sometimes the surface features are the only thing that will change; sometimes the scar gets smaller but everything else (density, shape, surface features) stay the same. You must be checking all physical aspects of the scar each time when you check these things out. If you do not check for each of these aspects, you will miss what you do not know about. You see I have started to notice a difference in my PD scar, albeit a small one. The surface texture is becoming slightly less defined than before. For example, one way in which I characterize the scar is by two bumps or nodules on the scar that is 7/8″ long, 1/4″ wide. Overall the scar still feels hard Hard like what? If you cannot answer that question you will not know when the hardness changes. but there is an ever so slight difference in the way that the surface feels. The bumps are not as prominent as before. Great. Surface feature changes (slipperiness of the surface, bumps, roughness, “stickiness” felt when the finger is slid across the surface of the scar, the presence of “cords” or ‘strings” on the surface) are often the first things to change – but you must be aware and looking for it before you will ever notice it. You should take a few minutes to determine how you would describe the bumps on the surface now. “The bumps remind me of… The bumps feel exactly like…” Be creative and accurate when you think back to find something that exactly reminds you how the surface of your scar feels today.
Recently I experienced a rash after applying the Super Serum + Liquid E + PMD DMSO. Up until this point, for about a month I was applying it twice a day. Perhaps for the past month you have been slowly drying out your skin by applying the DMSO trio to your shaft. Perhaps now with the warmer weather your skin has been under a different kind of stress and this is the reason the DMSO started to cause a rash. I stopped using the treatment for 4 days and then tried it once again, making sure I was only applying a tiny amount, and unfortunately, the rash still appeared. It was not as bad as the first time it appeared, but I have chosen to stop for now. Rather than stop completely, I suggest you reduce your DMSO usage to once a day. Stopping gets you nowhere. If you can be comfortable and rash-free by applying the DMSO trio once a day you will still keep the good therapy entering the local area. In other words, instead of stopping the DMSO, just use it less often to see if that stops the itchiness and dryness. Some men are just more sensitive to DMSO than others. Try to find the dosage level that you can do on a regular basis while keeping the skin rash free. Some men who are very sensitive will use it every other day (use it one day, not use it the next day, use it one day, not use it the next day, etc) Other men find that if they use it twice one day, once the next day, twice the next day, once the next day, etc., they do not have to stop using the DMSO. This way they are still continuing the therapy on a reduced and limited basis, rather than completely giving up on it. Allow your skin to heal for a few days, then slowly reintroduce it to your plan. I am thinking of waiting another couple of days before reintroducing the treatment to my skin, and hopefully I can start applying it once a day, at least every other day. Would you suggest approaching it any differently ? Whatever works for you. I also suggest that you apply a very thin layer of vitamin E oil on the skin of the shaft after you have washed up. This will keep the skin area moist and probably avoid the rash by treating the skin in a preventive way. The rash is due to dryness caused by DMSO taking your natural skin oil off the surface and bringing it deep into the tissue. The vitamin E oil will replace what the DMSO is taking off the top skin layer. If the rash continues to persist, I am thinking to replace it with another external therapy such as the ultrasound machine. If you experiment a little with the DMSO I bet you will find an application schedule that works for you.
I am curious about Neprinol and I have read a lot of the information about it on your website. I am getting to the point where I am taking A LOT of pills all at once, specifically the Fibrozym. I see how it could be more cost effective to take Neprinol over buying Fibrozym and and Nattokinase separately. Is it worthwhile for me to consider making a change in my therapy when I have just recently noticed a very slight change in my scar surface? It is difficult to make changes to the treatment plan when things are beginning to happen to show that the dense fibrous tissue is being reduced. Seldom do I hear that progress slows down or stops when making a transition to Neprinol from Fibrozym and Nattokinase. If you would consider starting Neprinol at 6/day total to replace the current enzyme products I think you will be covered. You will be reducing the number of pills but actually increasing the dosage of available enzymes. Not a bad trade-off.
Currently I am taking:
Unique E 2/day with food
Vitamin C 2/day with food Consider a suggestion to increase if needed
PABA 2/day once daily, with food Consider a suggestion to increase if needed
Acetyl-L carn. 2 pills/ 2x per day, with food Consider a suggestion to increase if needed TRH
Sulfur 2 tablets/ 3x per day between meals Fibrozym 5 tablets/ 3x per day between meals Nattokinase 2 tablets/ 2x per day between meals
PMD DMSO
(with Super CD serum + vitamin E ) waiting to reintroduce
Thank you for your advice.
JBXXXXXXX
On June 7, 2013, at 4:13 PM, “Theodore Herazy, DC LAc” <herazy@comcast.net> wrote:
Greetings JBXXXXXX,
Please see comments below…
Regards,
Theodore Herazy, DC, LAc Peyronie's Disease Institute Dupuytren's Contracture Institute
From: JBXXXXX
Sent: Friday, June 07, 2013 9:18 AM
To: Theodore Herazy, DC LAc
Subject: Re: Questions from JBXXXXXXX
Hi Dr. Herazy,
I recently began using the ultrasound device that I recently purchased from your website. I am finding that when I use the PMDSO gel directly on my skin that I get an unpleasant rash. However, when I use it with the super serum and Vitamin E, I do not. This is because the DMSO drives the natural skin oil back down into the skin, so your tissue develops a red, dry, itchy rash. When you apply the vitamin E oil it lubricates the skin and prevents the dry rash. I suggest that after doing an ultrasound treatment that you apply a thin layer of vitamin E oil over that area to keep it moistened and rash-free. This is because I spread the liquid vitamin E in a broader area than the PMDSO gel. My question is: Can I apply the super serum, Liquid E, PMDSO, and then use the Ultrasound device altogether at once, or does the ultrasound device need to be used separately? It makes more sense to me to simply apply the vitamin E oil by itself after using ultrasound to the area.
Also, as soon as I started taking the acetyl-L-carnitine about 6 weeks ago, I noticed significant positive changes in the chronic IBS I have had for several years. I know IBS may not be your area of interest or expertise, but as a medical professional I thought you might like to know. Thanks for the information about your irritable bowel problem improving. Many people report a variety of unrelated conditions improving while following a broad PD treatment plan. This IBS improvement you mention is a strong indirect proof that when you supply a wide variety of quality nutrients to the body it will work with them to heal whatever problem is going on at the time. This is not much different than a person who has a calcium deficiency, who happens to fall and break a bone. When that person begins to take calcium supplements or increase intake of dairy products the calcium will be directed to the problem area to heal the break in the bone.
What is the current state of your PD scar? What changes have you seen in the size, shape, density and surface features of your scar since making these recent additions to your plan? TRH
JBXXXXXXX
Here is our second email exchange from another person, JKXXXX, and this one also has some basic questions about ultrasound treatment. All of this applies to DC also. He sends two emails, both about US treatment.
On 26 May 2013, at 21:03, “Dr. T. Herazy” <herazy@sbcglobal.net> wrote:
Greetings JKXXXXXX,
Please see below for comments…
Regards,
Theodore Herazy, DC, LAc Peyronie's Disease Institute Dupuytren's Contracture Institute
From: JKXXXXXXXXXX
Sent: Sunday, May 26, 2013 1:14 PM
To: Dr. T. Herazy
Subject: Re: Online Natural Healthcare LLC Package Shipped
Dear Dr. Herazy
I have received the products from PDI which I initially ordered. Thank you for this. I also read all the information letters you send with the products. I am just not sure on how and how often to use the ultrasound machine. US treatment when applied 3 times weekly is an aggressive usage; 4 times weekly is even more robust so I suggest that you not use it that often unless you are not pleased with the results you are getting from the 3 times weekly use. I suppose you could use it more often, but I would be concerned about overtreatment. Also, you could use the US less often, perhaps 2 times weekly, but we would expect lesser results. Must I use it with the vitamin e cream and dmso3 times a day, I see we can use these products, but should the ultrasound be used so often as well. No, no, no, the vitamin E oil and Super CP Serum are not meant to be combined with the DMSO when the DMSO is used to couple the US sound head to the skin. You are confusing the two ways DMSO can be used. First, DMSO can be used without US treatment, when it is used by applying it to the surface of the skin to weaken and soften the internal scar tissue of PD (or combined with vitamin E oil or Super CP Serum for added benefit). Second, it can be used as a “connector” or “coupler” so the sound head is physically connected or joined to the skin to help the sound waves enter the tissue being treated. OK? Use the DMSO by itself when treating with US; or use the DMSO with vitamin E oil and Super CP Serum as a simple topical treatment when it is simply applied to the skin and allowed to chemically enter the skin. When the DMSO is used by itself or combined with the vitamin E oil and Super CP Serum as a simple topical treatment it can be used 3/day, but only as a topical treatment – and not combined with the ultrasound treatment. However, this does not mean that US can be done 3/day. I want to be very clear on this point, JKXXXX. When you apply the DMSO, Super CP Serum and vitamin E oil as a topical treatment (without the ultrasound) this can be done 3/DAY. But, when you apply DMSO as a contact gel for ultrasound treatment this should be done 3/WEEK – not 3/day. If I have not explained this well, and you feel confused or unsure about what I have written, please tell me and I will try again to explain it better. Which setting will be best to use, the low or the high. I suggest LOW since the lesion is so close to the surface of the skin. Please be sure to use nice, tight, small, overlapping circles when delivering US to the area. You should never feel great pain or heat when applying US; if you do this means the setting is on HIGH or that you are moving the sound head too slowly even if it is on LOW. Please keep me posted about your progress.
Lastly, since you have had this unfortunate experience with the customs office, I suggest that you might order whatever you need sooner than other people. Also, it seems that larger orders are examined more closely and more subject to detailed inspection and delays. Therefore, smaller orders might be more likely to be passed through without delay. Just a suggestion. TRH
Thanks a lot.
JKXXXXXXXXX
From: JKXXXXXXXXXX
Sent: Friday, May 31, 2013 3:32 PM
To: Dr. T. Herazy
Subject: Re: Online Natural Healthcare LLC Package Shipped
Dear Dr. Herazy
Just one more question about the Ultrasound. It has two different settings, high and low. In your previous email you said I must use low setting. When I put on the Machine the Low light stays on (is the Ultrasound machine on then and is it already giving out ultrasound) or is it only functioning properly when I press the low button again and when the low light is flickering?
Thank you dr.
JKXXXXXXXX
Greetings JKXXXXXXX,
Whenever the red light is on the US is producing sound waves.
When the light is on constantly, the sound waves are produced constantly or continuously.
When the light blinks or flashes, the sound waves are produced intermittently (“on and off and on again”), or only when the light is on during the time it is blinking. In this flashing or blinking mode the sound waves are being interrupted, so the sound is only being sent into your tissue during the brief time the light is on.
When the sound waves are produced constantly, and the red light is on constantly, you must move the sound head as the instructions indicate.
When the sound waves are produced intermittently, and the red light blinks, you can hold the sound head where you wish to treat without moving it around on the skin surface.
Regards,
Theodore Herazy, DC, LAc Peyronie's Disease Institute Dupuytren's Contracture Institute
This last email is from our third man who has been treating his problem for about a month and has not seen any tissue changes yet. He poses a question about eating pineapple to increase his intake of the enzyme bromelain. This can be done by anyone who has Peyronie’s disease or Dupuytren’s contracture to assist dissolving the foreign fibrous tissue, so I have included this email here for those who like this idea.
As a side note about eating pineapple, I happen to be very sensitive to bromelain, and I mention this because some of you readers might also be just as sensitive to bromelain as I am. I really like pineapple, and I will eat it whenever I find a good one at the grocery store. But If I eat more than 5-6 big chunks of it I will get burning of my lips and thin sheaths of tissue will come off (slough) the inside of my cheeks. An hour after eating the pineapple I will suddenly feel a very thin layer of tissue in my mouth, almost like a wet piece of Kleenex suddenly appearing in my mouth. Very disturbing until I finally figured out what was happening and make the connection to eating pineapple. Now that I know what is happening I find it only a nuisance, and eat the pineapple anyway.
I have no idea what would happen to me if I were to chew on the pineapple core as I have suggested to SHXXXX, and so I would never do it myself. If you are also sensitive the way I am I suggest you not use the pineapple core in this way.
From: Dr. T. Herazy [mailto:herazy@sbcglobal.net]
Sent: Saturday, May 25, 2013 3:21 PM
To: ‘SHXXXXXX’
Subject: RE: Peyronie program
Greetings SHXXXXXX,
Please see below for comments…
Regards,
Theodore Herazy, DC, LAc Peyronie's Disease Institute Dupuytren's Contracture Institute
From: SHXXXXXXX
Sent: Sunday, May 12, 2013 6:08 PM
To: ‘herazy@sbcglobal.net’
Subject: Peyronie program
Hello Dr Herazy,
Been using the Medium Plan since beginning of April and started substituting Neprinol for the Natto and Fibrozym on April 19th. First week 6 tablets daily, Second week 9 tablets and just started taking 12 tablets this week. That is a rather rapid increase you have done; it is not wrong or necessarily dangerous, just that some men cannot handle an increase of that speed since it causes diarrhea for some people sometimes. If you can handle it, good for you. I once heard from a fellow around 82 years of age who started to use Neprinol at 12/day and within a few weeks he was up to 24/day. He was getting great results with softening and shrinkage of his scars, and I could not talk him into taking less since he did not have any bad gut response. Only proves we are all different. Not seeing much results so far. Based on what? Considering that you have been treating yourself for just a few weeks, not seeing scar changes so early is not uncommon. But first, before we start discussing whether you are making improvement or not, I would like to please know the size, shape, density and surface features of your scars that you are monitoring. Just checked your records and it seems that you are about in your 3rd or 4th week of treatment. This is not much time for your tissue to respond, especially if you are just using the lower dosages of early treatment. Ever so, you can expect to start seeing some interesting things starting to happen to the scar over the next 2-8 weeks if you are aggressive and faithful with your therapy, and have taken the time to carefully plot out the physical description of your scar structure. It is a mistake to undergo treatment without knowing exactly all the chief physical characteristics of your scar. You will use this scar description as a base-line to judge and evaluate your response to your current therapy plan. If you do not know the exact size, shape, density and surface features of your scars then you are foolishly guessing and hoping something good might happen to you. If you use the treatment approach I am explaining to you, you will know exactly what is going on and what you need to do to make the changes in your plan to minimize and perhaps even totally eliminate your scar. Would like to know if adding Acetyl-L-caritine to the mix may be beneficial. Yes, it may since it is a very important element of many plans. You can consider making it a part of the slow increase of therapies every 7-10 days that you are using. I also want to start to eat 2 Pineapples per week to get more Bromelain. Not a bad idea. Taking Bromelain 5000 daily is a sensible way to get the concentrated supply of bromelain enzymes on a daily basis, 2-3 times a day, which might have better clinical results than twice weekly intake of natural bromelain via the fruit. FYI: the highest concentration of bromelain in a pineapple is found in the core – the central woody part of the pineapple that you throw away after you cut up the sweet meaty part. I would suggest you chew on that core of the pineapple to maximize your intake of bromelain. If you are a tinkerer I suggest you might cut that core up into small pieces and put it in a blender with some water, to pulverize and disburse the woody part into a solution. I would strain the puree out so you are not drinking a large mass of the cellulose, but only drinking whatever juice you can coax out of the core. I also suggest after crewing on the core (like a dog going after a bone) or drinking it that you immediately rise your mouth well with water and wash your face; if you keep that kind of enzyme for a prolonged time on the skin and oral mucous membrane it will start of dissolve the tissue, resulting in sloughing of the tissue and perhaps a painful erosion that could lead to a small ulcer. Nothing dangerous, mind you, just irritating. Have not tried the stretching exercise tape yet. I think you ordered that stretching DVD in your most recent order. It is a great way to focus attention right to the problem tissue and coax it along with GENTLE stretching. After sitting through the one hour presentation once or twice you will understand what I mean about GENTLE. I suggest that force yourself to watch the stretching video again maybe a week or two after you start doing the technique because I guarantee that you will pick up additional ideas and ideas you missed before you have experience with the work. I am giving you a lot of information in the stretching video, and when you do not know what you are doing you will not appreciate all that I am saying to you. Once you get the hang of the stretching work you will catch more of what I am saying a few weeks later, and this will improve your technique considerably. If you make any mistake with this approach it will be that you are trying too hard and working too heavy-handed. This method works only when approached with the touch of an angle. You will know you are doing it right when you experience the “vague dull ache” that I discuss in the DVD. Please let me know about your progress. TRH Please let me know what you think. Have had the peyronie problem since Dec of 2012. Thank you for your help. SHXXXXXXX
This concludes the July newsletter. I trust there were a few ideas in here that will make your self-treatment go a little better and a little faster for you.
Let me know if there is any subject you would like me to cover in the next issue.
Again, please contact me with your observations and results since adding ultrasound into your treatment plan. Please describe your overall plan, when you added the ultrasound therapy into your plan, how you have personally been using the US machine, and what you think has happened as a result. I would like to hear from everyone who is now using US, because each person’s opinion and observation is important.
If your tissue changes are going slowly for you, and you feel discouraged, put that negative energy into something productive. Write me an email that describes what you are doing, tell me your treatment problems, and include questions about those things you do not understand about your problem. I will do the best I can to help you so that you get the kind of results you want.
If you want to contact me about your problem, or questions about treatment, please send an email at info@peyronies-disease-help.com
Stay focused on your treatment plan.
Regards,
Theodore R. Herazy, DC, LAc
