December 1, 2015 PDI Newsletter
Greetings to all PDI and DCI Warriors,
Welcome to this December 2015 PD Institute newsletter. I trust all my friends are doing well.
Yikes, we had big snowfall right before Thanksgiving and the squirrels around here are eating everything. Could this mean a tougher than usual winter?
Let’s begin this month’s newsletter with a bit of business, then I will simply show two informative and interesting PD and DC testimonials of those I received in the past few months. These two were selected because the writers spent a little time describing how they conducted their plans.
DCI Research Project in Early 2016
DCI is soon going to do a research project to investigate a promising finger and hand stretching idea and related equipment. Would you like to participate?
Perhaps some of you do not know the history of research done by PDI and DCI working with similar teams of volunteers. Over the years we have researched and developed several important therapy items that are used by DCI and PDI, and one that has not been added. Perhaps the biggest project was the creation of the Gentle Manual Peyronie’s Disease Stretching protocol, which has proven to be a very important element in most successful PD treatment plans. Before that a similar volunteer group was instrumental in creating and refining the initial homeopathic formula, called Scar-X, used by both DCI and PDI until it was recently replaced by Scar-Free and the Scars & Adhesions products that were shown to be even better homeopathic formulae. A similar investigation using volunteers was conducted several years ago to determine if ultrasound therapy would be of any therapeutic benefit when added to current PDI and DCI treatment plans. Lastly, a group of volunteers determined that Superoxide Dismutase (SOD) did not assist the reduction of the DC cords and nodules of the PD scars when used as an adjunct in active and diverse treatment plans, and has not been added to our therapy lineup. In the near future it is my hope that we can develop an effective gentle stretching protocol that will assist the natural recovery process of Dupuytren’s contracture.
I am looking for a total of 20 people with Dupuytren’s contracture to volunteer for participation in a four-month research project that will start approximately January 1, 2016. During this time we will determine the effectiveness of a new concept and simple equipment that will attempt to gently stretch the cords of the fingers and palms related to Dupuytren’s contracture. A minimum of twenty minutes a day will be required to use this stretching device and procedure, but more may be devoted to its use if that is desired; the most effective and preferred length of time needed to effect a tissue change in the hand will be one of the issues to be investigated. The requirements to be considered for participation in this project are:
- Good English speaking, reading and writing skills
- Medically diagnosed and confirmed case of Dupuytren’s contracture
- Gender – male or female
- Genetics – one immediate family member (mother, father, sister, brother) who has a medically diagnosed and confirmed case of Dupuytren’s contracture
- Age – 45 to 75 years of age
- Duration of DC – minimum three years
- Extent – one or both hands
- Extent – one or more fingers
- Extent – must exhibit finger cord development
- Extent – must display inability to completely flatten palm on tabletop
- Prior surgery – with or without history of prior DC corrective surgical procedure; prior hand surgery does not disqualify from participation
- Commitment – minimum of 20 minutes daily, or more if desired, devoted to use of stretching device for four months
- Currently using and active in at least a medium level DCI treatment program of at least four internal and two external therapies
- Able to email digital photographs of hand pre- and post-stretching research
Each of these 20 volunteers will be given free equipment to use to stretch their involved hands, and full information needed to use it correctly. Since it is a basic DCI principle that a combination of natural therapies works best to treat DC, it is required that the volunteer continues to use their current treatment plan in order that the inclusion of the investigational stretching protocol can be evaluated as an additional therapy; this stretching will not be studied as a sole or stand-alone treatment of DC; this method will be developed and studied in terms of its effectiveness or ability to increase or accelerate the progress currently being made by each volunteer after the inclusion of this adjunct stretching therapy is included to each volunteer’s current treatment plan. As a requirement of participation each volunteer will also have to complete a weekly progress log, and complete a survey designed to improve the equipment and protocol for its use, as well as submit pre- and post-research photographs to document range of motion of the involved fingers/hand.
If you are interested in volunteering to participate in this finger/hand stretching research project please contact me at contact@dupuytrens-contracture.com to submit your application. When you contact me please tell me about your DC, the degree or amount your finger movement is limited, your current DCI treatment plan and how you have progressed to this time, all based on the above 14 points outlined above. Part of my decision to include or exclude volunteers will be based on their ability to read and follow instructions, so it is important that information is submitted correctly. Lastly, keep in mind that 20 volunteers is not a large number, and that there are over 900 people with DC who receive this newsletter. For this reason it is possible that the volunteer group will be assembled quickly and that I will not have to contact all people who submit information about participation; not everyone will be contacted even though they express interest and have submitted an application.
In preparing to write this month’s newsletter I looked into a file in which I keep success stories, and found two that I have been saving. I think that there is something in both of them that will be helpful for everyone to read.
—–Original Message
—– From: KWXXXXXXX
Sent: Tuesday, September 29, 2015 12:23 AM
To: info@peyronies-disease-help.com
Subject: Sucess with Big plan
my peyronies and ed was so bad that it ruined my marriage of 19 years, it never hurt very much with a 85 degree bend upward i was not able to get the job done any more. i used varapemil injecions and cholchin until i saw it was only getting worse beofer finding pdi and getting onto a good program that i worked like a son of a gun. i started out low and slow like you said and not much happened in the first two months unitl i got some pretty good doses going with serreta 2/2/4, bromelain 1.2.3, neprinol 2/4/8, msm 3/2/1, l-arg 3/3/1, paba 3/3/1/, vit e, 2/0/0, coq10 1/1/0, vit c 1/1/1, acety carn 2/2/2, stretching almost every day, dmso plus the super copper and e sometimes two a day but at least once every day and the sound machine 3 times a wk. after going like that a bit more than a month the scars and lumps started to be softer and smaller and later after a couple more months they was gone and my curve was gone, i can get pretty hard now when i have to.
KWXXXXX
—–Original Message
—– From: RIXXXXXXX
Sent: Monday. October 5, 2015 8:11 PM
To: info@peyronies-disease-help.com
Subject: Dupy improvement
Hi Dr. H,
I am sorry it took me so long to get around to sending you a report about how I am doing.
I am a 58 year old woman whose grandparents are from the UK. I worked hard with my hands all my life tending show horses all year round and doing a huge garden each summer. Both my hands started to show signs of Dupy around the same time as I recall, and did not advance too badly for a few years but suddenly got worse six years ago. When I started to have trouble holding a hoof pick and mane comb I knew I had to do something, but before having surgery I wanted to see if natural remedies could help me. Almost two years ago I started to do a lot of reading on the DCI website. What you had to say about Dupy was so unlike the medical doom and gloom “let’s get cutting” promotions you read on the web and I was hearing from my doctor. I couldn’t believe anyone had such a helpful outlook and used common sense unlike the approach from all the standard medical stuff I was reading. The more I read the more I understood about me treating me to get me healing better. What a neat idea!!!. Every person’s body does miracles every day, why not get rid of Dupy, it’s only a bunch of dense tissue like a callus that go away without much trouble.
I started on a medium plan and added Coenzyme Q10 right away because I really like it for a lot of different reasons, and I also used heat and mild stretching like we discussed during my phone call with you. I jumped in really hard and went up the scale pretty fast with those vits and things. In my first re-order I switched over to Neprinol, and also kept taking a few Inflamazyme like we discussed. At 7 or 8 weeks into it my husband and I both thought the larger lump on the right palm was smaller and softer, like the lima bean was cooked 10 mins longer so it was softer. The cord on that same hand was thinner and I could tell I was getting more finger movements because I could open my hand wider to hold the grooming brush, and it felt more normal when I washed my face. This got me excited for sure because it proved something good was happening after watching the lumps grow in slow motion for almost a decade. A few more weeks passed and then it seemed like a hit a wall and nothing more changed. I added a few more enzymes to the mix and started taking Bromelain and L-Arginine, and sure enough the cords started to get thinner and I felt more finger movement after a three weeks. The lumps flattened and shrunk down more and now you can hardly see the hard lumps much on the palms at all, and I can flatten the palms down now even the right one. I plan on slowing down on the vits and things after a while when I am sure I see the Dupy is not coming back.
At the end this was my plan, DMSO trio daily usually twice a day, Neprinol 2/3/6, Bromelain 1/2/3, Serretia 1/1/4, MSM 3/2/1, vit E 2/0/0, PABA 2/1/1, ALC 2/2/2, L-arg 1/1/1, , Inflamazyme 1/1/3, CoQ10 1/1/1, stretching fingers back as often as I could during the day but at least once a day with heat, US 3/week on each hand.
At my yearly office visit my doctor was so impressed with my hands he said he was going to call you. I hope this information helps someone. Thanks for your website and all your help.
R IXXXXXXXX
Well there you have it. These Warriors are getting positive results with their PD and DC, and they have given you some insight how they did it. In each case you will notice that they share two traits: First, they worked at making changes to their plans until they noticed the tissue of the PD and DC begin to change; they did not just stay on their starting dosages and hope of something good to happen. Second, they communicated with me, asked questions and put what they learned into their plans.
Many of you dabble with your care and seem to have a casual attitude about self-treatment. As I have said so many times before, the people who do best with this natural treatment are deadly serious and immersed with what they are doing. You can sense from the three progress reports you just read that these people were serious, aggressive and dedicated to their recovery. No messing around, no delays, no forgetting, they were all in and committed. They knew their MD wanted to do surgery and not much else, so they accepted the responsibility for their own recovery. I see a lot of people who hold back and although they say they want to improve, they delay and only play at it. They don’t do very much, and when they don’t get very much – if any – progress, they blame the work I have developed over the last 15 years. If you are floundering, ask for help. To contact me about your problem, please send an email to info@peyronies-disease-help.com
Don’t forget to submit a request to join the hand stretching research group if you qualify.
Merry Christmas to all my friends and Warriors in PD. Enjoy your holiday with those you love, and take care of yourselves. See you next year – it’s coming fast at us! TRH
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