April 1, 2018 PDI Newsletter
Greetings to all PDI and DCI Warriors,
Welcome to this April 2018 Peyronie’s Disease Institute newsletter. Spring is springing nicely here in the Midwest; hope all is well with each of you.
Very busy lately with the lumbrokinase (a fibrinolytic or fibrin destroying) enzyme project which has taken an interesting turn lately. Several readers have asked how this latest research project is progressing, so I will respond. We have seen only slight indication of fibrous tissue change in our lumbrokinase volunteers, so minimal that it is difficult to be sure it is actually present. However, most importantly, we recently have reports of increased blood vessel wall fragility (easy bruising) and greater tendency to bleed in several volunteer subjects when taking a moderate dosage of lumbrokinase. A little more time and experience with lumbrokinase should confirm these findings. The study will not continue if this trend continues and so I should have a more clear and definite conclusion to report next time. Stay tuned.
Once again the newsletter will use the popular format of presenting a recent email exchange I have had with someone in which I have blended my email response directly into their original email, like two emails in one. This is how I often reply to people’s questions since it is a faster and more accurate way to communicate. This email from JFXXXXXXXX was selected because it discusses important therapy questions all of which applies to both Dupuytren’s contracture and Peyronie’s disease treatment.
For those of you who are new to our monthly newsletters, please simply apply the ideas expressed here about Alternative Medicine treatment and dosage to what you are doing for your Dupuytren’s contracture and Peyronie’s disease. Since PD and DC are so similar in many ways, treatment is also similar; what can be done for one problem can fairly well also be done for the other.
Everyone’s spam filter is sensitive to the word P_ _ _ S, a part of the male anatomy. And so I must avoid that word. If I used that word as often as it is written all of your spam filters would reject this newsletter to your junk folder. To avoid this problem, I have substituted the word SHAFT for the word P_ _ _ S.
You will see JFXXXXXXX is doing very well with his PD treatment. One reason for his success is that he is one of those people who asks a lot of questions and is not casual about his treatment. His involvement and enthusiasm have brought him success. Many people I communicate with express trepidation, negativity and reluctance about their treatment from the onset, and they often do not do well with their self-treatment. Others, like JFXXXXXXX, who are more bold and confident about their treatment even from the start of self-care seem to do better. It would be good for some of you to evaluate your mindset and the personal energy you give your treatment plans to give yourselves that advantage.
Read this series of combined emails like the back-and-forth of two people talking while one occasionally interrupts the other to make an important point or answer a question. To understand the flow of the conversation, keep in mind that the text in black is from JFXXXXX and the text in red is from me.
From: Theodore Herazy [mailto:firstname.lastname@example.org]
Sent: Wednesday, March 14, 2018 5:51 PM
Subject: RE: treatment plan questions
Please see below for comments…
Sent: Tuesday, March 13, 2018 10:04 AM
To: ‘Theodore Herazy’ <email@example.com>
Subject: RE: treatment plan questions
The last time I reported about my Peyronie’s disease was several months back before getting your input from the last phone call we had.Those treatment changes we covered made a big difference in my scars and even my ED and lost size. I want to talk to you in a few weeks so I want you to see exactly how I am using my plan including your suggestions since that time. I stopped making any major changes to my plan since the PD started to show progress. I make only slight experimental shifts and switches within the dosage patterns now like you explained to search out better dosages if I wanted to try to improve my results.
DMSO, E & copper once a day
Kegels & groin massage 3 times a week
Nei gong once a day
Manual stretching 20 mins daily
Hot pack once daily before manual stretching
Vitamin E 1/1/0 with food
Vitamin C 1/1/1 with food
Acetyl-L-carnitine 3/3/1 between meals
PABA 2/3/1 with food
MSM 4/4/2 with meals
L-Arginine 1/1/1 with meals
Coenzyme Q10 0/1/0 with meals
Neprinol 3/4/6 between meals
Bromelain 1/1/3 between meals
Serrretia 1/1//3 between meals
I am more religious about following my plan and things like the enzymes and the light stretches after I started getting results. I still don’t like taking all these pills every time I turn around, but I would be a fool to stop now after all the progress I made.
The dents and dings on both sides of the shaft have filled in enough that they are not easy to see any more. And this maybe has worked to correct a bit of bend from 40 down to 15 degrees. Congratulations. Distortions can only change after the scars that caused them have made sufficient changes. First scars change internally, ONLY THEN can bends, dents, hourglasses, lost size and ED problems improve; the penile distortions and lost size do not happen by themselves – they are the result of the internal scar tissue. Get rid of enough of the scar, the shaft should improve or perhaps return to normal. It is always an exciting thing to get news about this kind of progress. Good job; I know it was not easy. You are right about studying the scar surface for changes, there is a lot going on there that I was missing. As I switch my dosage patterns around a bit to see which combinations work best I can pick small differences on the scar surface to one dosage pattern that is not there when I use a different dosage pattern. Wild stuff. Where I notice most change is in the general graininess or fine lumpiness over the surface now, instead of it being smooth and slick like it was before. Here is my theory on what is happening: The scar as it develops has a naturally slick and rather smooth surface; that is how it is made (like a tendon). As it starts to break down and gets reabsorbed it no longer feels smooth and slick because the surface now has openings and unevenness in it from where the collagen and fibrin material is being removed – like small bits of concrete and gravel being taken out of your smooth driveway, leaving you with a bumpy surface. The graininess and small lumps you mention are not from more scar tissue raising the surface, but from dips, valleys and pot-holes being caused by collagen and fibrin leaving the surface – you are not feeling new hills, you are feeling new valleys. Over time I predict that you will notice this graininess and lumpiness become more pronounced and coarse, as more collagen and fibrin leave. When you say your scar surface is now “grainy” and “bumpy” it is only partially descriptive; it is not fully descriptive in a way that would be most helpful to you later. Phrases like “less grainy,” or “hardly any bumpiness” are meaningless becasue they are open to interpretation and mean different things to different people and have no point of reference. You must DESCRIBE or EXPLAIN with an IMAGE the graininess and bumpiness with more detail and similes as best you can. Ask yourself “grainy and bumpy like what?” “What else is grainy like this?” Be specific and creative so you create a clear and objective reference point for later comparison. Bumpy like corduroy? Like when you feel the outside of a plastic bag of uncooked rice? Grainy like the cut end of a 2X4? Like an avocado skin? A white potato (not a red potato because they are much smoother)? The cover of an old light blue loose leaf binder we all used when we were kids? Get an image of a reference point and write it down so you have a baseline for later comparison. Using this image later you will know FOR SURE that your scar has changed. Do not be one of those guys who says to me, “Gee. I don’t know if my plan is working. Maybe I am better. I think the scar is different, but I can’t be sure. Yeah, it is softer – maybe.” Poor treatment and poor results arise when there is no baseline for comparison. As you study the surface for changes do not forget to also keep track of the size, shape and density as well since these will probably change also. Maybe it is because it is easier to notice small changes in the surface of the scar than in the size or density if it. Lately I think I am finding new lumps that were not there before, but these come and go sometimes a few days at a time. And they do not always feel the same, sometimes they are easier to feel and almost feel larger with sharper details and other days they are smaller and feel almost fuzzy in a strange way. Is this something new that means the scars is getting bigger or is developing a new scar layer? These rapid back and forth kind of changes are often due to diet, especially when you are not intentionally altering your therapy plan or dosages. You have not said anything about your diet, so I must wonder if you are making the changes to your diet as I have talked about. If you are not working on those dietary changes, get busy. Please review the dietary discussion in “Peyronie’s Disease Handbook” and see if you can pin it down to something you are eating or to other issues in your diet. If you cannot figure it out let me know and I will throw some ideas around with you. Please help me since I do not want to do anything wrong or to make matter worse. I doubt you are doing anything wrong or greatly different than what you should be doing; you are making too much progress right now to be making many or any real errors. These new nodules are likely the result of the same kind of reduction of collagen that I mentioned above, when we spoke of the change of the scar surface from smooth and slick to lumpy and grainy, like the snow melting and finding the rocks and branches that were there all along below the surface but you now find them because they are not being covered over.
Also I notice that some days when I stretch it is easier to feel a deep dull ache you talk about. When it is not easy to feel the dull ache I have to change my technique from my usual straight traction kind of pull to a slight angle in the direction the shaft is twisted. It is weird but it works. What you are describing also is due to progress and change in your scar tissue. You are no longer easily creating the deep dull ache (DDA) because there is less wrong with you; less dense, less contracted, thinner, and more normal tissue in your shaft than you had before. With a harder to find DDA you must search harder and experiment more because things are more normal than before; there is less tissue that needs gentle stretching so it is more difficult to locate. However, this brings up a really important point. Even though you now have a more difficult time to find a technique that causes a DDA does not mean that you should not use the gentle manual stretching technique; it just means that you must be more patient and clever to find new ways to provoke the DDA response because there are fewer needles in your haystack. There are probably still areas and layers of tissue that must be searched, confronted and gently stretched in a new way. New variations of old techniques often produce the much-desired DDA, so look for them. As long as you can find some way to provoke a DDA there is more work to do and more tissue to reduce.
The Kegels and nei gong I do like I did from the start. I can work up a good sweat doing them and I really feel that my health in general is different in a way I cannot describe. Good for you. I hear that a lot.
My absolute proof that all this is natural PD treatment is working came the other day. I went to my urologist for my annual bladder cancer check and he also checked the PD but he could not find my scar this time. He said that was strange because he has several notes about where it is located with a rough measurements of it. He asked if I was doing anything different, so I told him about your website. He said he did not know much about nutrition for Peyronies but if I felt it was helping I should continue.You should have seen the look on his face when I told him it is still there but is it now down to 5/8” X 1/4”, the density of overcooked pasta, thin as a dime with a tapered edge on the left, and the surface used to be slick and slippery but it is now grainy. He checked me again and then he said maybe feel something but would have to do another ultrasound test to be sure. I told him I would think about the scan (fat chance). It was a hoot. Anyway I knew you would like to hear that little story. Thanks. Hope you got your urologist to think a little about what you are doing – and what he is doing. TRH
Well there you have it. JFXXXXXX does not like taking a lot of vitamins but he is doing it anyway because he sees changes in his Peyronie’s disease. No DC or PD improvement ever comes easily or as fast as you want, but positive changes do occur in about 8-10/1 of the time; 8-10 reports of moderate to marked success for every one report of failure.
Please send in your reports of improvement with your Dupuytren’s contracture and Peyronie’s disease. People want to know what you did to eliminate or correct your problem.
If you want to contact me about your problem, or questions about treatment, please send an email at firstname.lastname@example.org
Stay focused on your treatment plan. See you in May. TRH