Peyronie’s disease blog
Peyronie’s disease is surrounded by a world of misinformation, honest differences of opinion, lack of judgment, as well as total confusion.
Every week I get at least one email from someone who is newly diagnosed with Peyronie’s disease, but doubts that he has it. The email will explain that the writer doubts he has Peyronie’s disease because he has heard that there is a Peyronie’s plaque or scar involved, and since he cannot see one, he doubts the diagnosis is correct. He asks me to tell him if I think he has Peyronies, solely based on the information that his penis is bent.
What does this have to do with Peyronie's disease treatment and blogging? Well, with this Peyronie’s Disease Treatment Forum blog available to any man or woman who deals with the problem of PD, it is far easier to create a library of information and ideas about Peyronie’s disease treatment using Alternative Medicine.
If you are reading this blog looking for answers to an important question, you owe it to yourself and to the larger Peyronie’s disease community to ask that burning question about your problem that you would like explained. There is a very good chance that other people would also like to know more about that same issue. Without your participation in this blog, it will not reach its full potential to help you and others with Peyronie’s disease.
Questions in these areas? Fire away:
- Anatomy of the male or female genitals
- Erections – how do they happen, why is mine weaker than before, how to increase and strengthen mine
- Peyronies disease – any aspect
- Peyronie’s disease treatment – any aspect of medical, surgical or Alternative Medicine treatment
- Intercourse – any aspect
- Relationship problems – any aspect
- Your treatment plan is not going the way you thought it would
Please ask your questions and make your comments to those who have left a comment here. In this way the misinformation, honest differences of opinion, lack of judgment, as well as total confusion of some, can be lifted.
we recently were given the diagnosis of peyronie’s disease, and told there is no cure. my husband has me serching the net for a specialist in the field of this disease and i have come up with nothing. only people that want to sell you something, a book or pills etc. i have just spent 8 hours today and am more confused then when i started. what i have gotten from this day is that he needs to be the one to pick a treatment and several works better then just one, and to be aggressive. I could use a good doctors name out west to go to and a good website that discusses what treatments are being used currently by several people with this disease.
My boyfriend has Peyronie disease and I am not sure what we can expect. It came on suddenly and he is feeling down and has been in a ton of pain. Is there anything we should know or do? Everything we have read says it could go away on it’s own after a couple of months but I hate to see him in so much pain…. that is a long time. Also, he has started taking vitamin E daily because we read it can help…. anything we need to know??? Help!!!
Greetings J,
Has he been seen by a doctor and received a formal diagnosis of Peyronie’s disease, or are you assuming it is PD? It is important that his diagnosis be firmly established medically.
Yes, approximately half of the cases of Peyronie’s disease goes away on its own during the first 12-18 months after onset. This is a critical point to understand about Peyronie’s disease: When you read that PD can and does go away on its own, that is just another way of saying that the body eliminates or heals that case of Peyronie’s disease via the usual methods of the immune system; half of cases of PD are healed by the body naturally. That is important to keep in mind, because at the PDI website we are merely trying to aid or support that natural ability of the body to heal Peyronie’s disease. It is not so strange or unusual a thing that we are attempting to do. The body wants to heal itself of whatever is wrong with it whenever and however it can, even Peyronie’s disease. We are merely hoping to help this process by supplying those minerals, vitamins and enzymes that the immune might need for that healing process. Sometimes it works, and sometimes it doesn’t, but very often it helps in small and great degrees. You will never know if it will help someone unless you try it diligently for a few months. Remember: Peyronie’s disease is healed half of the time, so why not try to help push it in that direction? TRH
Greetings Christi,
I sense your frustration, and I understand it completely. It is a terrible thing to learn that Peyronie’s disease usually results in a permanently shortened penis after futile attempts at surgery, and that no medical cure can be counted on to reverse the problem once it has started. Xiaflex injections are proving to be disappointing with a high rate of serious side effects and a fast rate of recurrence. There are few Peyronie’s disease specialists in the medical field since the problem usually defies treatment so few MDs are drawn to specialize in a problem that typically is a lose-lose situation for doctor and patient. No wonder your search has been limited and frustrating for you, because it is that way for everyone else who has looked down that road. You are not alone.
I developed Peyronie’s disease in 2002 and went through the same futility and anger that you probably feel. I was lucky, and happened to be working with three elderly MDs who had 80-90 years of Alternative Medicine practice experience between them; I was practicing acupuncture in their large nationally well-known holistic practice at the time I developed Peyronie’s disease. I knew going into it that Peyronie’s disease is essentially a hopeless condition that does not have a known cause or cure. But I pressed them (selfishly) to try to figure something out for me to do on the outside chance they could use Alt Med to save me from this Peyronie’s disease disaster. I researched everything I could find and passed it in front of them until I had a small plan outlined that might help me. I worked like this for well over a year as we put our heads together. Eventually, with a lot of refining that small plan grew and got more complex until something began to happen. My internal PD scars started to get softer, smoother and smaller as I added more and more to the plan. I was the guinea pig for this idea and it worked for me. We used it on a few patients and it helped them. A year or two later two of the MDs died and the clinic disbanded. I went into semi-retirement and put this idea on the Internet. The ideas you see are those that helped me plus a lot of new thoughts that have evolved since 2002.
Sorry you do not like the ideas how Alt Med can be used for Peyronie’s disease treatment. We have not found a 1-2-3 or A-B-C kind of Alt Med approach like they use in traditional medicine. we have developed this Alt Med approach to the point where we know how to work and maneuver the large number of therapy items around a bit until we up the odds that a natural healing takes place in a fair number of cases; some get totally healed and some only partially healed. We have found that sometimes our Alt Med ideas work when it is done the way we suggest; not the way you would like it to be, but the way it helped me and hundreds and hundreds of other men. If you want to find a doctor who will do the work for you to treat your problem medically, you can probably use your family doctor for a referral to a urologist who will use the standard medical approach. The urologist will use a few basic drugs for a few months, followed by a pronouncement that surgery is necessary. If that does not appeal to you, I only know of this approach that you find on the PDI website. It is the best thing I can offer. Let me know if I can help you with this Peyronie’s disease that so presses on you. TRH