I spoke with you some time ago about a treatment for Peyronie's disease. I have had my problem for 15 years. Until a few years ago I never even heard of PD. Doctors simply told me to give it time and see if it would go away. They didn't even tell me what it was. When I finally was told of PD I tried verapamil injections and it made the problem worse (another large scar along the injection areas). I do not have a curvature just two large scars and it causes pain and lack of elasticity. I would like to start a program(vitamins and Neprinol), plus the diet mentioned in the book. Can you please recommend a starting course of action?
I am also very large(6'8" about 260 lbs) not heavy just tall. Regarding the diet, does the lack of meat intake include fish? I am not sure how my body will take such dietary restrictions.
One last thing, my scars never seem to change shape or texture like you mention in the book. They are very solid. Due to the length of time I have had this problem and the non changing scars, does this mean I need to manage my expectations?
While the medical profession is supposed to discuss and explain everything about the diagnosis, treatment and prognosis of the condition for which treatment is being given, many doctors do not offer this basic level of care. They rush in and rush out, don't they? The kind of poor care you received for your Peyronie's disease is all too common.
Your response to your verapamil injection series is not uncommon. Most often verapamil is injected in 5-10 different areas of the penis each time, over 8-12 different office visits; if this is true a man can receive up to 120 different injections into a rather small area of the shaft. Repeated injections of any kind of drug when delivered into a small area of the shaft is traumatic to the tissue and can easily cause a scar response because it is just like any other injury that happens to the penis. I have counseled with many MDs who wanted help when they developed Peyronies disease; as a group they all reject the idea of any kind of injections into the penis because they know it is traumatic to tissue, regardless of what drug might be injected.
There is no approved drug treatment of Peyronie's disease, so any time a doctor prescribes a drug it is an experiment. Thus, many doctors have given up using drugs that do nothing, and resort to the old "give it some time while you do nothing and let's see what happens" treatment. In the meantime a man gets worse and wastes valuable time and opportunity during which he could do many different things to try to increase his natural ability to heal and repair like the 50% of men whose PD just goes away on its own. This is where the PDI treatment concept comes in. All we suggest is that a man with PD attempts to increase his natural ability to eliminate his PD by using a wide variety of different natural therapies. To start I suggest you review the information at "Start Peyronie's treatment," found toward the the top of the PDI home page.
I speculate that your penis is straight because your two scars are balanced and causing equal stresses within the shaft, preventing you from having a curved penis when erect. Still they cause after all these years pain and lack of elasticity, which is associated with the dense fibrous tissue irritating the soft tissue of the shaft.
Yes, you can use fish as a protein source as suggested in the PDI diet.
I cannot comment with certainty about your scars not changing shape or density because I have not examined you. However, you admit you have not formally determined the exact size, shape, density or surface features of your scars; you are relying on your memory to judge if your scar has changed, and this is never as accurate as it needs to be when dealing with Peyronie's treatment. For these reasons I take the position that you do not know with certainty if your scar is actually static or not. Since so many men, and myself, have personally noted that their PD scars do change size, shape, density and surface features in response to changes in body chemistry, that you could be mistaken in regard to your scars. This is exactly the reason it is critical that each man with Peyronie's disease clearly knows these various physical features of this scars so he can use this information to determine his immediate response to the self-administered treatment we suggest.
Please let me know how I can be of help to you. TRH
2 thoughts on “My Peyronies disease is worse after a series of Verapamil injections, what can I do?”
I had curvature with only very slight Peyronie’s disease scar tissue, almost undetectable and was still able to enjoy some sex, but after 3 injection treatments, I had multiple lumpy scar sites that were large and painful upon erection. This have not disipated and it's been over 1 month. I no longer even THINK of having intercourse. Unless you are unable to have sex or are already in constant pain, I strongly advise against verapimil treatment for Peyronie’s disease. It is a treatment of last resort in my opinion.
Sorry to hear of your problem. Injections into the delicate tunica albuginea of the penis can cause injury to that tissue resulting in worsening of the Peyronie’s disease. Many MDs will not make injections into the tunica albuginea for that reason, but others do not have a problem taking this risk with some else’s penis. Penile injections, especially a series of multiple injections, can easily cause Peyronie’s disease.
Please review the information found on this website about using Alternative Medicine to assist your body to heal the Peyronie’s disease scar tissue, or at least look at the book “Peyronie’s Disease and Sex” ( http://peyronies-disease-help.com/pdi-product/peyronies-disease-sex/ ) to learn how you might be able to increase your ability to once again engage in sexual activity. TRH