I am a young man in my thirties. My torture with Peyronie's started two years ago. Following masturbation I damaged myself at the tip of my penis. I knew at the time is was a major event and one that would change my life irreversibly for the worse. It was caused by pulling the foreskin back too far with force.
Following it, I had considerable pain for a year and a half. I went to casualty, multiple doctor's but no-one could tell me what it was. Surprisingly, the first doctor I saw guessed maybe Peyronie's because I had a bit of fibrosis at the tip but it was not a nodule – it was clearly calcification along what I thought was a nerve. It soon circled round the head as a thin band. The pain continued and intensified and after a few operations on the skin, a circumcision was suggested as the only cure.
I had that done and it removed the ring of tissue, but no I just had pain when I came to a climax. The original injury happened just before climax so I hypothesized that it was still the same problem. Gradually the pain turned into Peyronie's with a big nodule just behind the head, neither at the top, bottom, left or right but in the middle. Where I had the pain at the top left, scar tissue was forming. The pain was intense, day in, day out. I am a very fit young man and nothing seemed to stop it, sometimes its subsides but then it comes back to remind me and worse than before.
I have tried pentox with Cialis and also Tamoxifen having gone to a specialist. I am quite well studied and just can't understand this disease. I also tried using a stretching device but that was the worst advice in my opinion and stopped quickly afterwards. I have read studies, have read your book and am interested in what happens to younger men. No one seems to know. I am 1% of a sample size of 1% of the population – aren't I lucky. I am not giving up, your book makes a lot of sense which is why I started off with your mid plan and have now bought everything I can get my hands on. I do take pentoxyfilline at the same time though as I feel it does help blood flow although it doesn't fix anything.To summarize therefore, at the moment, I have changed my diet (as much as I can), now just started taking everything on your list (although I am still nervous about DMSO but it is a calculated risk) and pentoxyfiline.
Having said that, it is all slowly getting worse. I have days with intense pain and all the time I have some pain. I think your point about digestion is valid as I do struggle with digestion and find it hard to go to the toilet.
I would really like your help. Currently I have a very fibrous penis all throughout. Sometimes it feels better than others but it isn't good. I am a positive guy but I am at my limit. I have a beautiful girlfriend who doesn't mind and I am great at sex, but I can't climax. I don't actually have pain during intercourse but erections are getting harder.
My personal hypothesis is that Peyronie's is caused by a chemical that is released through damage. In my case it is a nerve at the tip of the penis. This chemical went everywhere due to the great trauma and now the scar tissue is just finding where the chemical is. If I can find the inhibitor, I might get my life back.
What are your thoughts? I may be barking up the wrong tree but I need hope. In short, forget my hypothesis, is there anything I should do. Should I change my treatment because I am younger? Should I take more of one thing and less of another? I am completely open to ideas. Like I say, I think it is beatable at any stage, you just have to find what works for you. I think there are many types of Peyronies caused by many types of things (which is why drug treatments are inconsistent).
Let me know what you think. I really appreciate your approach and thoughts.
Welcome to the large body of men who do not understand Peyronie's disease. PD is a mass of contradictions and irregularities and this accounts for the ongoing difficulty not only in making a diagnosis, but also treatment.
You ask for my thoughts. To begin with, several aspects of your story makes it sound like you have an extremely atypical, or not standard, case of Peyronie's disease.
Your 2nd and 3rd paragraphs are very interesting. Bear with me, but based upon the scenario of the development and progression of your problem as you present it, I can make a different interpretation of your problem. From a slightly different vantage point I interpret your report differently. I can see it is possible that your penile problem was not originally Peyronies. It is possible that you only developed later into Peyronies after the rigors of “a few operations on the skin“, plus a circumcision. Starting a penis problem by pulling the foreskin tightly down tightly during masturbation, a superficial and circular pattern of fibrosis at the tip of penis, and constant severe pain for 18 months are not at all typical of PD; fundamentally, Peyronies is a problem of the tunica albuginea located in the shaft, not in the tip of the penis. Your problem is not even in the usual location for it to be Peyronie's disease. Furthermore, you do not mention a deep nodule in the shaft and you do not mention penile distortion. Very little of your initial complaints during the first 18 months of your ordeal sound at all like Peyronie's disease. It is only later, after you were under medical care and had several penis surgeries for these unusual complaints, when you were probably catheterized several times or used Cialis several times, or were traumatized while using a mechanical penis stretcher, that you started to have complaints more consistent with Peyronies.
I mention this observation because it is important for you to explore the possibility that you are dealing with a complex problem that could actually be two or more different problems that are superimposed on top of each other. Perhaps I am incorrect in this regard, but based on what you have reported in your statement I think the case could be made that you initially had a superficial tissue abrasion or tearing that later developed into fibrosis, and only after receiving drug injections into the shaft during surgery or from catheterization after surgery did you develop PD. Something to think about.
You ask if you should change your plan because you are in your thirties, which you apparently consider to be younger than average to develop PD. Based on many years of experience, you are not young to have PD; many men I would with are in their 30s, and 20s; I deal with many sad cases of teenage boys with PD.
Regardless, whatever your age might be, age is not the reason to change your plan. You should change your plan because whatever you are doing is not working; if your current Peyronies treatment plan is not providing benefit or improvement, and you have not changed it by now, then you definitely should change what you are doing. You did not mention how you are using your medium size plan, or what your individual dosages are, so there is no way for me to suggest how to best modify your plan since I do not know what you are currently doing for yourself.
The best way to handle this is by working together in direct discussion during a telephone call. We can get a lot done in just 30 minutes or so if we put our heads together. Please go to the PDI website to arrange for a telephone call together so you and I can directly discuss your situation in detail. TRH