Is it possible for the Peyronie’s scar to be that small?

Hello,

Please allow me to explain what's going on with me and advise on if I should proceed with treatment.

I've been having painful erections for 6 months now. It was an immediate progression and the pain has not subsided at all. It begins as i'm getting erect and the pain is quite substantial for the first few minutes after which it subsides quite a bit. There is additional pain when I squeeze/flex it…like you would if you tried to stop peeing midstream. This leads me to believe that it's something with the blood stream. The range of motion is extremely limited and is very painful whenever it's moved too much. I'm now at the point where i'm not getting as hard as I used too and part of it is a mental block because I know it's going to hurt. I haven't been able to achieve a full hard erection on my own for a couple months now.

I've gone to my general practitioner and a urologist and left without a resolution. I've searched tirelessly for an answer and peyronie's is the only thing that even remotely fits my symptoms. I've been checked for STD's, did a urine and blood sample, and everything checked out. My hesitancy with the diagnosis is I have no deformity with my penis and I'm unsure of any plaque buildup. There is a very small hardness in the center of my penis when flaccid that is a little painful when I press it. I would relate it to the size of the tip of a ballpoint pen. But it's not rock hard because it still feels somewhat squeezeable. Is it possible for the Peyronie's scar to be that small?

Could I be in the beginning stages and still feel this much pain? Is it safe for me to treat myself as if I have it to see if works? I keep reading about where this could lead and it's quite scary. My experience with traditional doctors has been very frustrating and expensive. The urologist didn't even consider peyronie's until i mentioned it but both doctors checked for it and neither felt any buildup. He said to take some vitamin E and that should fix it. I've been taking an extensive amount for 2 months now and nothing has changed.

'm 32 years old and in great health with an active sex life. I'm extremely concerned with these issues and i feel completely lost in finding a solution…please help.

 

Greetings,

Your story creates a picture of some poor care. 

First some basics about a few statements or observations made about Peyronie's disease in general and your situation in particular.  I will just respond back to what you have mentioned:

  1. Peyronie's symptoms can be rather variable from one man to the next.  You are having more pain, and more consistent pain, than most men experience with PD, but that does not mean it is not PD.   Some men have no pain with their PD condition.  
  2. Not having the advantage of having examined you, I can only speculate about the source of your pain.  My educated guess is that it is not coming from a blood vessel but from the PD scar pressing on the tunica albuginea and another layer of penile tissue called Buck's fascia which is rick in pain fibers.  If you had constant pain, or if your pain coincided with your heart beat I would then consider it could be related to a blood vessel.  Both of these tissues I mentioned could be irritated and stimulated enough to generate pain when being squeezed.
  3. You say you left two medical offices without resolution, meaning they did not come up with the diagnosis of PD.  What did they speculate could be your problem.   Did they just leave you hanging with no ideas, no follow up?  So it is you who has come to this possible conclusion of Peyronie's disease on your own after doing some reading on the internet.  The fact that you mention your blood work was negative makes a case for not having a serious or life threatening problem going on, my speculation is that this supports PD as a possible diagnosis.  Personally, I have to suggest that you go to a third doctor to see if you can find a doctor who will take your problem more seriously than the first two.
  4. Peyronie's disease does not always cause a deformity, especially as early i the problem as you could be at six months duration.  Do not expect all cases of PD to demonstrate deformity, or to have it so soon; some do, and some do not.
  5. The small area of hardness you feel when flaccid that is the size of a ballpoint pen tip, could be your PD scar.  Did you show the MDs this area?  What was their response?  Many times a rushed medical examination will miss a small lesion like this.  You should have shown it to both of them, and demanded more time and attention to your problem. 
  6. Not all PD scars are rock hard. Some are so soft as to be almost undetectable.  This is why so many are missed on examination.
  7. Yes, you could have this much pain in the early stages of your problem.   It is amazing to me that you could have seen two doctors about your PD and not have been given this basic information. 
  8. Considering you were told you have Peyronie's and they only extended vitamin E as a treatment option, it is up to you to determine how you wish to proceed.  It is also up to you to determine the safety and appropriateness of undergoing a therapeutic trial of care for Peyronie's disease using Alternative Medicine  I cannot make that judgment; you have to take that responsibility for yourself.   I have had many men take this approach and were glad that they did.
  9. The PDI website is full of information for you to read and learn.   I suggest that you go the PDI website to learn how to start Peyronie's treatment if that is what you decide to do.  

Good luck to you and let me know if I can answer any questions as you look into this further.    TRH

Peyronie’s Pain

 

Peyronie’s disease pain is different with each man

Peyronie’s disease symptoms – even Peyronie’s pain – can be extremely variable. In fact, one of the things that makes Peyronie’s pain so undependable as a factor on which to create a diagnosis of Peyronie’s disease is that the penile pain is a different presentation from one man to another. Because of the wide variety of Peyronie’s disease pain symptoms, Peyronies treatment can be equally variable when using Alternative medicine.

Peyronie’s pain symptoms

The onset of Peyronie’s pain symptoms can be sudden or slow, but most often will appear in less than a month after direct injury. Often the pain related to Peyronie’s disease is worse at the beginning of the problem, and then gradually improves over time – perhaps in a few weeks or months. Other men have a delayed onset of Peyronie’s disease pain. For all these reasons it is not a reliable way to judge the severity of the condition or to use to calculate the time necessary for eventual recovery.

For many men the pain associated with the actual injury that causes the problem to begin can be greater than the daily Peyronie’s pain that is associated with living with the condition. For others, the pain associated with the actual injury is mild and brief compared to the daily Peyronie’s pain they experience. Again, all of this is related to the variable nature of all Peyronie’s disease symptoms.

Peyronie’s disease pain patterns

Peyronie’s pain most often occurs with an erection during the first six to 18 months after onset. However, pain associated with Peyronie’s disease may present itself in many ways:

  • Only during an erection
  • Only when not erect (flaccid)
  • Only during an orgasm
  • Only when the penis is touched

Peyronie’s pain originates in Buck’s fascia

The scar tissue, also known as a plaque, associated with Peyronie’s disease and the variable pain it can cause can often – but always – be felt below the surface of the skin of the penis as small elevated or flat beads, lumps, bands of slightly to greatly dense and hard tissue. These soft tissue masses are located in a layer of soft tissue in the tunica albuginea. However, the scar in the tunica albuginea does not cause the actual Peyronie’s pain. The pain originates from the many pain fibers found just below the tunica albuginea in another layer of soft tissue called Buck’s fascia.

Apparently, when a man experiences intense or frequent Peyronie’s pain, it is because the scar is large enough or deep enough to press down deeper from the tunica albuginea into Buck’s fascia. And when pain is not as great a complaint, it is because Buck’s fascia is not being irritated by the scar or plaque material.

For a more comprehensive discussion of Peyronie’s disease pain, local penile anatomy and Peyronie’s disease treatment you can start searching the Peyronie’s Disease Institute website at Peyronie’s disease introduction.