What can we do for our sex life after Peyronies gave me a 90 degree curved penis?

I was diagnosed by Dr. Levine about 7 years ago with Peyronies disease when I was 51 years old. When I told him I did not want to be cut on he politely told me he could not do anything more for me. I have read way too many horror stories about Peyronie surgery. Like I think I read on your website it does not make sense to operate on something that has already shown it is going to heal with an abnormal amount of scar tissue.

What I want to know is what can we do for our sex life after Peyronies has left me this way? My wife and me have had to be very careful about our sex life because my upward curve is close to 90 degrees, so there is a lot we can't do any more. We have learned to be satisfied with limited contact because my bent penis prevents complete entry. I am a lucky guy to have a wife who has stayed with me in spite of all this.

Thanks for all that you do.

W.

Greetings W.,

What I have written many times on the PDI website is that a man should be extremely careful and reluctant to undergo Peyronies surgery because of the increased risk of developing even more scar tissue and a worse case of Peyronie's disease after being cut on.  I have warned that before agreeing to undergo penis surgery it is very prudent to first use all of the possible non-surgical and non-drug options possible for at least a year before even thinking about being cut on to remove the PD scar tissue.  I am not against Peyronies surgery; I am against hasty and premature surgery as though it is the only option, and as though it is a simple and sure-fire cure for this terrible problem.  It is not. 

You ask for advice about your limited sex life, but I must back you up a bit and suggest that you might not have a limited sex life if your curve was improved or reduced.  This is a good place to start to help your sex life, by working to improve your Peyronie's disease.  It sounds like you have not tried to increase or support your ability to get rid of your PD on your own.   I suggest that you read How to start Peyronies treatment.

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The subject of sexual problems when Peyronies is in the bedroom is huge, and the subject of possible solutions is complicated.  There is so much to be said about improving sexual performance and compatibility in spite of a curved penis that must refer you to the book, “Peyronie's Disease and Sex.”   I wrote this book a few years back to address this problem that affects most couples who deal with Peyronies;  few couples are exempt; sex problems are common and just a matter of degree.  What I can tell you since writing this book is that almost all people who read it and follow the ideas in it will improve their sexual ability and regain either a small or large degree of their lost sexual pleasure.  As an outside observer in this area I can tell you that I have yet to find a couple whose sex life is not helped by using this book; some to a great degree and some to a small degree but everyone seems to gain something.   TRH      

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Is pycnogenol good or bad for Peyronie's disease?

Good morning,

I have recently ordered the alternative large package and I would like to ask you the following.

I have the Peyronie disease and for other reasons I am taking a supplement of (Solgar) called pycnogenol. If I have well understood this product is related to collagen. Can you please advise me if this is good for the Peyronie's disease or bad and whether I should stop taking it or not?

Thanks/Regards,
Panos

Greetings Panos,

I am very familiar with pycnogenol, which is an extract primarily from the bark of a pine tree, pinus pinaster, although the same pycnogenol can removed from peanut skin, grape seed, and witch hazel bark.  The reason that it is not included in the PDI lineup of therapies is that it has not been subjected to any testing for Peyronie's disease that I can determine.  Not everything possible that could be remotely effective for Peyronie's treatment is included in our PDI treatment concept; only those things that have received a sufficient level of testing and produced some positive research findings but insufficient to be considered a complete cure.   Pycnogenol has not been tested at all in that manner and so will not be considered for inclusion until it is.   

When you consider how to go about treating your Peyronie's condition you have to determine that it is not the scar you are treating but your total body and your ability to heal and repair the PD scar.  The best route for Peyronie's disease treatment is different for each man.   This is why there are so many variations of the different plans that are being used.

Pycnogenol is often mentioned as being effective for treatment of many diverse problems: asthma, allergies, skin problems, elevated blood pressure,  reduced blood circulation,  muscle soreness, pain, arthritis, menopausal symptoms, painful menstruation, diabetes, retinopathy and erectile dysfunction, to name just a few.  It is also commonly used by those who are interested in its anti-aging benefits.  

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It is your decision to continue taking it or not.  TRH

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Is treating penile scar tissue similar to treating Peyronie's disease?

Hi. Dr. Herazy

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My question is regarding the differences and similarities between Peyronie disease and that of scar tissue without a plague, and whether or not treating scar tissue is similar to treating PD. I've been told by 3 urologists that I do not have Peyronie's disease, merely scarring as a result of an injury.

Almost two years ago I suffered the injury to my erect penis during intercourse. It bent awkwardly, causing pain, but I did not show any signs of having suffered a fracture. My original urologist told me I might have bruised it, told me it should clear up in 3 to 6 months, then shuffled me out of the office before I could ask any questions.

Now two years later the pain and curve has progressed to the point of impotency. I believe partly because I suffered subsequent injuries when my wife and I were trying to get pregnant this past winter. Around this time I also woke up abruptly in the night after feeling a tear in my erect penis, causing it to now bend downward with considerable pain without support during erection.

I waited almost a year to see a specialist in my area who is considered one of the best. He is the most recent of the 3 urologist I've seen. I was almost certain he was going to diagnose me with peyronies, but after his examination and an ultrasound he said it is a large scar and not a PD plaque. He gave me Cialis and told me it should clear up in 3 months. I'm really tired of uro's telling me it will clear up in 3 months when it has only become worse.

I hope you can provide your general insights on my condition. I appreciate all you do.

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Regards,

Andrew

Greetings Andrew,

Part of the difficulty of answering emails such as yours is that I cannot get a full sense of all the necessary information I need to offer a reply I can feel comfortable with. You did not indicate why the MDs who have examined you thought you did not fulfill their criteria for making a diagnosis of Peyronie's disease. What symptoms or signs of PD do you not present that would have enabled that diagnosis?

I would like to assist you more, but at best all I can do is to suggest that you consider trying a brief therapeutic trial of care to determine if and how much improvement you might be able to make to assist your effort. Treating penile scar tissue can be similar to treating Peyronie's disease since the concept involves helping the body remove foreign fibrous tissue cells. The PDI treatment protocol could assist the removal of scar tissue in some cases; in your case you could simply give yourself a few months of treatment to determine how you respond.

MDs, even specialists, sometimes make mistakes. This could be substantiated by the fact that all three have been wrong about your problem clearing up in three months. Further, sometimes when one MD makes a diagnosis it happens that a 2nd or 3rd MD that is seen for another opinion will only “rubber stamp” what the 1st one said for reasons of not wanting to make trouble within a tight medical fraternity. It happens. TRH

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How to work for the best chance of recovery from Peyronie’s disease?

Dear Dr. Herazy,

Six months after undergoing a double nephrectomy in July 2009 I discovered that I had symptoms of Peyronie disease.   My kidney diagnosis was papillary renal cell carcinoma and I have been receiving hemodialysis since surgery. I purchased your PD manual in 2010 and have studied it. My self care emphasis has been mostly just tracking the scar closely. I have a 45 degree up curvature; rt side shaft base indent of 1/2 inch when hard from a plaque scarring that feels the size of a postage stamp; a left side shaft base lump the size of a large oval tablet located adjacent  to the urethra. Together these scars produce a severe hourglass just above the shaft base during erection. My Dr. also has identified plaque buildup on the top of the "T" along the whole shaft.  I tried one bottle of neprinol, taking 6 tabs twice a day and did not detect a change.

My request is that I would like to work with you on a structured therapy with the goal of healing these scars and symptoms and hope fully the PD cause. I would like to give myself the best chance for recovery.

Sincerely,

Tim Kay

 

Greetings Tim,

Sorry to hear of your recent health problems.  

Fairly often I am told stories similar to yours in which Peyronie's disease starts after having serious surgery that requires catheterization, as probably happened in your case.  Injury to the penis typically occurs while the patient is unconscious and unaware of the forceful entry of the catheter into the urethra.  

Taking Neprinol by itself is seldom able to reduce the Peyronie's plaque material; a large and diverse program of care must be used to support the body to heal the plaque formation.  I suggest you consider following the largest and most aggressive therapy plan you can to get started in the right direction.  

I would be happy to work with you to answer your questions and provide options along the way.  Please let me know how I can assist you.   TRH 

Peyronie’s Disease Treatment and Copper

Copper and Peyronie’s disease

Many people underestimate the benefits of copper  in Peyronie’s disease treatment. Copper is not like some of the more popular dietary and nutritional superstars like calcium, iron or zinc.   Copper is not as widely discussed because its range of uses within the body are narrow and too technical to be easily explained.

When someone says that calcium is needed to build bones, that is a rather simple and direct connection because calcium is thought of as coming from rocks and bones are hard like rocks.   When someone says that iron is needed to build red blood cells, that also is a rather simple and direct connection because iron is a primary element in hemoglobin, and iron stains things red and blood is red (because of the iron in hemoglobin).  But when someone says that copper is essential for the Krebs citric acid cycle, that is not so easy to think about.

The copper PDI advocates is presented to the body in the form of a copper peptide, which is easily taken into the tissue and used in a wide variety of essential, but small, technical processes.  The copper product we use is formulated by one of the world’s leading authorities on the subject of copper metabolism of the skin, Dr. Loren Pickart.  It is his product that we use to assist the healing of Peyronie’s disease, called Super CP Serum.  It is intended to saturate the tissue, traveling deeper over time with extended use.  Very little copper (about 0.1%) actually gets into the skin, but all the human studies on intact skin, both with GHK-Cu and the newer SRCPs, found positive actions on skin within 2 to 7 days.  Apparently, even at this low saturation level, the tiny  amount of copper that enters the tissue is enough to accomplish the desired results. The Neutrogena company has published very extensive studies in Cosmeceuticals volume 2 that confirm this principle.

The PMD DMSO we use will easily carry the copper-peptides deeper and more quickly than if it was not used.  This is why PMD DMSO is almost always used with this copper peptide product to assist the tissue of the penile shaft absorb the copper peptides and incorporate it at the cellular level. It is theorized that some of the copper is carried away from the area with the blood circulation, while the remainder extends progressively deeper with use. Depth of saturation has to do with several factors: amount applied, frequency of application, duration of application, and unique cellular physiology.

You might want to consider applying these two products in this way:  First, apply 2-3 drops of the Super CP Serum over the sites of the lesion(s).  After a few seconds of light rubbing and you will see and feel that it is quickly absorbed.

Second, flip open the spout of the PMD Topical DMSO Solution, and apply 2-3 drops over the same area and quickly spread it around.  You will likely notice an almost immediate warming sensation where you applied the DMSO; this is the response of the subcutaneous fat layer of this tissue to the penetration of the DMSO – that is how fast DMSO enters the tissue.

You might consider increasing the synergy of this local topical treatment process by also applying the Callisto vitamin E oil at the same time.  Even though the Callisto oil is being mentioned last, it is not applied last; it should be applied either before or after the Super CP Serum – and the PMD DMSO is always applied last, to drive the others into the tissue.

There is an additional benefit of using the Callisto vitamin E when using these other products that was not mentioned on the website: The vitamin E oil tends to keep the skin over the scar from becoming irritated; it doesn’t happen often, but it can occur.  The problem is that the skin of the shaft is thin, delicate and generally doesn’t receive much contact or abuse in the normal course of a day. For this reason, the penis shaft  tends to be easily irritated by a lot of things that do not bother skin in other parts of the body.  Since we don’t know just how sensitive your skin may be to concentrated copper or DMSO, adding in the Callisto oil can keep this problem from occurring.  Most men do not have this irritation response to either product, but you just might be the exception that proves the rule.  With this preventive measure you are assuring that irritation is minimized or eliminated, and so will you will be able to continue uninterrupted with your copper/DMSO therapy. To review why vitamin E is an important part of a PD program, check out the Vitamin E and C section on the website, at vitamin E

Usually progress of copper saturation is judged by evaluation of changes in pain (intensity and frequency), various qualities of the scar (density or firmness, size, shape and number), and penile function (deformity, angle, rigidity of erection, and shape).  Once this process gets started, it may still take additional weeks or months for it to be great enough to be detected.  Dr. Pickart tells of anecdotal information concerning copper and PD, when he informs me that men who apply copper peptides preparations on their penis after general skin irritation often say they wake up at night with erections; this he speculates is due to the activation of copper and zinc SOD which helps normalize nitric oxide vasodilator reactions.

Lastly, Dr. Pickart reports that his company has many hundreds of reports of regular scar tissue vanishing after using his products, with Super CP Serum being the newest of these.  For information about the use of copper in a Peyronie’s disease treatment plan, go to copper and Peyronie’s disease

It comes down to following your diverse Peyronies treatment plan with therapies like copper peptides and PMD DMSO for a reasonable period of perhaps several months, and seeing what happens in your individual case.   Send a question here to the blog and I will do my best to assist you.  TRH

Peyronie's Disease Treatment and Copper

Copper and Peyronie's disease

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Many people underestimate the benefits of copper in Peyronie's disease treatment. Copper is not like some of the more popular dietary and nutritional superstars like calcium, iron or zinc. Copper is not as widely discussed because its range of uses within the body are narrow and too technical to be easily explained.

When someone says that calcium is needed to build bones, that is a rather simple and direct connection because calcium is thought of as coming from rocks and bones are hard like rocks. When someone says that iron is needed to build red blood cells, that also is a rather simple and direct connection because iron is a primary element in hemoglobin, and iron stains things red and blood is red (because of the iron in hemoglobin). But when someone says that copper is essential for the Krebs citric acid cycle, that is not so easy to think about.

The copper PDI advocates is presented to the body in the form of a copper peptide, which is easily taken into the tissue and used in a wide variety of essential, but small, technical processes. The copper product we use is formulated by one of the world’s leading authorities on the subject of copper metabolism of the skin, Dr. Loren Pickart. It is his product that we use to assist the healing of Peyronie’s disease, called Super CP Serum. It is intended to saturate the tissue, traveling deeper over time with extended use. Very little copper (about 0.1%) actually gets into the skin, but all the human studies on intact skin, both with GHK-Cu and the newer SRCPs, found positive actions on skin within 2 to 7 days. Apparently, even at this low saturation level, the tiny amount of copper that enters the tissue is enough to accomplish the desired results. The Neutrogena company has published very extensive studies in Cosmeceuticals volume 2 that confirm this principle.

The PMD DMSO we use will easily carry the copper-peptides deeper and more quickly than if it was not used. This is why PMD DMSO is almost always used with this copper peptide product to assist the tissue of the penile shaft absorb the copper peptides and incorporate it at the cellular level. It is theorized that some of the copper is carried away from the area with the blood circulation, while the remainder extends progressively deeper with use. Depth of saturation has to do with several factors: amount applied, frequency of application, duration of application, and unique cellular physiology.

You might want to consider applying these two products in this way: First, apply 2-3 drops of the Super CP Serum over the sites of the lesion(s). After a few seconds of light rubbing and you will see and feel that it is quickly absorbed.

Second, flip open the spout of the PMD Topical DMSO Solution, and apply 2-3 drops over the same area and quickly spread it around. You will likely notice an almost immediate warming sensation where you applied the DMSO; this is the response of the subcutaneous fat layer of this tissue to the penetration of the DMSO – that is how fast DMSO enters the tissue.

You might consider increasing the synergy of this local topical treatment process by also applying the Callisto vitamin E oil at the same time. Even though the Callisto oil is being mentioned last, it is not applied last; it should be applied either before or after the Super CP Serum – and the PMD DMSO is always applied last, to drive the others into the tissue.

There is an additional benefit of using the Callisto vitamin E when using these other products that was not mentioned on the website: The vitamin E oil tends to keep the skin over the scar from becoming irritated; it doesn’t happen often, but it can occur. The problem is that the skin of the shaft is thin, delicate and generally doesn’t receive much contact or abuse in the normal course of a day. For this reason, the penis shaft tends to be easily irritated by a lot of things that do not bother skin in other parts of the body. Since we don’t know just how sensitive your skin may be to concentrated copper or DMSO, adding in the Callisto oil can keep this problem from occurring. Most men do not have this irritation response to either product, but you just might be the exception that proves the rule. With this preventive measure you are assuring that irritation is minimized or eliminated, and so will you will be able to continue uninterrupted with your copper/DMSO therapy. To review why vitamin E is an important part of a PD program, check out the Vitamin E and C section on the website, at vitamin E

Usually progress of copper saturation is judged by evaluation of changes in pain (intensity and frequency), various qualities of the scar (density or firmness, size, shape and number), and penile function (deformity, angle, rigidity of erection, and shape). Once this process gets started, it may still take additional weeks or months for it to be great enough to be detected. Dr. Pickart tells of anecdotal information concerning copper and PD, when he informs me that men who apply copper peptides preparations on their penis after general skin irritation often say they wake up at night with erections; this he speculates is due to the activation of copper and zinc SOD which helps normalize nitric oxide vasodilator reactions.

Lastly, Dr. Pickart reports that his company has many hundreds of reports of regular scar tissue vanishing after using his products, with Super CP Serum being the newest of these. For information about the use of copper in a Peyronie’s disease treatment plan, go to copper and Peyronie's disease

It comes down to following your diverse Peyronies treatment plan with therapies like copper peptides and PMD DMSO for a reasonable period of perhaps several months, and seeing what happens in your individual case. Send a question here to the blog and I will do my best to assist you. TRH

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