Should I use Neprinol as part of my Peyronie’s disease treatment?

Dear Dr. Herazy:

I hope this message finds you and yours in good health.

It has been only three months that I “found” the PDI website after being suffering Peyronie’s disease for more than four years. I was diagnosed back in 2008 approximately when I went for pain on erections (reflected mostly on the front of the penis) to the current curvature of approximately 25 degrees upwards bending a bit to the right as well.

Due to the initial treatment in my country (Cuba) I got initially Vitamin E and then even direct injections on the plaque of Interferon and sessions of laser.  None stopped the bending process after pain with erection disappeared.  Then I stopped using Vitamin E, suspended laser and the injections and changed to an urologist that has been working on using natural pills made from bee’s propoleo.  I have been taking these pills for more than two years before going to bed (and at least three hours after my last meal).  This Dr. also used as a method the measurement of the curvature and sporadic ultra-sounds to keep track of the degrees of the curvature.  I must say that in more than two years the curvature seems to keep being of the same degree (not healing but not bending either).  Unfortunately for me and others this Dr. emigrated.  He was substituted by another urologist who seems to have more faith in continuous ultra-sounds to compare the process of growth of the plaque.  I skipped going to consultation like a year ago.  It must be pessimism or lack of faith that I will solve this disease.

I have gone through serious stress in my own marriage and I feel somehow ashamed that I would not be able to find a woman that will cope with this disease in my country if I decide to divorce my wife. I have had all the reasons to divorce my wife but I feel stuck with her. You know, being from a Latino country and culture machismo is a big thing.  I am 52 BTW.

Since I found about PDI I designed my own plan which is currently as follows:
1- I am taking daily at breakfasts:
a- PABA (500 Mg)
b- Acetyl L-Carnitine (500 mg)
c- Glucosamine with MSM (500 mg)

2- I also take daily around 3 PM: MSM (500 mg)

3- I take as well a pill daily 3 hours after dinner of Propoleo

I do not have enough resources but I am ready to pay for whatever even if I have to sell my belongings.  So my question to you is what you would suggest someone in my stage of Peyronie’s disease to buy?  I know I should buy your books (re: “Peyronie’s Disease and Sex and Peyronie’s Disease Handbook) but what else, please?

Should I use Neprinol?  Should I go back to Vitamin E being added to everything I am using already?

Being in the Caribbean (and subject to a US Embargo) the only way I would have to get all I need will be through friends living in the States visiting my country twice a year.  I will have to reveal my disease to one of them so to seek his help.  I am ready to do whatever it takes.

Best regards,

M. C.
Havana, Cuba

 

Greetings M.C.,

So sorry to learn of the difficulty you are having in finding and using a good Peyronie’s disease treatment.  You are to be commended for working so diligently to help yourself.

While I understand why you have been forced to try to duplicate a PDI-type treatment for Peyronie’s disease using substitute products since you cannot get them from PDI in the U.S., this is a great problem.   It is very likely that the quality and subsequent quantity of actual useable nutrients that are available to your body are not sufficient to help your tissue heal and eliminate the Peyronie’s plaque.    Just because the label might say there is 500 mg. of PABA or acetyl-L-carnitine in a product does not mean it is of sufficient quality to help your tissue heal, or that it is even present in the pill.   This is why I insist that men who are serious about eliminating their PD will only use those products that I have had good success with against Peyronies.   Correction of this problem is too important to take a chance that you could be using questionable or poor quality therapy. 

As a general comment concerning what you are currently doing,  a basic problem is that you are only using internal-type therapy items and no external therapies such as DMSO,topical copper and vitamin E, manual stretching or non-penetrating acupuncture treatments.

Another general comment is that you are apparently taking those therapies you currently have available but you have not tested or compared during use against the size, shape, density or surface features of the PD scars to determine the correct dosage.   In other words, you are swallowing a lot of pills hoping something good will happen to you.  But that is not how the PDI process works.   I want you to know the exactly correct dosage to make the best progress possible.

Yes, both books are a wealth of practical information; they will help you toward your recovery.  

Neprinol is a great Peyronie’s therapy, but by itself I have not seen it be very effective; it must be combined with other therapies for maximum benefits to occur.  Please refer to the PDI website for more information about this aspect of treatment.In addition, when you order Neprinol from PDI you will be given specific information about how to use it for maximum recovery benefit.  See Peyronie’s disease treatment with Neprinol.

Using vitamin E requires that it is the right kind of vitamin E and it is of excellent quality.   I cannot advise about using what you currently have been taking because I have no idea if it will be good enough to help you; it could be a waste of your time, effort and money.

Lastly, you are not the only person who we help receive PDI therapy products from visiting relatives.  Please send me an email to alert me when you are ready to place your order and I will see to it that we get this done as economically and effectively as possible for you.  Please keep me informed and I will do all I can to help you.  TRH     

 

Should I continue with the same Peyronies therapy and for how long?

On 4/15/11 I suffered a trauma to my penis during sex, (no black and blue or bleeding), my girl leaned too far back while on top. I went to the urologist 2 days later experiencing pain and a lump at the base. He suggested 4 weeks of abstinence. Unfortunately that didn't work and I searched the internet for some answers. I am 47, of good health, exercise regularly, no health problems. I did the enzyme therapy,Vita-E and C, PABA and applied the Thackers formula every night. It has been 3 months now and no change in the lump at the base. I have an hour glass shape, no bend. The only change was the pain subsided within the first 2 weeks but the lump only changes size when erect it's larger and smaller while flaccid. This has been constant since the beginning. Should I continue with the same Peyronie's therapy and for how long? Please reply with any suggestions.

 

Greetings,

You ask for suggestions:

1. While abstinence might have been wise during the very acute stage of injury, it is poor Peyronie's disease treatment.  I suggest ice and anti-inflammatory measures (essential fatty acids, aspirin, etc) would have served you better.     

2. I do not know what you mean when you say you "did enzyme therapy, Vita-E and C, and PABA."   That does not tell me enough; you need to provide dosage, frequency or timing for how how you used them.  That makes a tremendous difference for the possibility of success.  Just popping pills in hopes that something works is usually not helpful and it is definitely not the way PDI suggests anyone conducts good therapy.  I cannot comment on the kind of treatment plan that you followed without knowing more about it.  I suggest you provide more information.

3.  Further, it appears that while you got your idea for using vitamin, E, vitamin C and PABA from the PDI website but you did not get your therapy products from PDI.  This is often a mistake since you have no assurance about the quality of those products or how to use them.  People who visit the PDI website for a few ideas and then experiment on their own with only partial compliance to our ideas, usually earn partial results.  I suggest you made a big mistake by deciding to experiment when you should have been actively treating yourself with known products of high quality.

4.  When you say their is no change in the lump at the base of your penis, what do you mean?  What is the current size, shape, density and surface features of that lump?  If you do not know the specific answer to those questions, I suggest you are only guessing if your lump has or has not changed.     

5.  You say since the time of your injury the lump changes size when erect compared to being flaccid, but you also say you were not black and blue as a result of the initial injury. This seems to be contradictory. Since I am not able to verify this information, I would suggest that you might be mistaken on this point. 

6.  You ask if you should continue your therapy and for how long.  You did not tell me enough about your therapy or your lump so that I can answer that question. Please provide those details.

7.  Based on the information you provided, you "did enzyme therapy, Vita-E and C, and PABA." for about two months.  That is a short time for whatever you did.  I suggest you are being too hasty judging the effectiveness of care.  This tissue is often slow to respond.

8.  I suggest you might not have Peyronie's disease at this time; you might be on your way toward it but you might not have it at this time. You notice I used the word "might" three times in that last sentence.  This is because I am unsure since your injury happened less than four months ago, and you did not present your story in a way that is typical of Peyronie's disease. My guess is that you are still in the acute stages of a soft tissue injury and that you should consider doing more to reduce the active inflammation at this time.

9.  My last suggestion is the most important:  Learn more about the correct Alternative Medicine treatment of Peyronie's disease by spending more time reading about it in the PDI website.

Good luck to you.  TRH

What is the difference between DMSO in gel and liquid form?

Online the PDI site says your DMSO LIQUID is more effective than the GEL. I fear the topicals I use won't penetrate as deeply if i were to use the liquid? How is effectiveness different?  Thank you.

Greetings,

Both the gel and liquid format are effective in their own way, depending on what you want to accomplish. Read DMSO in Peyronie's Therapy.

We have determined that the DMSO liquid penetrates faster than the gel, but not only a little faster.   And we have determined that the DMSO gel penetrates deeper and carries more therapy agents with it.  For this important reason in 2009 PDI converted both the Dusa Sal DMSO (Dupuytren contracture) and PMD DMSO (Peyronie's disease) products to being made with a gel base.  It makes sense to sacrifice a little speed of penetration to gain depth and amount of therapy delivered to the tissue involved.   TRH

Peyronie’s Treatment Sensations

Strange reaction to Peyronies therapy

Every now and then I get a question about the variety of unusual sensations and reactions that men notice during Peyronie’s treatment, or immediately after, a particular therapy used in Peyronies treatment.  These are the Peyronie’s disease therapies most often associated with this kind of response:

  1. Genesen Acutouch Pointers
  2. Manual stretching method found on the CD
  3. DMSO PMD formula
  4. Super CP Serum copper peptide ointment

Most often the sensation is described as a "tingling” or “aching” or “electrical” sensation in or near the area of treatment.  It can be felt during or within the hour any of these therapies are applied.  The intensity can be variable from time to time it is felt; sometimes very mild and hardly noticeable, and at other times enough to wake a person from a sound sleep. Sometimes the response occurs each time the treatment is done, and for other men the reaction occurs every now and then at irregular times.

If you experience this kind of reaction in the area of your Peyronie’s scar, do not become alarmed. It is common and usually signals some good response to your Peyronie’s treatment as changes are occurring in the condition of the scar.

This is not something that has been studied much in the scientific literature since those researchers prescribing drugs or standard medical procedures for PD do not get the kind of reactions and responses that occur while following the Peyronie’s Disease Institute therapy principles.  They do not report this kind of reaction because they do not make the kind of rapid changes that are seen in men using the PDI protocols.

Therefore, there is no research that has been done to explain this phenomenon.  It is my theory that these reactions are due to the rapid changes that take place in the tissue in and around the scar material.  During or after a particular Peyronie’s treatment a change may occur in the tension and length of the otherwise contracted scar material of the penis.  These alterations of tension and position of the tissue layers could easily explain the unusual sensations that occur. I find from my own treatment experience, and that of other men who have had improvement in their Peyronie’s disease, that these "moving" or “tingling” or “aching” sensations appear when the scar is undergoing some level of change (improvement).  Many men come to count on the appearance of these changes to herald improvement of their scars from time to time.

It is most probably NOT just one therapy or just the one product causing this usual sensation.   It is closer to the truth to say that these sensations are the sum total of all the synergistic efforts that are included in your therapy plan. The problem (a good problem) with using so many of these therapies together is that you will never be able to accurately say which one did the most or least for you.   A synergistic Alternative Medicine therapy plan is a group effort, with all therapies making some contribution to whatever happens to you.

Please email your questions about Peyronie’s disease treatment to this blog.

Peyronie’s Disease Treatment Results

Effectiveness of Alternative Medicine Peyronie’s disease treatment

Many people want to know about the effectiveness of this Alternative Medicine method for Peyronie’s disease treatment that is being used by the Peyronie's Disease Institute.

All day long I deal with men from around the world – like you – who do not have to report back to me. I have no control about how, if, and when anyone uses their various Peyronies therapy.  The information presented on the PDI website is available for people to use, and there is little to be done to assure the ideas and information is used correctly. In the casual relationship we both enter into, there is no guarantee you or anyone else will use any of these products as I suggest they be used.

You know how people can be.  I can only hope the suggestions I make are given fair consideration, and application of my suggestions and ideas are made in the correct way. PDI has no way of knowing how any of these procedures are being used.  This is a most important point to consider because how these products are used determines the results that are earned. PDI stresses the importance of multiple therapies to maximize the effectiveness of synergy, and this is where most of the discussion of treating PD seems to center: How to go about creating a synergistic effect and how much to develop for the best response possible.

I get back bits and pieces of information from men, here and there. But guys are guys, and so the feedback I receive back is limited in relation to the large amount of time, effort and information I put out to the PD community. But from the information I receive on an irregular basis, I can tell you candidly I see strong evidence that the more that a person does to knock that scar out of the tissue the greater the synergistic effect and the greater the likelihood for success.

Peyronie's treatment and synergy

From an Alternative Medicine perspective, success in treating Peyronie’s disease comes down to synergy. You recall that synergy (sin’-er-je) is the interaction of two or more substances or forces that when combined tends to produce a total effect that is greater than the sum of the individual elements. A short explanation of synergy is “1 + 1 +1 = 5”. Taber’s medical dictionary defines it as “the harmonious action of two agents such as drugs, or organs such as muscles, producing an effect which neither alone could produce, or an effect that may result which is greater than the total effects of each agent operating by itself”.

The Peyronie’s treatment philosophy of PDI  makes a lot of sense when you think about taking advantage of the power of synergy.  We are suggesting that you take advantage of a simple and frequently seen phenomenon that occurs all around us every day, just as in other applications commonly seen in medical practice, architecture, agriculture, or any other part of life. The synergistic effect applies in countless areas and situations, and treatment of Peyronie’s disease is no different. Therefore, the synergy of multiple therapies selected from successful PD research and studies should result in an improved ability of the body to heal and repair.

While most men agree that the concept of synergy can be used to their benefit, they seem reluctant to use it. Why this is so is a matter of speculation. For the most part their hesitance to employ synergy aggressively with multiple therapies is based on financial considerations (money problems) or skepticism and caution that this process is too good to be true (fear of being lied to). In response to both of these possible reasons, PDI has done as much as possible to clear the way to effective use of these synergy therapy principles.

For those who have money troubles we have placed prices that are the most competitive and discounted possible. For those who are skeptical and concerned about being given false hope, PDI has taken great lengths to document the research and effectiveness of the many therapies that are used. For the most part, personal opinions are avoided and research results are used to explain our choices. The rest is up to the reader. Either this form of therapy makes sense or it does not. It either is something that appeals to you or it does not. You either understand the concept of synergy or you don’t.  It is the reason that MDs have so much trouble with patients when they start putting them on more than one drug – when combined, the synergistic effect of multiple drugs begins to magnify, often causing drug reactions that most people have come to be concerned about.  In the area of Alternative Medicine the synergistic results tend to be beneficial because the substances are basically beneficial and desirable to the organism. When given in large measure the results earned from Alternative Medicine measures tend to be positive and enforce a positive response.

No guarantee for Peyronie's disease treatment

Peyronies is an extremely tough problem.  No one can promise results for ANY health care problem, let alone PD.  You know, some people never recover from a common cold, and some people can have a broken bone that does not heal.  No reasonable person can make guarantees of success.  So much is yet unknown about PD that we are still working on the treatment concepts.  You must do your best, do as much as you can, and do it for enough time for your tissue to respond.

How well you respond to this form of Peyronies treatment is dependent on your effort. Like the old saying goes, “You get out of it what you put into it.”  If you want to develop your own personal Peyronie's cure you must be ready to work for it. PDI will help you.