Tag Archives: peyronie’s treatments

How to help my Peyronies disease that started after using Propecia for 14 years?

Posted on by Dr.Herazy

Dr Herazy,  I appreciate the work with Peyronies disease you have done and are doing. I have read your newsletters with great interest over the past year or so. I would love to get your opinion when you have time.

I have Peyronie's disease or what has been diagnosed as Peyronies disease due to the upward curve. However, mine appeared rather spontaneously. I had no injury. I have no pain. The curve does not seem to be changing (for the better or worse).

I read somewhere on the internet there appears to be a link between Propecia & Peyronies. I suspect mine might be similarly related as I took Propecia daily from '97? (or whenever it was approved as a “hair loss” preventive measure) until 2012 when I read of the possible connection.

Have you heard of this? If so, would Peyronie's treatment be the same?

I can feel a mass about the size of a dime—it feels like it does not go very deep—I mentally picture something as thick as a nickle although that may not be correct.

Things I've done:
Called my Doc May/June 2011 (as soon as I noticed)—referred me to a urologist
Saw the urologist—referred me to a specialist in VA Beach
Saw the Peyronies specialist in Nov 2011—prescribed Potaba, Vitamin E, L-Carnitine, & Cialis

Still taking all but the Potaba

May/June 2012 –Saw a specialist @ Johns Hopkins—-had not heard of any connection between Propecia & Peyronie's disease — said to come back whenever it reached the point of preventing intercourse & they would be glad to do surgery

August 2012–Saw a Peyronies specialist @ Mayo (liked him much more)—he said there wasn't much that could be done differently than I was doing except maybe try a vacuum pump—-I've tried but w/ no success

Any suggestions for what I can do to help my Peyronie's disease would be appreciated.

Thanks

Jim

Greetings Jim,

The Peyronie's disease specialist who was unaware of a connection between Propecia and Peyronies is either sadly unaware if what is going on in the world, or just did not want to spend the time to talk to you about the mounting evidence against Propecia in regard to Peyronie's disease and several other health problems.  For information that might be of interest to you please read Another case of Propecia and Peyronie’s disease.  In the absence of known trauma and known genetic predisposition, Propecia (finasteride) causation is an interesting possibility to consider.

If you do indeed have a case of Peyronies disease caused by Propecia the natural treatment would be essentially the same as for cases caused by trauma or other chemical causation. 

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I suggest that you consider trying to increase your natural ability to heal and correct the damage done to you that resulted in a Peyronies scar.  From my experience the more aggressive and consistent the treatment, when guided by the response of the scar structure to your therapy plan, the more likely you will help your body to heal.   A good place to start reading is How to start Peyronie's disease treatment.  TRH

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Thacker’s Formula – Other Peyronie’s Treatment Questions

Posted on by Dr.Herazy

Thacker's formula and other Peyronie’s disease treatment questions

Perhaps a few times a month someone emails a question to me about Thacker's formula.  This legendary Peyronie’s treatment – called Thacker’s formula because of the Dr. Thacker who is said to have created it – contains a specific ratio of Castor oil, DMSO and apple cider vinegar.  Although I know the exact proportions to make this Peyronie's treatment I will not disclose this information here because I can not provide in this space all the details for correct use that are necessary to use it correctly and safely.

Along a similar line, I am sometimes asked if I know anything about using various things like herbs for herbal Peyronie’s disease treatment (ginkgo biloba, echinacea), a micronutrient (Coenzyme Q, EPA), or some type of old home remedy (garlic, Castor oil, olive oil) that might be used as a Peyronie’s disease cure.   They want to know what I would think about using the Thacker's formula or other treatment, and why don't any of these types of treatment appear in the PDI lineup of therapies?

In order for any therapy or procedure to be included in the PDI lineup of 14 potential Peyronie’s treatments, it has to have either been applied specifically in treatment of PD in a series of scientific studies and proven at least 50% effective in several trials (even though it might have done poorly in others), or it must have demonstrated good success and acceptance within the scientific community for treatment of other unrelated health problems (acupuncture and homeopathy).  With this simple criterion we establish some level of scientific credibility for those therapies in our PDI lineup, and further increase the possible effectiveness of therapy when several of these are united in a synergistic program of care.

There are probably some really good Peyronie’s disease treatment ideas that could be actually very effective.  But who among us wants to spend his time, effort, money, and most importantly, his opportunity to get over his Peyronie’s disease by experimenting with theories that have absolutely no proven ability to influence the body to promote healing? I did not want to waste my time on theories of questionable merit, when I knew there were many available that had already achieved some level of success.  This last group seemed to be a better place to look for answers, than chasing unproven ideas.

Edgar Cayce’s castor oil pack might indeed be an effective Peyronies’ disease treatment, but for one reason or another it has not been subjected to even minimal scrutiny for PD.  The goal of recovering from Peyronies is too great to use an untried treatment, when there are so many others of higher credibility and logic to work with.

Thacker's formula does not meet Peyronie's treatment guidelines

PDI was started on the basis of using treatments of some level of known and proven merit, and uses this standard today to determine what additions will be recommended and used in future therapy plans.  Rumors, stories, and speculation you read about on a Peyronie’s forum are not enough.  Alternative Medicine employs early science to see through the maze of superstition and learn the truth of what may or may not work to regain health.  These are the principles used to formulate the current Peyronie’s disease treatment strategies you have learned about.  We are already working on the outer rim of established medical practice, but we must be careful to not go too far away from common sense and valuable scientific information that will help us achieve our health goals.

Usually, my suggestion for someone who wants to use such a new Peyronie’s treatment is to do it in combination with several other known and better proven therapies already in the Peyronie's Disease Institute lineup.  This way there is back-up treatment, and the total effort will create a therapeutic synergy.  Never is it suggested to use only the one therapy of any type, proven or unproven.

So, if you are just adding in an extra type of therapy because you read about it on a Peyronie’s forum, I say, all the more power to your curiosity and sense of adventure, but please do not use it exclusively as the treatment you provide for yourself.

While there is no reason to believe there is any potential harm in using Thacker's formula correctly, and perhaps great therapeutic benefit,  at this time I cannot endorse the use of Thacker's formula because it is essentially untested and unproven in any meaningful way.  There is a lot of good information about sensible Peyronie’s disease treatment, with reasonably good results in research testing, that should be used in a broad based  rehabilitation program.

Peyronie’s Disease Treatment Question

Posted on by Dr.Herazy

Common question about Peyronie’s treatment

Every now and then someone emails a question to me about an herbal Peyronie’s disease treatment (ginkgo biloba, echinacea), a micronutrient (coenzyme Q, EPA), or an old home remedy (garlic, castor oil, olive oil) that might be used as a Peyronie’s disease cure.  Along a similar line, I am sometimes asked if I know anything about a legendary Peyronie’s treatment known as Thacker’s formula, what I would think about using the treatment, and why does this treatment not appear in the PDI lineup of therapies?

In order for any therapy or procedure to be included in the PDI lineup of 14 potential Peyronie’s treatments, it has to have either been applied specifically in treatment of PD in a series of scientific studies and proven at least 50% effective in several trials (even though it might have done poorly in others), or it must have demonstrated good success and acceptance within the scientific community for treatment of other unrelated health problems (acupuncture and homeopathy).  With this simple criterion we establish some level of scientific credibility for those therapies in our PDI lineup, and further increase the possible effectiveness of therapy when several of these are united in a synergistic program of care.

There are probably some really good Peyronie’s disease treatment ideas that that could be actually very effective.  But who among us wants to waste his time, effort, energy, money, and most importantly, his opportunity to get over his Peyronie’s disease by experimenting with theories that have absolutely no proven ability to influence the body to promote healing? I did not want to waste my time on theories of questionable merit, when I knew there were many available that had already achieved some level of success.  This last group seemed to be a better place to look for answers, than chasing unproven ideas.

Edgar Cayce’s castor oil pack might indeed be an effective Peyronies’ disease treatment, but for one reason or another it has not been subjected to even minimal scrutiny for PD.  The goal of recovering from Peyronies is too great to use an untried treatment, when there are so many others of higher credibility and logic to work with.

PDI was started on the basis of using treatments of some level of known and proven merit, and uses this standard today to determine what additions will be recommended and used in future therapy plans.  Rumors, stories, and speculation you read about on a Peyronie’s forum is not enough.  Alternative Medicine employs early science to see through the maze of superstition and learn the truth of what may or may not work to regain health.  These are the principles used to formulate the current Peyronie’s disease treatment strategies you have learned about.  We are already working on the outer rim of established medical practice, but we must be careful to not go too far away from common sense and valuable scientific information that will help us achieve our health goals.

Usually, my suggestion for someone who wants to use such a new Peyronie’s treatment is to do it in combination with several other known and better proven therapies already in the PDI lineup.  This way there is back-up treatment, and the total effort will create a therapeutic synergy.  Never is it suggested to use only the one therapy of any type, proven or unproven.

So, if you are just adding in an extra type of therapy because you read about it on a Peyronie’s forum, I say, all the more power to your curiosity and sense of adventure, but please do not have that constitute the majority of what you do for yourself.

Try not to become so desperate that you grab at straws. There is a lot of good information about sensible Peyronie’s disease treatment I can offer if you need help with your rehabilitation program.

Peyronie’s Disease Treatment Question

Posted on by Dr.Herazy

Peyronie’s treatment that are not mainstream

Every now and then someone emails a question to me about an herbal Peyronie’s disease treatment (ginkgo biloba, echinacea), a micronutrient (coenzyme Q, EPA), and old standby like vitamin E, or an old home remedy (garlic, Castor oil, olive oil) that might be used as a Peyronie’s disease cure. Along a similar line, I am sometimes asked if I know anything about a legendary Peyronie’s treatment known as Thacker’s formula, what I would think about using the treatment, and why does this treatment not appear in the PDI lineup of therapies?

How is a Peyronie's treatment method selected by PDI?

In order for any therapy or procedure to be included in the PDI lineup of 14 potential Peyronie’s treatments, it has to have either been applied specifically in treatment of PD in a series of scientific studies and proven at least 50% effective in several trials (even though it might have done poorly in others), or it must have demonstrated good success and acceptance within the scientific community for treatment of other unrelated health problems (acupuncture and homeopathy). With this simple criterion we establish some level of scientific credibility for those therapies in our PDI lineup, and further increase the possible effectiveness of therapy when several of these are united in a synergistic program of care.

There are probably some really good Peyronie’s disease treatment ideas that that could be actually very effective. But who among us wants to waste his time, effort, energy, money, and most importantly, his opportunity to get over his Peyronie’s disease by experimenting with theories that have absolutely no proven ability to influence the body to promote healing? I did not want to waste my time on theories of questionable merit, when I knew there were many available that had already achieved some level of success. This last group seemed to be a better place to look for answers, than chasing unproven ideas.

Edgar Cayce’s castor oil pack might indeed be an effective Peyronies’ disease treatment, but for one reason or another it has not been subjected to even minimal scrutiny for PD. The goal of recovering from Peyronies is too great to use an untried treatment, when there are so many others of higher credibility and logic to work with.

PDI was started on the basis of using treatments of some level of known and proven merit, and uses this standard today to determine what additions will be recommended and used in future therapy plans. Rumors, stories, and speculation you read about on a Peyronie’s forum is not enough. Alternative Medicine employs early science to see through the maze of superstition and learn the truth of what may or may not work to regain health. These are the principles used to formulate the current Peyronie’s disease treatment strategies you have learned about. We are already working on the outer rim of established medical practice, but we must be careful to not go too far away from common sense and valuable scientific information that will help us achieve our health goals.

Usually, my suggestion for someone who wants to use such a new Peyronie’s treatment is to do it in combination with several other known and better proven therapies already in the PDI lineup. This way there is back-up treatment, and the total effort will create a therapeutic synergy. Never is it suggested to use only the one therapy of any type, proven or unproven.

So, if you are just adding in an extra type of therapy because you read about it on a Peyronie’s forum, I say, all the more power to your curiosity and sense of adventure, but please do not have that constitute the majority of what you do for yourself.

Try not to become so desperate that you grab at straws. There is a lot of good information about sensible Peyronie’s disease treatment I can offer if you need help with your rehabilitation program.

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Treatment for Peyronie’s Disease with Alternative Medicine

Posted on by Dr.Herazy

Peyronie's Disease Treatment is simple with Alternative Medicine

All Peyronie's disease treatment is surrounded by controversy.  Every drug used for treatment for Peyronie's disease is unproven, to say nothing of the Alternative Medicine treatments proposed by PDI.

No one can say which is the best treatment for Peyronie's disease at this time, because only prescription medication is researched by the drug industry.  Peyronie’s surgery and medication are the only forms of treatment for Peyronie’s disease that the pharmaceutical companies seriously investigate; no other Peyronie’s treatments are even considered.  With no economic motivation Alternative Medicine ideas are ignored.

The Peyronie's Disease Institute offers a way for the average man to apply concepts and have personal control over a form of new treatment for Peyronie’s disease, using Alternative Medicine.  Peyronie’s natural treatment will never be considered by the pharmaceutical and hospital industries, and these business interests will never endorse home treatment for Peyronie’s disease for obvious economic reasons.

The PDI website recommends aggressive use of multiple Peyronie's natural treatment in the acute and chronic stages.  The purpose of this intense treatment for Peyronie’s disease is to increase and support the maximum healing potential of the body.  In this way each man is given the best possible opportunity to repair and regenerate the damaged penile tissue to the best of his ability.

"Proof" of Peyronie's Disease Treatment

In modern society drugs and medical technology with the greatest profit potential are researched most and are pushed hardest into the marketplace. Even though a particular treatment for Peyronie's disease might help people, unless there is strong economic motivation to find “proof” that it works.  Low profit therapies (vitamins, enzymes, homeopathy) are generally ignored by the medical establishment for reason of simple economics.   Simple remedies are labeled “unproven” not necessarily because they do not work, but simply because no one wants to spend the time, effort and money to scientifically prove their effectiveness. A good home treatment for Peyronie’s disease can stay untested (ignored actually), and therefore remain “unproven”.

New Treatment for Peyronie's Disease

Our theories for using aggressive and multiple Peyronie’s treatments are not yet proven.  That proof is probably a long way off, since PDI cannot underwrite Peyronie's disease research the way a large university or billion dollar company can.   PDI is not against surgery or drugs in cases that have been non-responsive to prolonged aggressive use of its new treatment for Peyronie’s disease.  Too many men rush into Peyronie’s surgery believing that is an easy and sure solution to a big problem.

Natural Peyronie's disease treatment theory is that the potential benefits of these subtle natural therapies are enhanced and multiplied by simply using several alternative therapies at the same time.  We strongly suggest that abundant benefits are available to any man who needs treatment for Peyronie’s disease by using what is known and what is available – even if it is not perfect – rather than passively behave like a Peyronie’s victim.

Peyronie’s treatment, vitamin E, PABA and U.S. government

Posted on by Dr.Herazy

Vitamin E and PABA Used for Peyronie's Treatment

Here is interesting vitamin E, PABA and Peyronie’s treatment information from the National Kidney and Urologic Diseases Information Clearinghouse, an important arm of the prestigious National Institute of Health.

This information about  Peyronie’s treatment and vitamin E is not exactly new, because frankly, there is not much that is  new in the search for a Peyronies cure.  Even so, what makes this section worth reading is that it is interesting and immensely informative in a different way.  What is important to know about Peyronies treatment from a medical standpoint is not what is revealed, but what is not  mentioned about Peyronie’s treatment – in this case concerning the use of vitamin E.

This following paragraph is copied under the NIH’s discussion of “Experimental Peyronie’s Treatments”:

“Some researchers have given vitamin E orally to men with Peyronie’s disease in small-scale studies and have reported improvements. Yet, no controlled studies have established the effectiveness of vitamin E therapy. Similar inconclusive success has been attributed to oral application of para-aminobenzoate [PABA], a substance belonging to the family of B-complex molecules.”

It is important to know that this is as far as the discussion concerning the use of vitamin E and PABA goes in this government article.  It reports that “small-scale studies…have reported improvements. Yet, no controlled studies have established the effectiveness of vitamin E therapy.”   So, if there was some improvement noted when vitamin E and PABA were used in Peyronie’s treatment, exactly why have there been no additional controlled studies conducted to prove or disprove that these early initial positive reports were factual?  If it looked like these two experimental, but natural, non-drug Peyronie’s treatments were helpful, how can it be that no further testing has been done in this direction?

Isn’t the drug industry, or the AMA, or the government, or some private research group out there supposed to be interested in finding a Peyronie’s cure?   If some natural Peyronie's therapy like PABA or vitamin E showed some initial promise, why has no one looked into it further?   If something comes along that is naturally occurring, easy and inexpensive to produce, safe to take compared to drugs, and readily available in the marketplace, and happens to look like it could help men with Peyronie’s disease, why has it not been investigated further?  Why, indeed!

Vitamin E as a Peyronie’s treatment, or not

The answer to this natural question is found in the second sentence, in which it is mentioned, “no controlled studies have established the effectiveness of vitamin E therapy.”  This means that without these additional higher-level controlled studies, the effectiveness of vitamin E and PABA remain conveniently unproven. Therefore, vitamin E and PABA remain only at the experimental forever.  Exactly where the drug industry wants them to remain.  So long as they continue to ignore vitamin E – to not give it a legitimate opportunity to prove or disprove it's value to assist in Peyronie's treatment – the medical community and the drug industry can correctly say it is “unproven.”   This keeps vitamin E, and PABA, and other Alternative Medicine therapies out in the cold, where they would like them to remain.

It appears that the drug industry does not want to know if Peyronie’s disease can be treated with vitamin E.  If it were known that vitamin E, or PABA, or the PDI treatment concept of synergistic use of multiple Alternative Medicine therapies, are actually effective Peyronie’s treatments, then the entire argument against their use would crumble.  No one has stepped forward to conduct controlled studies because of fear that vitamin E, or PABA, might actually help the body heal the Peyronies plaque.

So long as the necessary tests are withheld, it is perfectly honest and legitimate to say that these natural therapies are “not proven” by controlled research.  This is a great discussion stopper, isn’t it?  Yet, no one goes the next step to ask, “And, exactly why have these necessary controlled studies not been performed in view of the small-scale studies that indicated these simple measures were effective?  Why the delay?  Why the lack of interest?”

Well, I guess we all know, and it should not surprise anyone, that the answer is the importance of profit over humanitarian interests.  It is unfortunate but apparently true, since I have found no reasonable answer to explain why this testing has not been conducted.   You can assure that if small-scale testing of a new drug showed the same improvement, that vast sums of additional funding would be forthcoming for controlled studies.  In this way, once that new drug could be proved or disproved, its march to the marketplace and profitability would be hastened.

Lastly, if you think the use of vitamin E or PABA might not be a reasonable kind of therapy to use because they are “unproven,” now you understand that this state of being unproven is a convenient strategy of those who help themselves more than they want to help you.

Perhaps this will help you to understand, and feel differently about, the use of vitamin E, PABA, and the rest of the Peyronie's Disease Institute program to treat this male scourge.   For more information about the use of vitamin E in the treatment of Peyronie's disease, go to Vitamin E, and to learn about the use of PABA in the treatment of Peyronie's disease, go to PABA.

This is why it is necessary for each man to look out for himself and become the master of his own Peyronie’s treatment, since there is no one as interested in your welfare as you – and the Peyronie’s Disease Institute.